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Home > Conditions > Subacute Cutaneous Lupus Erythematosus Community

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What is it like to have Subacute Cutaneous Lupus Erythematosus?

Common symptoms	How bad it is	What people are taking for it
Severity Severe Moderate Mild None
Anxious mood	0 (0%) patients experienced severe severity 2 (13%) patients experienced moderate severity 5 (33%) patients experienced mild severity 8 (53%) patients experienced no severity	Alprazolam
Pain	1 (6%) patients experienced severe severity 6 (38%) patients experienced moderate severity 6 (38%) patients experienced mild severity 3 (19%) patients experienced no severity	Tramadol, Massage Therapy, Acupuncture
Insomnia	3 (20%) patients experienced severe severity 3 (20%) patients experienced moderate severity 3 (20%) patients experienced mild severity 6 (40%) patients experienced no severity	Amitriptyline
Fatigue	5 (29%) patients experienced severe severity 8 (47%) patients experienced moderate severity 2 (12%) patients experienced mild severity 2 (12%) patients experienced no severity	Nothing reported yet
Depressed mood	0 (0%) patients experienced severe severity 2 (14%) patients experienced moderate severity 8 (57%) patients experienced mild severity 4 (29%) patients experienced no severity	Buspirone, Duloxetine

What do patients take to treat Subacute Cutaneous Lupus Erythematosus and its symptoms?

Treatments reported by members	Perceived effectiveness	Overall rating of side effects	# of Evaluations
Hydroxychloroquine (Oxiklorin, Apo-hydroxyquine, Quensyl, Hydroxychlor)	0 (0%) experienced major perceived effectiveness 1 (100%) experienced moderate perceived effectiveness 0 (0%) experienced slight perceived effectiveness 0 (0%) experienced no perceived effectiveness 0 (0%) could not tell	0 (0%) experienced severe side effects 0 (0%) experienced moderate side effects 0 (0%) experienced mild side effects 1 (100%) experienced no side effects	1
Azathioprine (Azasan, Azapress, Imurel, Imuran)	1 (100%) experienced major perceived effectiveness 0 (0%) experienced moderate perceived effectiveness 0 (0%) experienced slight perceived effectiveness 0 (0%) experienced no perceived effectiveness 0 (0%) could not tell	0 (0%) experienced severe side effects 0 (0%) experienced moderate side effects 1 (100%) experienced mild side effects 0 (0%) experienced no side effects	1
Thalidomide	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0
Chloroquine	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0
Auranofin (Ridaura)	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0
Isotretinoin (Accutane, Roaccutane, Amnesteem)	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0

These charts show data from Subacute Cutaneous Lupus Erythematosus patients' latest treatment evaluations

Who has Subacute Cutaneous Lupus Erythematosus at PatientsLikeMe?

37 patients have this condition
1 New patient joined this month
22 say Subacute Cutaneous Lupus Erythematosus is their primary condition

<20	20s	30s	40s	50s	60s	70+
Current Age
0 patients	3 patients	11 patients	5 patients	13 patients	4 patients	0 patients

Distribution of females vs. males
Gender
89%	Females
11%	Males

Age at first symptom
Age at first symptom	# of patients	Proportion
0-19 years	2	2
20-29 years	5	5
30-39 years	9	9
40-49 years	5	5
50-59 years	2	2
60-69 years	0	0
70+ years	0	0

Diagnosis status
Diagnosis status	# of patients	Proportion
Diagnosed	29	29

These charts show data from Subacute Cutaneous Lupus Erythematosus patients who have completed their condition history

Where do I talk to patients with Subacute Cutaneous Lupus Erythematosus?

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Last updated: June 19, 2013