Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

What is it like to have Multiple Sclerosis?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Multiple Sclerosis and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from MS patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 33
20s 1,198
30s 5,332
40s 9,215
50s 8,585
60s 3,749
70+ 525

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,134
20-29 years 7,315
30-39 years 7,575
40-49 years 4,534
50-59 years 1,082
60-69 years 90
70+ years 12

Types
Condition Types Proportion # of patients
Primary Progressive 2,161
Progressive Relapsing 1,020
Relapsing-Remitting 19,920
Secondary Progressive 3,417
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25,320
Not Diagnosed 1,062

These charts show data from MS patients who have completed their condition history
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