Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome which may also be known as Myalgic Encephalomyelitis (ME) is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

What is it like to have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from ME/CFS patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 67
20s 557
30s 1,627
40s 3,026
50s 3,164
60s 1,436
70+ 224

Gender

Distribution of females vs. males

91% Females
9% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 777
20-29 years 1,046
30-39 years 1,213
40-49 years 952
50-59 years 342
60-69 years 37
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 120
Chronic Fatigue Syndrome (CFS) 361
Myalgic Encephalomyelitis (ME) 191
Neuroendocrine Immune Disorder 36
Post-Viral Fatigue Syndrome (PVFS) 60
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,776
Not Diagnosed 3,734

These charts show data from ME/CFS patients who have completed their condition history
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