Periodic Limb Movement Disorder

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Periodic Limb Movement Disorder?

Periodic limb movement disorder involves repetitive limb movements that occur mainly during the light stages of sleep. Movements primarily arise in the lower limbs which may interfere with restful sleep. It may be present with Restless Legs Syndrome.

What is it like to have Periodic Limb Movement Disorder?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Periodic Limb Movement Disorder and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Requip, Requip Depot, Requip LP) 2 more
Type
Prescription Drug
How many have tried
13
How many evaluations
7
Treatment name(s)

(Benedorm, GNC Melatonin, Kirkmann Melatonin) 19 more
Type
Supplement
How many have tried
10
How many evaluations
4
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Type
Prescription Drug
How many have tried
7
How many evaluations
2
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
5
How many evaluations
3
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Type
Prescription Drug
How many have tried
5
How many evaluations
4
Treatment name(s)

(Mirapex, Mirapex ER, Mirapexin) 6 more
Type
Prescription Drug
How many have tried
5
How many evaluations
3
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
Type
Prescription Drug
How many have tried
5
How many evaluations
0
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
Type
Prescription Drug
How many have tried
4
How many evaluations
0
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Type
Prescription Drug
How many have tried
4
How many evaluations
3
Treatment name(s)

(Alertec, Modavigil, Modiodal) 1 more
Type
Prescription Drug
How many have tried
4
How many evaluations
1
See all 89 treatments
Data from patients with Periodic Limb Movement Disorder, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Periodic Limb Movement Disorder

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Requip, Requip Depot, Requip LP) 2 more
How many have tried
13
Perceived effectiveness
Side effects
Muscle twitching (fasciculations) Nausea and vomiting
How many evaluations
7
Treatment name(s)

(Benedorm, GNC Melatonin, Kirkmann Melatonin) 19 more
How many have tried
10
Perceived effectiveness
Side effects
Daytime sleepiness Stomach pain
How many evaluations
4
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
How many have tried
7
Perceived effectiveness
Side effects
Impulsive behaviors Memory problems
How many evaluations
2
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
How many have tried
5
Perceived effectiveness
Side effects
Dry mouth Grogginess
How many evaluations
3
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
How many have tried
5
Perceived effectiveness
Side effects
Depression with suicidal thoughts Suicidal thoughts or urges 1 more
How many evaluations
4
Treatment name(s)

(Mirapex, Mirapex ER, Mirapexin) 6 more
How many have tried
5
Perceived effectiveness
Side effects
Chorea movements
How many evaluations
3
Treatment name(s)

(Conzip, Dolol, Dolzam) 23 more
How many have tried
5
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
How many have tried
4
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
How many have tried
4
Perceived effectiveness
Side effects
How many evaluations
3
Treatment name(s)

(Alertec, Modavigil, Modiodal) 1 more
How many have tried
4
Perceived effectiveness
Side effects
Nervousness
How many evaluations
1
See all 89 treatments
Data from patients with Periodic Limb Movement Disorder, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Periodic Limb Movement Disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 5
30s 30
40s 67
50s 65
60s 22
70+ 7

Gender

Distribution of females vs. males

83% Females
17% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 10
30-39 years 20
40-49 years 17
50-59 years 10
60-69 years 1
70+ years 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 78
Not Diagnosed 28

These charts show data from Periodic Limb Movement Disorder patients who have completed their condition history
Last updated: