What is Rett Syndrome?

Rett syndrome, a neurodevelopmenal disorder that affects girls almost exclusively, is characterized by normal early growth and development followed by a slowing of development, distinctive hand movements, slowed brain and head growth, problems with walking, seizures and intellectual disability.

Do you have Rett Syndrome? Join now to connect with patients like you!

Who has Rett Syndrome at PatientsLikeMe?

<20 20-29 30-39 40-49 50-59 60-69 70+
Current Age
Distribution of females vs. males
Gender
50% Females
50% Males
Age at first symptom
Age at first symptom # of patients Proportion
0-19 yrs 2
20-29 yrs 0
30-39 yrs 0
40-49 yrs 0
50-59 yrs 0
60-69 yrs 0
70+ yrs 0
Diagnosis status
Diagnosis status # of patients Proportion
Diagnosed 2

These charts show data from Rett Syndrome patients who have completed their condition history