Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome which may also be known as Myalgic Encephalomyelitis (ME) is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
351
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
345
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
195
Tried for
Pain (172) Muscle pain (70)
3 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
126
Tried for
Insomnia (86) Pain (70)
6 more
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
125
Tried for
Pain (119) Muscle pain (6)
3 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
105
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
84
Tried for
Anxious mood (62) Insomnia (14)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Type
Prescription Drug
How many have tried
66
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
65
Tried for
Insomnia (47) Depressed mood (8)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
59
Tried for
Pain (46) Insomnia (4)
5 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (71 evaluations)
Side effects
Nausea Weight gain 104 more
How many evaluations
175
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (89 evaluations)
Side effects
Weight gain Dizziness 141 more
How many evaluations
187
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (79 evaluations)
Side effects
Constipation Itching 47 more
How many evaluations
99
Tried for
Pain (172) Muscle pain (70)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (61 evaluations)
Side effects
Dry mouth Drowsiness 33 more
How many evaluations
78
Tried for
Insomnia (86) Pain (70)
6 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (39 evaluations)
Side effects
Constipation Drowsiness 16 more
How many evaluations
45
Tried for
Pain (119) Muscle pain (6)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (52 evaluations)
Side effects
Dizziness Weight gain 46 more
How many evaluations
69
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (20 evaluations)
Side effects
Drowsy in a.m. Borderline Personality Disorder 13 more
How many evaluations
37
Tried for
Anxious mood (62) Insomnia (14)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Perceived effectiveness
for Insomnia (49 evaluations)
Side effects
Diarrhea Grogginess 28 more
How many evaluations
57
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (22 evaluations)
Side effects
dizziness like jet lag, vagueness in head with increasing intensity. Dry mouth 7 more
How many evaluations
28
Tried for
Insomnia (47) Depressed mood (8)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (16 evaluations)
Side effects
Drowsiness Blurry vision 13 more
How many evaluations
19
Tried for
Pain (46) Insomnia (4)
5 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 72
20s 561
30s 1,680
40s 3,175
50s 3,331
60s 1,578
70+ 250

Gender

Distribution of females vs. males

91% Females
9% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 828
20-29 years 1,110
30-39 years 1,300
40-49 years 1,014
50-59 years 359
60-69 years 38
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 228
Chronic Fatigue Syndrome (CFS) 797
Myalgic Encephalomyelitis (ME) 443
Neuroendocrine Immune Disorder 58
Post-Viral Fatigue Syndrome (PVFS) 135
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,058
Not Diagnosed 3,753

These charts show data from ME/CFS patients who have completed their condition history
Last updated: