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What is it like to have Celiac Disease?

Common symptoms	How bad it is	What people are taking for it
Severity Severe Moderate Mild None
Pain	63 (26%) patients experienced severe severity 94 (39%) patients experienced moderate severity 53 (22%) patients experienced mild severity 28 (12%) patients experienced no severity	Hydrocodone-Acetaminophen, Ibuprofen, Tramadol
Insomnia	39 (17%) patients experienced severe severity 70 (30%) patients experienced moderate severity 70 (30%) patients experienced mild severity 54 (23%) patients experienced no severity	Zolpidem, Melatonin, Clonazepam
Fatigue	88 (37%) patients experienced severe severity 93 (39%) patients experienced moderate severity 45 (19%) patients experienced mild severity 15 (6%) patients experienced no severity	Modafinil, Multivitamins, Amphetamine-Dextroamphetamine
Anxious mood	19 (8%) patients experienced severe severity 65 (28%) patients experienced moderate severity 102 (43%) patients experienced mild severity 50 (21%) patients experienced no severity	Clonazepam, Lorazepam, Alprazolam
Depressed mood	23 (10%) patients experienced severe severity 51 (22%) patients experienced moderate severity 90 (38%) patients experienced mild severity 73 (31%) patients experienced no severity	Sertraline, Fluoxetine, Duloxetine

What do patients take to treat Celiac Disease and its symptoms?

Treatments reported by members	Perceived effectiveness	Overall rating of side effects	# of Evaluations
Gluten Free Diet (Burgen Gluten Free Bread, Burgen gluten free bread)	10 (77%) experienced major perceived effectiveness 2 (15%) experienced moderate perceived effectiveness 0 (0%) experienced slight perceived effectiveness 0 (0%) experienced no perceived effectiveness 1 (8%) could not tell	2 (15%) experienced severe side effects 2 (15%) experienced moderate side effects 2 (15%) experienced mild side effects 7 (54%) experienced no side effects	13

These charts show data from Celiac Disease patients' latest treatment evaluations

Who has Celiac Disease at PatientsLikeMe?

463 patients have this condition
15 New patients joined this month
142 say Celiac Disease is their primary condition

<20	20s	30s	40s	50s	60s	70+
Current Age
20 patients	72 patients	101 patients	112 patients	97 patients	32 patients	5 patients

Distribution of females vs. males
Gender
83%	Females
17%	Males

Age at first symptom
Age at first symptom	# of patients	Proportion
0-19 years	97	97
20-29 years	75	75
30-39 years	46	46
40-49 years	40	40
50-59 years	14	14
60-69 years	1	1
70+ years	0	0

Diagnosis status
Diagnosis status	# of patients	Proportion
Diagnosed	293	293
Not Diagnosed	48	48

These charts show data from Celiac Disease patients who have completed their condition history

Find patients just like you Patients with Celiac Disease

Where do I talk to patients with Celiac Disease?

Endocrine, Metabolism and Nutrition Forum

**22,037** members
1k+ posts | 178 topics

View this forum »
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Last updated: May 25, 2013