Lymphedema

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Lymphedema?

Lymphedema is the accumulation of a fluid called lymph. The lymphatic system carries this fluid through lymph vessels and lymph nodes throughout the body. Swelling may occur when there is an increase in the amount of fluid or due to blockage that disrupts the normal flow.

Common symptoms reported by people with Lymphedema

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Lymphedema

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Check to add this treatment to your profile
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (1) Pain (1)
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Treatment name(s)

(APO-Citalopram, Alcytan, Celexa) 15 more
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Actan, Flunil, Fluxene) 15 more
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Amantia Muscaria blend, BC Bud, Cannabis Indica) 3 more
Type
Other
How many have tried
1
Tried for
Anxious mood (1) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(CPD Diclofenac 5% in Diffusimax gel, Cambia, Cataflam) 21 more
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with Lymphedema, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Lymphedema

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Daytime sleepiness Lightheadedness
How many evaluations
1
Tried for
Pain (4)
Check to add this treatment to your profile
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Dry mouth Tiredness
How many evaluations
1
Tried for
Anxious mood (1) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(APO-Citalopram, Alcytan, Celexa) 15 more
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
How many evaluations
1
Tried for
Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Actan, Flunil, Fluxene) 15 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Amantia Muscaria blend, BC Bud, Cannabis Indica) 3 more
Perceived effectiveness
No evaluations
Side effects
Dry mouth Eyes red
How many evaluations
1
Tried for
Anxious mood (1) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
Drowsy in a.m. Memory and cognition problems
How many evaluations
1
Tried for
Anxious mood (1) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
Perceived effectiveness
for Anxious mood (1 evaluation)
Side effects
How many evaluations
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(CPD Diclofenac 5% in Diffusimax gel, Cambia, Cataflam) 21 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)

Data from patients with Lymphedema, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Lymphedema on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 10
30s 26
40s 49
50s 69
60s 38
70+ 17

Gender

Distribution of females vs. males

87% Females
13% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 12
30-39 years 25
40-49 years 38
50-59 years 22
60-69 years 11
70+ years 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 146
Not Diagnosed 8

These charts show data from Lymphedema patients who have completed their condition history
Last updated: