Alpha 1 Antitrypsin Deficiency

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What is Alpha 1 Antitrypsin Deficiency?

Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50.

What is it like to have Alpha 1 Antitrypsin Deficiency?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Alpha 1 Antitrypsin Deficiency and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Endocet, Magnacet, Oxycocet) 11 more
Type
Prescription Drug
How many have tried
2
How many evaluations
1
Treatment name(s)

(Effexor, Effexor XR, Novo-Venlafaxine XR) 9 more
Type
Prescription Drug
How many have tried
2
How many evaluations
1
Treatment name(s)

(APO-Salvent CFC Free, Albuterol Inhaler, Albuterol Nebulizer) 9 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)

(APO-Cyclobenzaprine, Amrix, Fexmid) 3 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Adapine, Deptran, Silenor) 2 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Type
Prescription Drug
How many have tried
1
How many evaluations
1
See all 22 treatments
Data from patients with Alpha 1 Antitrypsin Deficiency, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Alpha 1 Antitrypsin Deficiency

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Endocet, Magnacet, Oxycocet) 11 more
How many have tried
2
Perceived effectiveness
Side effects
Constipation
How many evaluations
1
Treatment name(s)

(Effexor, Effexor XR, Novo-Venlafaxine XR) 9 more
How many have tried
2
Perceived effectiveness
Side effects
Drowsiness
How many evaluations
1
Treatment name(s)

(APO-Salvent CFC Free, Albuterol Inhaler, Albuterol Nebulizer) 9 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
How many have tried
1
Perceived effectiveness
Side effects
Drowsiness
How many evaluations
1
Treatment name(s)
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Nuvigil)
How many have tried
1
Perceived effectiveness
Side effects
Jittery feeling
How many evaluations
1
Treatment name(s)

(APO-Cyclobenzaprine, Amrix, Fexmid) 3 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Adapine, Deptran, Silenor) 2 more
How many have tried
1
Perceived effectiveness
Side effects
Nightmares Weight gain
How many evaluations
1
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
1
See all 22 treatments
Data from patients with Alpha 1 Antitrypsin Deficiency, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Alpha 1 Antitrypsin Deficiency on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 12
30s 9
40s 22
50s 29
60s 21
70+ 2

Gender

Distribution of females vs. males

61% Females
39% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 12
30-39 years 11
40-49 years 6
50-59 years 6
60-69 years 2
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 57
Not Diagnosed 7

These charts show data from Alpha 1 Antitrypsin Deficiency patients who have completed their condition history
Last updated: