Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome which may also be known as Myalgic Encephalomyelitis (ME) is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

What is it like to have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Common symptoms
How bad it is
What people are taking for it

What do patients take to treat Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from ME/CFS patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?

Age Proportion # of patients
<20 70
20s 559
30s 1,633
40s 3,014
50s 3,142
60s 1,419
70+ 218


Distribution of females vs. males

91% Females
9% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 773
20-29 years 1,039
30-39 years 1,200
40-49 years 944
50-59 years 335
60-69 years 37
70+ years 6

Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 111
Chronic Fatigue Syndrome (CFS) 318
Myalgic Encephalomyelitis (ME) 176
Neuroendocrine Immune Disorder 32
Post-Viral Fatigue Syndrome (PVFS) 55
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,738
Not Diagnosed 3,732

These charts show data from ME/CFS patients who have completed their condition history
Last updated: