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What is it like to have Epilepsy?

Common Symptoms	Patients' Latest Severity	My Current Severity
	Severity Severe Moderate Mild None
Excessive daytime sleepiness (somnolence)	360 (14%) patients experienced severe severity 733 (28%) patients experienced moderate severity 838 (32%) patients experienced mild severity 692 (26%) patients experienced no severity	None Mild Moderate Severe
Headaches	309 (12%) patients experienced severe severity 641 (24%) patients experienced moderate severity 790 (30%) patients experienced mild severity 895 (34%) patients experienced no severity	None Mild Moderate Severe
Memory problems	551 (21%) patients experienced severe severity 925 (35%) patients experienced moderate severity 713 (27%) patients experienced mild severity 430 (16%) patients experienced no severity	None Mild Moderate Severe
Problems concentrating	453 (17%) patients experienced severe severity 907 (35%) patients experienced moderate severity 801 (31%) patients experienced mild severity 463 (18%) patients experienced no severity	None Mild Moderate Severe

What do patients take to treat Epilepsy and its symptoms?

Commonly prescribed and frequently used treatments

	Efficacy	Overall rating of side effects	# of Evaluations
Levetiracetam (Keppra, Keppra XR)	128 (46%) experienced major efficacy 81 (29%) experienced moderate efficacy 25 (9%) experienced slight efficacy 12 (4%) experienced no efficacy 33 (12%) could not tell	51 (18%) experienced severe side effects 86 (31%) experienced moderate side effects 90 (32%) experienced mild side effects 52 (19%) experienced no side effects	279
Lamotrigine (Lamictal ODT Green Titration Kit, Lamictin, Lamictal ODT Orange Titration Kit, Lamictal)	81 (42%) experienced major efficacy 53 (28%) experienced moderate efficacy 25 (13%) experienced slight efficacy 11 (6%) experienced no efficacy 21 (11%) could not tell	22 (12%) experienced severe side effects 55 (29%) experienced moderate side effects 70 (37%) experienced mild side effects 44 (23%) experienced no side effects	191
Topiramate (Topamax Sprinkle, Topictal, Toprel, Topamax)	38 (29%) experienced major efficacy 47 (36%) experienced moderate efficacy 20 (15%) experienced slight efficacy 12 (9%) experienced no efficacy 15 (11%) could not tell	30 (23%) experienced severe side effects 49 (37%) experienced moderate side effects 26 (20%) experienced mild side effects 27 (20%) experienced no side effects	132
Carbamazepine (Shire Carbamazepine, Hermolepsin retard, Equetro, Carbatrol ER)	52 (41%) experienced major efficacy 35 (28%) experienced moderate efficacy 20 (16%) experienced slight efficacy 9 (7%) experienced no efficacy 10 (8%) could not tell	27 (21%) experienced severe side effects 40 (32%) experienced moderate side effects 37 (29%) experienced mild side effects 22 (17%) experienced no side effects	126
Phenytoin (Phenytoin liquid, Dilantin Infatabs, Epamin, Phenytek)	43 (40%) experienced major efficacy 29 (27%) experienced moderate efficacy 16 (15%) experienced slight efficacy 10 (9%) experienced no efficacy 9 (8%) could not tell	29 (27%) experienced severe side effects 31 (29%) experienced moderate side effects 24 (22%) experienced mild side effects 23 (21%) experienced no side effects	107
Divalproex sodium (Divalproex sodium ER, Novo-Divalproex, Depakote Sprinkles, Depakote ER)	40 (38%) experienced major efficacy 33 (32%) experienced moderate efficacy 10 (10%) experienced slight efficacy 16 (15%) experienced no efficacy 5 (5%) could not tell	37 (36%) experienced severe side effects 30 (29%) experienced moderate side effects 28 (27%) experienced mild side effects 9 (9%) experienced no side effects	104
Zonisamide (Zonegran)	19 (30%) experienced major efficacy 19 (30%) experienced moderate efficacy 13 (21%) experienced slight efficacy 4 (6%) experienced no efficacy 8 (13%) could not tell	13 (21%) experienced severe side effects 17 (27%) experienced moderate side effects 16 (25%) experienced mild side effects 17 (27%) experienced no side effects	63
Lacosamide (Vimpat)	17 (28%) experienced major efficacy 15 (25%) experienced moderate efficacy 8 (13%) experienced slight efficacy 8 (13%) experienced no efficacy 12 (20%) could not tell	10 (17%) experienced severe side effects 19 (32%) experienced moderate side effects 20 (33%) experienced mild side effects 11 (18%) experienced no side effects	60
Oxcarbazepine (Oleptal, Trileptal)	18 (33%) experienced major efficacy 16 (29%) experienced moderate efficacy 6 (11%) experienced slight efficacy 7 (13%) experienced no efficacy 8 (15%) could not tell	17 (31%) experienced severe side effects 15 (27%) experienced moderate side effects 13 (24%) experienced mild side effects 10 (18%) experienced no side effects	55
Clonazepam (DOM-Clonazepam, Paxam, APO Clonazepam, Clonotril)	7 (19%) experienced major efficacy 11 (30%) experienced moderate efficacy 11 (30%) experienced slight efficacy 3 (8%) experienced no efficacy 5 (14%) could not tell	7 (19%) experienced severe side effects 8 (22%) experienced moderate side effects 13 (35%) experienced mild side effects 9 (24%) experienced no side effects	37
Vagus Nerve Stimulation (VNS)	11 (38%) experienced major efficacy 9 (31%) experienced moderate efficacy 1 (3%) experienced slight efficacy 4 (14%) experienced no efficacy 4 (14%) could not tell	1 (3%) experienced severe side effects 5 (17%) experienced moderate side effects 18 (62%) experienced mild side effects 5 (17%) experienced no side effects	29
Gabapentin (DOM-Gabapentin, PMS-Gabatentin, APO-Gabapentin, Gabaran)	4 (15%) experienced major efficacy 12 (44%) experienced moderate efficacy 2 (7%) experienced slight efficacy 4 (15%) experienced no efficacy 5 (19%) could not tell	10 (37%) experienced severe side effects 4 (15%) experienced moderate side effects 11 (41%) experienced mild side effects 2 (7%) experienced no side effects	27
Phenobarbital	12 (50%) experienced major efficacy 4 (17%) experienced moderate efficacy 3 (13%) experienced slight efficacy 2 (8%) experienced no efficacy 3 (13%) could not tell	5 (21%) experienced severe side effects 9 (38%) experienced moderate side effects 5 (21%) experienced mild side effects 5 (21%) experienced no side effects	24
Pregabalin (Lyrica)	5 (21%) experienced major efficacy 12 (50%) experienced moderate efficacy 3 (13%) experienced slight efficacy 3 (13%) experienced no efficacy 1 (4%) could not tell	6 (25%) experienced severe side effects 10 (42%) experienced moderate side effects 4 (17%) experienced mild side effects 4 (17%) experienced no side effects	24
Lorazepam (Sandoz Lorazepam, Lorenin, Orfidal, Tranquipam)	18 (82%) experienced major efficacy 1 (5%) experienced moderate efficacy 2 (9%) experienced slight efficacy 0 (0%) experienced no efficacy 1 (5%) could not tell	3 (14%) experienced severe side effects 2 (9%) experienced moderate side effects 8 (36%) experienced mild side effects 9 (41%) experienced no side effects	22

These charts show data from Epilepsy patients' latest treatment evaluations

Who has Epilepsy at PatientsLikeMe?

5,153 patients have this condition
368 New patients joined this month
4,725 say Epilepsy is their primary condition

<20	20-29	30-39	40-49	50-59	60-69	70+
Current Age
266 patients	946 patients	1226 patients	1069 patients	554 patients	182 patients	31 patients

Distribution of females vs. males
Gender
71%	Females
29%	Males

Age at first symptom
Age at first symptom	# of patients	Proportion
0-19 yrs	2335	2335
20-29 yrs	659	659
30-39 yrs	390	390
40-49 yrs	216	216
50-59 yrs	68	68
60-69 yrs	21	21
70+ yrs	4	4

Diagnosis status
Diagnosis status	# of patients	Proportion
Diagnosed	3634	3634
Not Officially Diagnosed	170	170

These charts show data from Epilepsy patients who have completed their condition history

Find patients just like you Patients with Epilepsy

Where do I talk to patients with Epilepsy?

Epilepsy Room

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20k+ posts | 2k+ topics

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Most Recent Topics
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Vagus Nerve Stimulator	1 day ago
Epilepsy	1 day ago

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