Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome which may also be known as Myalgic Encephalomyelitis (ME) is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

What is it like to have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Common symptoms
How bad it is
What people are taking for it

What do patients take to treat Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from ME/CFS patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?

  • 11,088patients have this condition
  • 58new patients joined this month
  • 2,741say ME/CFS is their primary condition

Age
Age Proportion # of patients
<20 72
20s 558
30s 1,626
40s 3,017
50s 3,132
60s 1,391
70+ 215

Gender

Distribution of females vs. males

91% Females
9% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 760
20-29 years 1,021
30-39 years 1,185
40-49 years 924
50-59 years 326
60-69 years 37
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 71
Chronic Fatigue Syndrome (CFS) 212
Myalgic Encephalomyelitis (ME) 123
Neuroendocrine Immune Disorder 17
Post-Viral Fatigue Syndrome (PVFS) 34
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,674
Not Diagnosed 3,735

These charts show data from ME/CFS patients who have completed their condition history
Last updated: