What is Susac syndrome?
Susac's syndrome is a rare condition characterized by three main issues: impaired brain function (encephalopathy), blockage of the arteries that supply blood to the retina (branch retinal artery occlusion), and hearing loss.
How do members experience Susac syndrome?
Top 5 symptoms reported by people with Susac syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Susac syndrome*
Who has Susac syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 9 | |
| 40s | 8 | |
| 50s | 4 | |
| 60s | 5 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 12 | |
| Female | 17 |