What is dystonia?
Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal posture due to disordered tonicity of muscles. Sustained muscle contraction (dystonia) may be caused by a number of conditions.
How do members experience dystonia?
Top 5 symptoms reported by people with dystonia*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Legs shaking
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Foot dystonia
How bad it is
What people are taking for it
Common symptom
Pain in back of neck and shoulders
How bad it is
What people are taking for it
Common symptom
Right ankle contracture
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Neck pain
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for dystonia*
Treatment
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
118
Tried for
dystonia
(1)
Type
Prescription Drug
How many have tried
153
Tried for
dystonia
(1)
*Data from patients with dystonia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Compare treatments taken by people with dystonia*
Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
dystonia
(1)
Perceived effectiveness
for dystonia (1 evaluation)
Side effects
Total evaluations
1
Tried for
dystonia
(1)
*Data from patients with dystonia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Who has dystonia on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 7 | |
20s | 20 | |
30s | 64 | |
40s | 104 | |
50s | 127 | |
60s | 166 | |
70+ | 117 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 147 | |
Female | 452 |