Alpha 1 Antitrypsin Deficiency

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What is Alpha 1 Antitrypsin Deficiency?

Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50.

Common symptoms reported by people with Alpha 1 Antitrypsin Deficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Alpha 1 Antitrypsin Deficiency

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Endocet, Magnacet, Oxycocet) 11 more
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
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Treatment name(s)

(Effexor, Effexor XR, Novo-Venlafaxine XR) 9 more
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
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Treatment name(s)

(APO-Salvent CFC Free, Albuterol Inhaler, Albuterol Nebulizer) 9 more
Type
Prescription Drug
How many have tried
1
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Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
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Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1) Pain (1)
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Treatment name(s)
Type
Prescription Drug
How many have tried
1
Check to add this treatment to your profile
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
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Treatment name(s)

(APO-Cyclobenzaprine, Amrix, Fexmid) 3 more
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Adapine, Deptran, Silenor) 2 more
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)

Data from patients with Alpha 1 Antitrypsin Deficiency, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Alpha 1 Antitrypsin Deficiency

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Endocet, Magnacet, Oxycocet) 11 more
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Constipation
How many evaluations
1
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Effexor, Effexor XR, Novo-Venlafaxine XR) 9 more
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Drowsiness
How many evaluations
1
Tried for
Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(APO-Salvent CFC Free, Albuterol Inhaler, Albuterol Nebulizer) 9 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Check to add this treatment to your profile
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Amineurin, Amitriptyline Troche, Anapsique) 10 more
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Drowsiness
How many evaluations
1
Tried for
Insomnia (1) Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Check to add this treatment to your profile
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
Jittery feeling
How many evaluations
1
Tried for
Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(APO-Cyclobenzaprine, Amrix, Fexmid) 3 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Adapine, Deptran, Silenor) 2 more
Perceived effectiveness
No evaluations
Side effects
Nightmares Weight gain
How many evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
How many evaluations
1
Tried for
Depressed mood (1)

Data from patients with Alpha 1 Antitrypsin Deficiency, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Alpha 1 Antitrypsin Deficiency on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 12
30s 9
40s 21
50s 30
60s 21
70+ 3

Gender

Distribution of females vs. males

62% Females
38% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 12
30-39 years 11
40-49 years 6
50-59 years 6
60-69 years 2
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 59
Not Diagnosed 7

These charts show data from Alpha 1 Antitrypsin Deficiency patients who have completed their condition history
Last updated: