Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome which may also be known as Myalgic Encephalomyelitis (ME) is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

What is it like to have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from ME/CFS patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?

Age Proportion # of patients
<20 69
20s 575
30s 1,676
40s 3,161
50s 3,283
60s 1,521
70+ 238


Distribution of females vs. males

91% Females
9% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 808
20-29 years 1,091
30-39 years 1,268
40-49 years 991
50-59 years 352
60-69 years 38
70+ years 6

Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 203
Chronic Fatigue Syndrome (CFS) 685
Myalgic Encephalomyelitis (ME) 387
Neuroendocrine Immune Disorder 54
Post-Viral Fatigue Syndrome (PVFS) 116
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,965
Not Diagnosed 3,742

These charts show data from ME/CFS patients who have completed their condition history
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