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What is Lymphedema?

Lymphedema is the accumulation of a fluid called lymph. The lymphatic system carries this fluid through lymph vessels and lymph nodes throughout the body. Swelling may occur when there is an increase in the amount of fluid or due to blockage that disrupts the normal flow.

What is it like to have Lymphedema?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Lymphedema and its symptoms?

No data

Let’s build this page together! When you share what it’s like to have Lymphedema through your profile, those stories and data appear here too.

Got a question about living with Lymphedema? Members in the forum might have the answers.

Who has Lymphedema on PatientsLikeMe?

Age Proportion # of patients
<20 1
20s 9
30s 27
40s 48
50s 66
60s 36
70+ 14


Distribution of females vs. males

88% Females
12% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 18
20-29 years 12
30-39 years 23
40-49 years 37
50-59 years 22
60-69 years 10
70+ years 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 141
Not Diagnosed 9

These charts show data from Lymphedema patients who have completed their condition history
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