Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome which may also be known as Myalgic Encephalomyelitis (ME) is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
342
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
336
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
187
Tried for
Pain (164) Muscle pain (67)
3 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
126
Tried for
Insomnia (86) Pain (69)
6 more
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
121
Tried for
Pain (117) Muscle pain (5)
3 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
104
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
81
Tried for
Anxious mood (60) Insomnia (14)
4 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
66
Tried for
Insomnia (49) Depressed mood (8)
4 more
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Treatment name(s)

(Ambien)
Type
Prescription Drug
How many have tried
64
Tried for
Insomnia (59) Unrefreshing or poor sleep (3)
4 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
59
Tried for
Pain (46) Insomnia (4)
5 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (70 evaluations)
Side effects
Nausea Weight gain 104 more
How many evaluations
179
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (88 evaluations)
Side effects
Weight gain Dizziness 138 more
How many evaluations
182
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (79 evaluations)
Side effects
Constipation Dizziness 48 more
How many evaluations
99
Tried for
Pain (164) Muscle pain (67)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (61 evaluations)
Side effects
Dry mouth Drowsiness 33 more
How many evaluations
78
Tried for
Insomnia (86) Pain (69)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (38 evaluations)
Side effects
Constipation Drowsiness 16 more
How many evaluations
43
Tried for
Pain (117) Muscle pain (5)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (54 evaluations)
Side effects
Dizziness Weight gain 46 more
How many evaluations
71
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (20 evaluations)
Side effects
Drowsy in a.m. Borderline Personality Disorder 13 more
How many evaluations
37
Tried for
Anxious mood (60) Insomnia (14)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (23 evaluations)
Side effects
dizziness like jet lag, vagueness in head with increasing intensity. Dry mouth 7 more
How many evaluations
29
Tried for
Insomnia (49) Depressed mood (8)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Perceived effectiveness
for Insomnia (49 evaluations)
Side effects
Diarrhea Grogginess 28 more
How many evaluations
57
Tried for
Insomnia (59) Unrefreshing or poor sleep (3)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (16 evaluations)
Side effects
Drowsiness Blurry vision 13 more
How many evaluations
19
Tried for
Pain (46) Insomnia (4)
5 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 71
20s 558
30s 1,677
40s 3,202
50s 3,349
60s 1,591
70+ 253

Gender

Distribution of females vs. males

91% Females
9% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 833
20-29 years 1,117
30-39 years 1,309
40-49 years 1,029
50-59 years 361
60-69 years 37
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 246
Chronic Fatigue Syndrome (CFS) 835
Myalgic Encephalomyelitis (ME) 469
Neuroendocrine Immune Disorder 61
Post-Viral Fatigue Syndrome (PVFS) 142
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,093
Not Diagnosed 3,757

These charts show data from ME/CFS patients who have completed their condition history
Last updated: