Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
1,042
Tried for
Multiple Sclerosis (1040) Stiffness/Spasticity (6)
2 more
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
713
Tried for
Multiple Sclerosis (627) Stiffness/Spasticity (275)
2 more
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Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
664
Tried for
Multiple Sclerosis (657) Stiffness/Spasticity (7)
2 more
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
600
Tried for
Multiple Sclerosis (597) Stiffness/Spasticity (4)
1 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
599
Tried for
Multiple Sclerosis (599)
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
472
Tried for
Multiple Sclerosis (472)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
470
Tried for
Multiple Sclerosis (469) Stiffness/Spasticity (8)
1 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
354
Tried for
Multiple Sclerosis (354) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
297
Tried for
Multiple Sclerosis (260) Fatigue (128)
2 more
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Treatment name(s)

(Betaseron)
Type
Prescription Drug
How many have tried
214
Tried for
Multiple Sclerosis (214) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (557 evaluations)
Side effects
Injection site reaction Injection site pain 152 more
How many evaluations
561
Tried for
Multiple Sclerosis (1040) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (169 evaluations)
Side effects
Drowsiness Dizziness 76 more
How many evaluations
260
Tried for
Multiple Sclerosis (627) Stiffness/Spasticity (275)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (305 evaluations)
Side effects
Insomnia Dizziness 82 more
How many evaluations
423
Tried for
Multiple Sclerosis (657) Stiffness/Spasticity (7)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (414 evaluations)
Side effects
Headaches Fatigue 110 more
How many evaluations
418
Tried for
Multiple Sclerosis (597) Stiffness/Spasticity (4)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (367 evaluations)
Side effects
Headaches Elevated liver enzymes 151 more
How many evaluations
371
Tried for
Multiple Sclerosis (599)
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (311 evaluations)
Side effects
Flushing Facial flushing 139 more
How many evaluations
309
Tried for
Multiple Sclerosis (472)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (258 evaluations)
Side effects
Flu like symptoms Headaches 129 more
How many evaluations
260
Tried for
Multiple Sclerosis (469) Stiffness/Spasticity (8)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (230 evaluations)
Side effects
Flu like symptoms Fever/chills 114 more
How many evaluations
230
Tried for
Multiple Sclerosis (354) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (66 evaluations)
Side effects
Jittery feeling Anxious mood 36 more
How many evaluations
116
Tried for
Multiple Sclerosis (260) Fatigue (128)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Betaseron)
Perceived effectiveness
for Multiple Sclerosis (127 evaluations)
Side effects
Flu like symptoms Injection site reaction 62 more
How many evaluations
127
Tried for
Multiple Sclerosis (214) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 33
20s 1,227
30s 5,595
40s 9,889
50s 9,371
60s 4,158
70+ 582

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,199
20-29 years 7,474
30-39 years 7,796
40-49 years 4,693
50-59 years 1,127
60-69 years 94
70+ years 12

Types
Condition Types Proportion # of patients
Primary Progressive 2,317
Progressive Relapsing 1,145
Relapsing-Remitting 21,287
Secondary Progressive 3,644
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26,017
Not Diagnosed 1,097

These charts show data from MS patients who have completed their condition history
Last updated: