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What is Lymphedema?

Lymphedema is the accumulation of a fluid called lymph. The lymphatic system carries this fluid through lymph vessels and lymph nodes throughout the body. Swelling may occur when there is an increase in the amount of fluid or due to blockage that disrupts the normal flow.

What is it like to have Lymphedema?

Common symptoms
How bad it is
What people are taking for it

What do patients take to treat Lymphedema and its symptoms?

No data

Let’s build this page together! When you share what it’s like to have Lymphedema through your profile, those stories and data appear here too.

Got a question about living with Lymphedema? Members in the forum might have the answers.

Who has Lymphedema on PatientsLikeMe?

  • 195patients have this condition
  • 3new patients joined this month
  • 82say Lymphedema is their primary condition

Age Proportion # of patients
<20 1
20s 8
30s 25
40s 40
50s 58
60s 34
70+ 14


Distribution of females vs. males

87% Females
13% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 10
30-39 years 21
40-49 years 35
50-59 years 17
60-69 years 8
70+ years 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 126
Not Diagnosed 7

These charts show data from Lymphedema patients who have completed their condition history
Last updated: