Hepatitis C

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Hepatitis C?

Hepatitis C is a viral disease that leads to inflammation of the liver caused by the hepatitis C virus transmitted primarily by contaminated blood and is often associated with transfusion and IV drug abuse. However, in some case the source of hepatitis C is unknown.

What is it like to have Hepatitis C?

Common symptoms How bad it is What people are taking for it
Oxycodone, Hydrocodone-Acetaminophen, Gabapentin
Amitriptyline, Trazodone, Clonazepam
Modafinil, Amantadine, Loperamide
Citalopram, Sertraline, Duloxetine
Diazepam, Clonazepam, Lorazepam

What do patients take to treat Hepatitis C and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Copegus, Rebetol)


(PegIntron, PegIntron Redipen)


These charts show data from Hepatitis C patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Hepatitis C on PatientsLikeMe?

  • 527 patients have this condition
  • 5 new patients joined this month
  • 262 say Hepatitis C is their primary condition

Age Proportion # of patients
<20 1
20s 27
30s 50
40s 78
50s 174
60s 116
70+ 11


Distribution of females vs. males

54% Females
46% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 18
20-29 years 36
30-39 years 36
40-49 years 45
50-59 years 16
60-69 years 4
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 304
Not Diagnosed 8

These charts show data from Hepatitis C patients who have completed their condition history
Last updated: