What is Ehlers Danlos?
Ehlers-Danlos syndrome is a group of disorders that affect connective tissues, which are tissues that support the skin, bones, blood vessels, and other organs. All types of Ehler-Danlos syndrome affect the joints and many also affect the skin.
Who has Ehlers Danlos at PatientsLikeMe?
- 147 patients have this condition
- 7 New patients joined this month
- 85 say Ehlers Danlos is their primary condition
| <20 | 20-29 | 30-39 | 40-49 | 50-59 | 60-69 | 70+ |
|---|---|---|---|---|---|---|
| Current Age | ||||||
| Gender | |
| 93% | Females |
|---|---|
| 7% | Males |
| Age at first symptom | # of patients | Proportion |
|---|---|---|
| 0-19 yrs | 100 | |
| 20-29 yrs | 4 | |
| 30-39 yrs | 3 | |
| 40-49 yrs | 2 | |
| 50-59 yrs | 0 | |
| 60-69 yrs | 0 | |
| 70+ yrs | 0 |
| Diagnosis status | # of patients | Proportion |
|---|---|---|
| Diagnosed | 104 | |
| Not Officially Diagnosed | 24 |
These charts show data from Ehlers Danlos patients who have completed their condition history