Skip over navigation

Home > Conditions > Parkinson's Community

You appear to have JavaScript disabled in your browser. PatientsLikeMe relies on JavaScript and Cookies to deliver the best possible experience to you. How do I enable JavaScript?

What is it like to have Parkinson's?

Common Symptoms	Patients' Latest Severity	My Current Severity
	Severity Severe Moderate Mild None
Constipation	220 (7%) patients experienced severe severity 719 (22%) patients experienced moderate severity 1060 (33%) patients experienced mild severity 1243 (38%) patients experienced no severity	None Mild Moderate Severe
Excess saliva	72 (2%) patients experienced severe severity 413 (13%) patients experienced moderate severity 1316 (41%) patients experienced mild severity 1435 (44%) patients experienced no severity	None Mild Moderate Severe
Excessive daytime sleepiness (somnolence)	174 (5%) patients experienced severe severity 840 (26%) patients experienced moderate severity 1326 (41%) patients experienced mild severity 903 (28%) patients experienced no severity	None Mild Moderate Severe
Memory problems	78 (2%) patients experienced severe severity 605 (19%) patients experienced moderate severity 1465 (45%) patients experienced mild severity 1097 (34%) patients experienced no severity	None Mild Moderate Severe
Sexual dysfunction	372 (11%) patients experienced severe severity 571 (18%) patients experienced moderate severity 831 (26%) patients experienced mild severity 1461 (45%) patients experienced no severity	None Mild Moderate Severe
Slowness	252 (8%) patients experienced severe severity 1243 (38%) patients experienced moderate severity 1384 (43%) patients experienced mild severity 363 (11%) patients experienced no severity	None Mild Moderate Severe
Stiffness/Spasticity	299 (9%) patients experienced severe severity 1239 (38%) patients experienced moderate severity 1332 (41%) patients experienced mild severity 381 (12%) patients experienced no severity	None Mild Moderate Severe

What do patients take to treat Parkinson's and its symptoms?

Commonly prescribed and frequently used treatments

Treatment name	Efficacy	Overall rating of side effects	# of Evaluations
Carbidopa-Levodopa (Sinemet 12.5/50, Syndopa, Caramet CR, Kinson)	178 (53%) experienced major efficacy 106 (31%) experienced moderate efficacy 28 (8%) experienced slight efficacy 6 (2%) experienced no efficacy 21 (6%) could not tell	16 (5%) experienced severe side effects 92 (27%) experienced moderate side effects 119 (35%) experienced mild side effects 112 (33%) experienced no side effects	339
Rasagiline (Azilect, Azilect, Agilect)	47 (19%) experienced major efficacy 49 (20%) experienced moderate efficacy 39 (16%) experienced slight efficacy 19 (8%) experienced no efficacy 91 (37%) could not tell	14 (6%) experienced severe side effects 29 (12%) experienced moderate side effects 40 (16%) experienced mild side effects 162 (66%) experienced no side effects	245
Ropinirole (Requip Prolib, Requip Depot, Requip LP, Requip XL)	69 (28%) experienced major efficacy 84 (34%) experienced moderate efficacy 52 (21%) experienced slight efficacy 17 (7%) experienced no efficacy 22 (9%) could not tell	58 (24%) experienced severe side effects 80 (33%) experienced moderate side effects 70 (29%) experienced mild side effects 36 (15%) experienced no side effects	244
Pramipexole (Teva pramipexole, Sifrol ER, Mirapex ER, Novo-Pramipexole)	43 (22%) experienced major efficacy 86 (43%) experienced moderate efficacy 30 (15%) experienced slight efficacy 13 (7%) experienced no efficacy 27 (14%) could not tell	50 (25%) experienced severe side effects 67 (34%) experienced moderate side effects 46 (23%) experienced mild side effects 36 (18%) experienced no side effects	199
Amantadine (Symmetrel, Amantix, PK Merz, Mantidan)	18 (16%) experienced major efficacy 33 (29%) experienced moderate efficacy 29 (26%) experienced slight efficacy 13 (12%) experienced no efficacy 19 (17%) could not tell	10 (9%) experienced severe side effects 25 (22%) experienced moderate side effects 24 (21%) experienced mild side effects 53 (47%) experienced no side effects	112
Carbidopa-Entacapone-Levodopa (Stalevo 125, Stalevo 75, Stalevo 200, Stalevo 100)	53 (49%) experienced major efficacy 35 (32%) experienced moderate efficacy 7 (6%) experienced slight efficacy 3 (3%) experienced no efficacy 11 (10%) could not tell	16 (15%) experienced severe side effects 28 (26%) experienced moderate side effects 29 (27%) experienced mild side effects 36 (33%) experienced no side effects	109
CoQ10 (CoEnzyme Q10) (Trader Joe's Co Enzyme Q10, Nutri-Dyn CoQ10, Pure encapsulations CoQ10, Q Avail Nano powder)	5 (7%) experienced major efficacy 6 (9%) experienced moderate efficacy 5 (7%) experienced slight efficacy 8 (11%) experienced no efficacy 46 (66%) could not tell	0 (0%) experienced severe side effects 1 (1%) experienced moderate side effects 2 (3%) experienced mild side effects 67 (96%) experienced no side effects	70
Carbidopa-Levodopa CR (Apo-Levocarb CR, Half Sinemet CR, Carbilev, Syndopa CR)	25 (52%) experienced major efficacy 10 (21%) experienced moderate efficacy 5 (10%) experienced slight efficacy 3 (6%) experienced no efficacy 5 (10%) could not tell	3 (6%) experienced severe side effects 13 (27%) experienced moderate side effects 9 (19%) experienced mild side effects 23 (48%) experienced no side effects	48
Deep Brain Stimulation (DBS) (Thalamic Deep Brain Stimulation, Subthalamic Nucleus Deep Brain Stimulation, Pallidal Deep Brain Stimulation)	33 (70%) experienced major efficacy 6 (13%) experienced moderate efficacy 4 (9%) experienced slight efficacy 1 (2%) experienced no efficacy 3 (6%) could not tell	3 (6%) experienced severe side effects 6 (13%) experienced moderate side effects 17 (36%) experienced mild side effects 21 (45%) experienced no side effects	47
Selegiline (Otrasel, Xilopar, Eldepryl, Deprenyl)	8 (17%) experienced major efficacy 10 (22%) experienced moderate efficacy 10 (22%) experienced slight efficacy 1 (2%) experienced no efficacy 17 (37%) could not tell	8 (17%) experienced severe side effects 4 (9%) experienced moderate side effects 6 (13%) experienced mild side effects 28 (61%) experienced no side effects	46
Entacapone (Comtess, Comtan)	3 (11%) experienced major efficacy 13 (48%) experienced moderate efficacy 5 (19%) experienced slight efficacy 1 (4%) experienced no efficacy 5 (19%) could not tell	3 (11%) experienced severe side effects 5 (19%) experienced moderate side effects 9 (33%) experienced mild side effects 10 (37%) experienced no side effects	27
Rotigotine (Neupro Patch)	11 (50%) experienced major efficacy 9 (41%) experienced moderate efficacy 0 (0%) experienced slight efficacy 0 (0%) experienced no efficacy 2 (9%) could not tell	2 (9%) experienced severe side effects 4 (18%) experienced moderate side effects 8 (36%) experienced mild side effects 8 (36%) experienced no side effects	22
Trihexyphenidyl (Trihexyphen, Agitane, Broflex, Benzhexol)	3 (18%) experienced major efficacy 6 (35%) experienced moderate efficacy 4 (24%) experienced slight efficacy 3 (18%) experienced no efficacy 1 (6%) could not tell	4 (24%) experienced severe side effects 3 (18%) experienced moderate side effects 6 (35%) experienced mild side effects 4 (24%) experienced no side effects	17
Levodopa-Benserazide (Madopar Depot, Levopar, Prolopa 100/25, Madopark Quick Mite)	7 (47%) experienced major efficacy 7 (47%) experienced moderate efficacy 1 (7%) experienced slight efficacy 0 (0%) experienced no efficacy 0 (0%) could not tell	0 (0%) experienced severe side effects 2 (13%) experienced moderate side effects 6 (40%) experienced mild side effects 7 (47%) experienced no side effects	15
Physical Exercise (Jogging / Personal Trainer / Circuit Training, Hindu Push-Ups, Shapemaster toning table, Hiking, Tennis, Gardening, a little jogging)	6 (46%) experienced major efficacy 5 (38%) experienced moderate efficacy 1 (8%) experienced slight efficacy 0 (0%) experienced no efficacy 1 (8%) could not tell	0 (0%) experienced severe side effects 1 (8%) experienced moderate side effects 3 (23%) experienced mild side effects 9 (69%) experienced no side effects	13

These charts show data from Parkinson's patients' latest treatment evaluations

Who has Parkinson's at PatientsLikeMe?

6,181 patients have this condition
30 New patients joined this month
6,087 say Parkinson's is their primary condition

<20	20-29	30-39	40-49	50-59	60-69	70+
Current Age
4 patients	40 patients	125 patients	469 patients	1117 patients	1499 patients	846 patients

Distribution of females vs. males
Gender
48%	Females
52%	Males

Age at first symptom
Age at first symptom	# of patients	Proportion
0-19 yrs	36	36
20-29 yrs	142	142
30-39 yrs	492	492
40-49 yrs	939	939
50-59 yrs	1174	1174
60-69 yrs	671	671
70+ yrs	194	194

Types
Condition Types	# of patients	Proportion
Drug-induced Parkinsonism	25	25
Inherited (genetic) Parkinson's disease	266	266
Parkinsonism (unknown cause)	937	937
Parkinson's disease	3148	3148
Vascular Parkinsonism	21	21

Diagnosis status
Diagnosis status	# of patients	Proportion
Diagnosed	4219	4219
Not Officially Diagnosed	126	126

These charts show data from Parkinson's patients who have completed their condition history

Find patients just like you Patients with Parkinson's

Where do I talk to patients with Parkinson's?

Parkinson's Disease Room

**7,942** members
107k+ posts | 13k+ topics

View this forum »
Most Recent Topics
Blood Count is Low -- They are pushing me to see hemotologist next week!	about 1 hour ago
I t helps to be sharp	about 1 hour ago
Information to share about muscle spasms legs	about 2 hours ago

PatientsLikeMe Videos