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What is Lymphedema?

Lymphedema is the accumulation of a fluid called lymph. The lymphatic system carries this fluid through lymph vessels and lymph nodes throughout the body. Swelling may occur when there is an increase in the amount of fluid or due to blockage that disrupts the normal flow.

What is it like to have Lymphedema?

Common symptoms How bad it is What people are taking for it
Hydrocodone-Acetaminophen, Hydromorphone, Cyclobenzaprine
Amitriptyline, Trazodone, Clonazepam
Motorized scooter/chair, Coffee, Lift chair
Citalopram, Duloxetine, Fluoxetine
Lorazepam, Diazepam, Propranolol

What do patients take to treat Lymphedema and its symptoms?


Let’s build this page together! When you share what it’s like to have Lymphedema through your profile, those stories and data appear here too.

Got a question about living with Lymphedema? Members in the forum might have the answers.

Who has Lymphedema on PatientsLikeMe?

  • 173 patients have this condition
  • 3 new patients joined this month
  • 69 say Lymphedema is their primary condition

Age Proportion # of patients
<20 1
20s 8
30s 20
40s 39
50s 52
60s 28
70+ 10


Distribution of females vs. males

87% Females
13% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 8
30-39 years 18
40-49 years 32
50-59 years 14
60-69 years 7
70+ years 2

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 108
Not Diagnosed 6

These charts show data from Lymphedema patients who have completed their condition history
Last updated: