Alpha 1 Antitrypsin Deficiency

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What is Alpha 1 Antitrypsin Deficiency?

Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50.

Common symptoms reported by people with Alpha 1 Antitrypsin Deficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Alpha 1 Antitrypsin Deficiency

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Percocet 5/325)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
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Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
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Treatment name(s)

(Albuterol Inhaler)
Type
Prescription Drug
How many have tried
1
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Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1) Pain (1)
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Treatment name(s)
Type
Prescription Drug
How many have tried
1
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Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Sinequan)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)

Data from patients with Alpha 1 Antitrypsin Deficiency, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Alpha 1 Antitrypsin Deficiency

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Percocet 5/325)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Constipation
How many evaluations
1
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Drowsiness
How many evaluations
1
Tried for
Depressed mood (2)
Check to add this treatment to your profile
Treatment name(s)

(Albuterol Inhaler)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Drowsiness
How many evaluations
1
Tried for
Insomnia (1) Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Check to add this treatment to your profile
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
Jittery feeling
How many evaluations
1
Tried for
Fatigue (1)
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Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Sinequan)
Perceived effectiveness
No evaluations
Side effects
Nightmares Weight gain
How many evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
How many evaluations
1
Tried for
Depressed mood (1)

Data from patients with Alpha 1 Antitrypsin Deficiency, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Alpha 1 Antitrypsin Deficiency on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 12
30s 9
40s 21
50s 31
60s 21
70+ 3

Gender

Distribution of females vs. males

62% Females
38% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 12
30-39 years 11
40-49 years 6
50-59 years 6
60-69 years 2
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 59
Not Diagnosed 8

These charts show data from Alpha 1 Antitrypsin Deficiency patients who have completed their condition history
Last updated: