Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome which may also be known as Myalgic Encephalomyelitis (ME) is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

What is it like to have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from ME/CFS patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 66
20s 559
30s 1,637
40s 3,046
50s 3,185
60s 1,461
70+ 230

Gender

Distribution of females vs. males

91% Females
9% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 788
20-29 years 1,058
30-39 years 1,229
40-49 years 966
50-59 years 345
60-69 years 37
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 136
Chronic Fatigue Syndrome (CFS) 430
Myalgic Encephalomyelitis (ME) 219
Neuroendocrine Immune Disorder 39
Post-Viral Fatigue Syndrome (PVFS) 71
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,838
Not Diagnosed 3,740

These charts show data from ME/CFS patients who have completed their condition history
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