Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome which may also be known as Myalgic Encephalomyelitis (ME) is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

What is it like to have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Type
Prescription Drug
How many have tried
369
Treatment name(s)

(Lyrica, Maxgalin, Provelyn)
Type
Prescription Drug
How many have tried
351
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
Type
Prescription Drug
How many have tried
203
Tried for
Pain (177) Muscle pain (70)
3 more
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Type
Prescription Drug
How many have tried
128
Tried for
Pain (122) Muscle pain (7)
3 more
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
126
Tried for
Insomnia (85) Pain (71)
6 more
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Type
Prescription Drug
How many have tried
108
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Type
Prescription Drug
How many have tried
90
Tried for
Anxious mood (67) Insomnia (16)
4 more
Treatment name(s)

(Ambien, Ambien CR, Edluar) 11 more
Type
Prescription Drug
How many have tried
67
Treatment name(s)

(Apo-Trazodone, Deprax, Desyrel) 8 more
Type
Prescription Drug
How many have tried
63
Tried for
Insomnia (45) Depressed mood (8)
4 more
Treatment name(s)

(APO-Cyclobenzaprine, Amrix, Fexmid) 3 more
Type
Prescription Drug
How many have tried
60
Tried for
Pain (47) Insomnia (4)
5 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (73 evaluations)
Side effects
Nausea Weight gain 106 more
How many evaluations
180
Treatment name(s)

(Lyrica, Maxgalin, Provelyn)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (91 evaluations)
Side effects
Weight gain Dizziness 147 more
How many evaluations
202
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
Perceived effectiveness
for Pain (83 evaluations)
Side effects
Constipation Headaches 49 more
How many evaluations
106
Tried for
Pain (177) Muscle pain (70)
3 more
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Perceived effectiveness
for Pain (43 evaluations)
Side effects
Constipation Dizziness 16 more
How many evaluations
53
Tried for
Pain (122) Muscle pain (7)
3 more
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Perceived effectiveness
for Insomnia (61 evaluations)
Side effects
Dry mouth Drowsiness 32 more
How many evaluations
79
Tried for
Insomnia (85) Pain (71)
6 more
Treatment name(s)

(APO-Gabapentin, DOM-Gabapentin, Epleptin) 7 more
Perceived effectiveness
for Pain (53 evaluations)
Side effects
Dizziness Weight gain 46 more
How many evaluations
70
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Perceived effectiveness
for Anxious mood (22 evaluations)
Side effects
Drowsy in a.m. Borderline Personality Disorder 14 more
How many evaluations
40
Tried for
Anxious mood (67) Insomnia (16)
4 more
Treatment name(s)

(Ambien, Ambien CR, Edluar) 11 more
Perceived effectiveness
for Insomnia (49 evaluations)
Side effects
Diarrhea Grogginess 28 more
How many evaluations
57
Treatment name(s)

(Apo-Trazodone, Deprax, Desyrel) 8 more
Perceived effectiveness
for Insomnia (22 evaluations)
Side effects
dizziness like jet lag, vagueness in head with increasing intensity. Dry mouth 7 more
How many evaluations
28
Tried for
Insomnia (45) Depressed mood (8)
4 more
Treatment name(s)

(APO-Cyclobenzaprine, Amrix, Fexmid) 3 more
Perceived effectiveness
for Pain (16 evaluations)
Side effects
Drowsiness Blurry vision 13 more
How many evaluations
19
Tried for
Pain (47) Insomnia (4)
5 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 67
20s 564
30s 1,669
40s 3,171
50s 3,327
60s 1,553
70+ 248

Gender

Distribution of females vs. males

91% Females
9% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 820
20-29 years 1,104
30-39 years 1,293
40-49 years 1,011
50-59 years 358
60-69 years 38
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 218
Chronic Fatigue Syndrome (CFS) 758
Myalgic Encephalomyelitis (ME) 423
Neuroendocrine Immune Disorder 56
Post-Viral Fatigue Syndrome (PVFS) 128
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,027
Not Diagnosed 3,752

These charts show data from ME/CFS patients who have completed their condition history
Last updated: