Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome which may also be known as Myalgic Encephalomyelitis (ME) is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

What is it like to have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Common symptoms How bad it is What people are taking for it
Zolpidem, Clonazepam, Trazodone
Modafinil, Amphetamine-Dextroamphetamine, Rest
Journal Writing, Amphetamine-Dextroamphetamine, Ginkgo Biloba
Carisoprodol, Tizanidine, Tramadol
Zolpidem, Amitriptyline, Trazodone
Rest, Bupropion, Duloxetine
Duloxetine, Bupropion, Sertraline
Tramadol, Hydrocodone-Acetaminophen, Pregabalin
Alprazolam, Clonazepam, Lorazepam
Tonsillectomy, Speech / Language Therapy, Honey
CT Angiography with contrast

What do patients take to treat Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Lyrica)

118

(Yentreve, Cymgen, Yelate, Cymbalta)

99

(Low Dose Naltrexone (LDN), ReVia)

18

(D-Amphetamine Salt Combo, Adderall, Amphetamine-dextroamphetamine ER, Amphetamine Salts)

14
10

(APO-Gabapentin, Gralise, PMS-Gabapentin, DOM-Gabapentin)

6

(PMS-Methylphenidate, Metadate CD, Ritalin, APO-Methylphenidate)

5

(Nuvigil)

5

(Durella, Tradorec XL, Ralivia, Dolzam)

5

(Psychosexual therapy, Psychiatrist and Psychologist, Integrative Counselling, Licensed Social Worker)

4

(Holland & Barrett Vitamin B12, Century 21 Vitamin B-12, SISU Vitamin B12, Betolvex)

4

(Medivitan)

4

(Ran-Citalo, Depramil, Citalec, Celexa)

2

(Fexmid, APO-Cyclobenzaprine, Tensodox, PMS-Cyclobenzaprine)

0
0

These charts show data from ME/CFS patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?

  • 10,897 patients have this condition
  • 31 new patients joined this month
  • 2,607 say ME/CFS is their primary condition

Age
Age Proportion # of patients
<20 74
20s 568
30s 1,658
40s 3,008
50s 3,059
60s 1,274
70+ 197

Gender

Distribution of females vs. males

91% Females
9% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 737
20-29 years 1,000
30-39 years 1,160
40-49 years 904
50-59 years 316
60-69 years 35
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 20
Chronic Fatigue Syndrome (CFS) 54
Myalgic Encephalomyelitis (ME) 42
Neuroendocrine Immune Disorder 9
Post-Viral Fatigue Syndrome (PVFS) 11
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5,569
Not Diagnosed 3,725

These charts show data from ME/CFS patients who have completed their condition history
Last updated: