Lymphedema

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Lymphedema?

Lymphedema is the accumulation of a fluid called lymph. The lymphatic system carries this fluid through lymph vessels and lymph nodes throughout the body. Swelling may occur when there is an increase in the amount of fluid or due to blockage that disrupts the normal flow.

What is it like to have Lymphedema?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Lymphedema and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Type
Prescription Drug
How many have tried
3
How many evaluations
1
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Type
Prescription Drug
How many have tried
2
How many evaluations
0
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
2
How many evaluations
1
Treatment name(s)

(APO-Citalopram, Alcytan, Celexa) 15 more
Type
Prescription Drug
How many have tried
2
How many evaluations
1
Treatment name(s)

(Anaprox, Anaprox-DS, E-Mylan Naproxen) 8 more
Type
Prescription Drug
How many have tried
2
How many evaluations
0
Treatment name(s)

(Amantia Muscaria blend, BC Bud, Cannabis Indica) 3 more
Type
Other
How many have tried
1
How many evaluations
1
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)

(Allergy Brand, Benadryl, Benadryl Allergy) 12 more
Type
Over the Counter Drug
How many have tried
1
How many evaluations
0
See all 36 treatments
Data from patients with Lymphedema, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Lymphedema

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
How many have tried
3
Perceived effectiveness
Side effects
Daytime sleepiness Lightheadedness
How many evaluations
1
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
How many have tried
2
Perceived effectiveness
Side effects
Dry mouth Tiredness
How many evaluations
1
Treatment name(s)

(APO-Citalopram, Alcytan, Celexa) 15 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)

(Anaprox, Anaprox-DS, E-Mylan Naproxen) 8 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Amantia Muscaria blend, BC Bud, Cannabis Indica) 3 more
How many have tried
1
Perceived effectiveness
Side effects
Dry mouth Eyes red
How many evaluations
1
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
How many have tried
1
Perceived effectiveness
Side effects
Drowsy in a.m. Memory and cognition problems
How many evaluations
1
Treatment name(s)
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)

(Allergy Brand, Benadryl, Benadryl Allergy) 12 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
See all 36 treatments
Data from patients with Lymphedema, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Lymphedema on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 9
30s 26
40s 48
50s 68
60s 38
70+ 17

Gender

Distribution of females vs. males

87% Females
13% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 18
20-29 years 12
30-39 years 24
40-49 years 37
50-59 years 22
60-69 years 11
70+ years 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 144
Not Diagnosed 8

These charts show data from Lymphedema patients who have completed their condition history
Last updated: