We’re all in this for good.By sharing your stories and data, you will:
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Niemann-Pick Disease?
Niemann-Pick disease is an inherited condition involving lipid metabolism, which is the breakdown, transport, and use of fats and cholesterol in the body. Symptoms are related to the organs in which lipids accumulate.
Let’s build this page together! When you share what it’s like to have Niemann-Pick Disease through your profile, those stories and data appear here too.
Got a question about living with Niemann-Pick Disease? Members in the forum might have the answers.
Distribution of females vs. males
|Age at first symptom||Proportion||# of patients|
|Condition Types||Proportion||# of patients|
|Diagnosis status||Proportion||# of patients|