What is dystonia?

Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal posture due to disordered tonicity of muscles. Sustained muscle contraction (dystonia) may be caused by a number of conditions.

How do members experience dystonia?

Top 5 symptoms reported by people with dystonia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for dystonia*

*Data from patients with dystonia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with dystonia*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Botox)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
dystonia (1)
Treatment

(Sinemet)
Perceived effectiveness
for dystonia (1 evaluation)
Side effects
Total evaluations
1
Tried for
dystonia (1)

*Data from patients with dystonia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has dystonia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 7
20s 20
30s 64
40s 104
50s 127
60s 166
70+ 117

Distribution of sex

Sex

Sex Proportion # of patients
Male 147
Female 452