Pheochromocytoma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Pheochromocytoma?

Pheochromocytoma is a rare tumor of the adrenal gland (triangle shape glands located on top of the kidneys). The tumor increases the hormones (epinephrine and norepinephrine) that regulate the heart rate, metabolism, and blood pressure. Some symptoms include: headaches, sweating,& heart pounding.

What is it like to have Pheochromocytoma?

Common symptoms How bad it is What people are taking for it
Diazepam
Gabapentin
Quetiapine
Nothing reported yet
Nothing reported yet

What do patients take to treat Pheochromocytoma and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Cardura, Cardura XL, Cadex)

0

(Cenyl, Pranolol, Bedranol, Pur-Bloka)

0
0
0

These charts show data from Pheochromocytoma patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Pheochromocytoma on PatientsLikeMe?

  • 14 patients have this condition
  • 0 new patients joined this month
  • 8 say Pheochromocytoma is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 1
40s 5
50s 5
60s 0
70+ 0

Gender

Distribution of females vs. males

55% Females
45% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 0
40-49 years 2
50-59 years 0
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 1

These charts show data from Pheochromocytoma patients who have completed their condition history
Last updated: