Niemann-Pick Disease

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What is Niemann-Pick Disease?

Niemann-Pick disease is an inherited condition involving lipid metabolism, which is the breakdown, transport, and use of fats and cholesterol in the body. Symptoms are related to the organs in which lipids accumulate.

What is it like to have Niemann-Pick Disease?

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Niemann-Pick Disease and its symptoms?

No data

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Got a question about living with Niemann-Pick Disease? Members in the forum might have the answers.

Who has Niemann-Pick Disease on PatientsLikeMe?

Age Proportion # of patients
<20 12
20s 3
30s 4
40s 1
50s 0
60s 1
70+ 0


Distribution of females vs. males

39% Females
61% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Condition Types Proportion # of patients
Type A 0
Type B 0
Type C 7
Type D 0
Type E 0
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 16
Not Diagnosed 0

These charts show data from NPD patients who have completed their condition history
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