What is Cowden Syndrome?

Cowden syndrome is characterized by multiple noncancerous, tumor-like growths (hamartomas) and an increased risk to certain benign and cancerous tumors, e.g. breast, thyroid, and uterine.

Do you have Cowden Syndrome? Join now to connect with patients like you!

What is it like to have Cowden Syndrome?

Common symptoms How bad it is What people are taking for it
Severity
Severe
Moderate
Mild
None
Nothing reported yet
Nothing reported yet
Nothing reported yet
Nothing reported yet
Nothing reported yet

Who has Cowden Syndrome at PatientsLikeMe?

<20 20s 30s 40s 50s 60s 70+
Current Age
Distribution of females vs. males
Gender
67% Females
33% Males
Age at first symptom
Age at first symptom # of patients Proportion
0-19 years 0
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0
Diagnosis status
Diagnosis status # of patients Proportion
Diagnosed 4

These charts show data from Cowden Syndrome patients who have completed their condition history

Let's build this page together! When you share what it's like to have Cowden Syndrome through your profile, those stories and data appear here too.

Got a question about living with Cowden Syndrome? Members in the forum might have the answers.