Transverse Myelitis

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Transverse Myelitis?

Transverse myelitis is a neurological disorder caused by inflammation across both sides of one level, or segment, of the spinal cord. Myelitis refers to inflammation of the spinal cord; transverse simply describes the position of the inflammation, that is, across the width of the spinal cord.

What is it like to have Transverse Myelitis?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Transverse Myelitis and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Advantan, Medrol, Medrol DosePak) 7 more
Type
Prescription Drug
How many have tried
6
How many evaluations
3
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Type
Prescription Drug
How many have tried
4
How many evaluations
2
Treatment name(s)

(Ambien, Ambien CR, Edluar) 11 more
Type
Prescription Drug
How many have tried
4
How many evaluations
1
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
3
How many evaluations
3
Treatment name(s)

(Lyrica, Provelyn)
Type
Prescription Drug
How many have tried
3
How many evaluations
2
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
Type
Prescription Drug
How many have tried
2
How many evaluations
1
Treatment name(s)

(Azapress, Azasan, Imuran) 2 more
Type
Prescription Drug
How many have tried
2
How many evaluations
1
Treatment name(s)

(APO-Citalopram, Alcytan, Celexa) 15 more
Type
Prescription Drug
How many have tried
2
How many evaluations
1
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Type
Prescription Drug
How many have tried
2
How many evaluations
2
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Type
Prescription Drug
How many have tried
2
How many evaluations
0
See all 51 treatments
Data from patients with Transverse Myelitis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Transverse Myelitis

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Advantan, Medrol, Medrol DosePak) 7 more
How many have tried
6
Perceived effectiveness
Side effects
Insomnia Irritability 2 more
How many evaluations
3
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
How many have tried
4
Perceived effectiveness
Side effects
Brain zaps
How many evaluations
2
Treatment name(s)

(Ambien, Ambien CR, Edluar) 11 more
How many have tried
4
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
How many have tried
3
Perceived effectiveness
Side effects
Drowsy in a.m. Hot flashes
How many evaluations
3
Treatment name(s)

(Lyrica, Provelyn)
How many have tried
3
Perceived effectiveness
Side effects
Dark urine Erectile Dysfunction 2 more
How many evaluations
2
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)

(Azapress, Azasan, Imuran) 2 more
How many have tried
2
Perceived effectiveness
Side effects
Nausea and vomiting Rash or skin problems
How many evaluations
1
Treatment name(s)

(APO-Citalopram, Alcytan, Celexa) 15 more
How many have tried
2
Perceived effectiveness
Side effects
Anxious mood Difficulty falling asleep 5 more
How many evaluations
1
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
How many have tried
2
Perceived effectiveness
Side effects
Drowsiness Sleepiness 1 more
How many evaluations
2
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
0
See all 51 treatments
Data from patients with Transverse Myelitis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Transverse Myelitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 14
30s 23
40s 35
50s 44
60s 25
70+ 5

Gender

Distribution of females vs. males

75% Females
25% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 17
30-39 years 19
40-49 years 13
50-59 years 18
60-69 years 3
70+ years 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 96
Not Diagnosed 9

These charts show data from Transverse Myelitis patients who have completed their condition history
Last updated: