Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

What is it like to have Multiple Sclerosis?

Common symptoms
How bad it is
What people are taking for it

What do patients take to treat Multiple Sclerosis and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from MS patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?

  • 34,223patients have this condition
  • 305new patients joined this month
  • 33,590say MS is their primary condition

Age
Age Proportion # of patients
<20 31
20s 1,193
30s 5,203
40s 8,671
50s 7,984
60s 3,365
70+ 468

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,072
20-29 years 7,128
30-39 years 7,417
40-49 years 4,423
50-59 years 1,059
60-69 years 88
70+ years 11

Types
Condition Types Proportion # of patients
Primary Progressive 1,991
Progressive Relapsing 945
Relapsing-Remitting 18,884
Secondary Progressive 3,189
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 24,757
Not Diagnosed 1,041

These charts show data from MS patients who have completed their condition history
Last updated: