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What is it like to have Crohn's Disease?

Common symptoms	How bad it is	What people are taking for it
Severity Severe Moderate Mild None
Insomnia	84 (17%) patients experienced severe severity 145 (28%) patients experienced moderate severity 115 (23%) patients experienced mild severity 165 (32%) patients experienced no severity	Amitriptyline, Clonazepam, Zolpidem
Abdominal pain	70 (16%) patients experienced severe severity 129 (29%) patients experienced moderate severity 137 (31%) patients experienced mild severity 104 (24%) patients experienced no severity	Fentanyl Transdermal Patch, Yogurt with live cultures (Active, Dannon, Stoney Brown Cow), Tramadol
Diarrhea	74 (17%) patients experienced severe severity 134 (31%) patients experienced moderate severity 104 (24%) patients experienced mild severity 125 (29%) patients experienced no severity	Loperamide, Diphenoxylate and Atropine, Florastor
Fatigue	153 (30%) patients experienced severe severity 203 (39%) patients experienced moderate severity 115 (22%) patients experienced mild severity 45 (9%) patients experienced no severity	Modafinil, Multivitamins, Amphetamine-Dextroamphetamine
Depressed mood	46 (9%) patients experienced severe severity 144 (28%) patients experienced moderate severity 169 (33%) patients experienced mild severity 154 (30%) patients experienced no severity	Fluoxetine, Sertraline, Venlafaxine
Pain	103 (20%) patients experienced severe severity 193 (38%) patients experienced moderate severity 127 (25%) patients experienced mild severity 87 (17%) patients experienced no severity	Acetaminophen (Paracetamol), Hydrocodone-Acetaminophen, Tramadol
Anxious mood	45 (9%) patients experienced severe severity 151 (30%) patients experienced moderate severity 160 (31%) patients experienced mild severity 153 (30%) patients experienced no severity	Alprazolam, Fluoxetine, Clonazepam

What do patients take to treat Crohn's Disease and its symptoms?

Treatments reported by members	Perceived effectiveness	Overall rating of side effects	# of Evaluations
Mesalamine (Walasa, Canasa, Asacol HD, Colitofalk)	1 (4%) experienced major perceived effectiveness 3 (12%) experienced moderate perceived effectiveness 5 (20%) experienced slight perceived effectiveness 9 (36%) experienced no perceived effectiveness 7 (28%) could not tell	0 (0%) experienced severe side effects 4 (16%) experienced moderate side effects 5 (20%) experienced mild side effects 16 (64%) experienced no side effects	25
Infliximab (Remicade)	11 (46%) experienced major perceived effectiveness 7 (29%) experienced moderate perceived effectiveness 4 (17%) experienced slight perceived effectiveness 1 (4%) experienced no perceived effectiveness 1 (4%) could not tell	4 (17%) experienced severe side effects 5 (21%) experienced moderate side effects 9 (38%) experienced mild side effects 6 (25%) experienced no side effects	24
Adalimumab (Humira Pen Psoriasis Starter Package, Humira Pen, Humira Pen Crohn's Disease Starter Package, Humira)	8 (40%) experienced major perceived effectiveness 3 (15%) experienced moderate perceived effectiveness 3 (15%) experienced slight perceived effectiveness 5 (25%) experienced no perceived effectiveness 1 (5%) could not tell	4 (20%) experienced severe side effects 3 (15%) experienced moderate side effects 7 (35%) experienced mild side effects 6 (30%) experienced no side effects	20
Azathioprine (Azasan, Azapress, Imurel, Imuran)	2 (15%) experienced major perceived effectiveness 8 (62%) experienced moderate perceived effectiveness 1 (8%) experienced slight perceived effectiveness 0 (0%) experienced no perceived effectiveness 2 (15%) could not tell	2 (15%) experienced severe side effects 5 (38%) experienced moderate side effects 5 (38%) experienced mild side effects 1 (8%) experienced no side effects	13
Prednisone (Pulmison, Prednisone Intensol, Encorton, Deltasone)	6 (46%) experienced major perceived effectiveness 3 (23%) experienced moderate perceived effectiveness 2 (15%) experienced slight perceived effectiveness 1 (8%) experienced no perceived effectiveness 1 (8%) could not tell	9 (69%) experienced severe side effects 2 (15%) experienced moderate side effects 1 (8%) experienced mild side effects 1 (8%) experienced no side effects	13
Budesonide (Budesonide Nasal, Uceris, Entocort EC, Pulmicort Flexhaler)	3 (23%) experienced major perceived effectiveness 5 (38%) experienced moderate perceived effectiveness 2 (15%) experienced slight perceived effectiveness 2 (15%) experienced no perceived effectiveness 1 (8%) could not tell	1 (8%) experienced severe side effects 1 (8%) experienced moderate side effects 3 (23%) experienced mild side effects 8 (62%) experienced no side effects	13
Mercaptopurine	1 (20%) experienced major perceived effectiveness 2 (40%) experienced moderate perceived effectiveness 1 (20%) experienced slight perceived effectiveness 0 (0%) experienced no perceived effectiveness 1 (20%) could not tell	1 (20%) experienced severe side effects 1 (20%) experienced moderate side effects 1 (20%) experienced mild side effects 2 (40%) experienced no side effects	5

These charts show data from Crohn's Disease patients' latest treatment evaluations

Who has Crohn's Disease at PatientsLikeMe?

1,481 patients have this condition
354 New patients joined this month
1,243 say Crohn's Disease is their primary condition

<20	20s	30s	40s	50s	60s	70+
Current Age
70 patients	235 patients	302 patients	394 patients	276 patients	91 patients	15 patients

Distribution of females vs. males
Gender
73%	Females
27%	Males

Age at first symptom
Age at first symptom	# of patients	Proportion
0-19 years	290	290
20-29 years	223	223
30-39 years	79	79
40-49 years	55	55
50-59 years	18	18
60-69 years	1	1
70+ years	0	0

Diagnosis status
Diagnosis status	# of patients	Proportion
Not Diagnosed	26	26
Diagnosed	789	789

These charts show data from Crohn's Disease patients who have completed their condition history

Find patients just like you Patients with Crohn's Disease

Where do I talk to patients with Crohn's Disease?

Immune, Inflammatory and Infections Forum

**34,004** members
3k+ posts | 515 topics

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Last updated: June 19, 2013