Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

Common symptoms reported by people with Multiple Sclerosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
1,014
Tried for
Multiple Sclerosis (1012) Stiffness/Spasticity (6)
2 more
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Treatment name(s)

(Mylan Baclofen)
Type
Prescription Drug
How many have tried
698
Tried for
Multiple Sclerosis (614) Stiffness/Spasticity (270)
2 more
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Treatment name(s)

(Ampyra)
Type
Prescription Drug
How many have tried
639
Tried for
Multiple Sclerosis (633) Stiffness/Spasticity (6)
2 more
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Treatment name(s)

(Gilenya)
Type
Prescription Drug
How many have tried
599
Tried for
Multiple Sclerosis (599)
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Treatment name(s)

(Tysabri)
Type
Prescription Drug
How many have tried
588
Tried for
Multiple Sclerosis (586) Stiffness/Spasticity (4)
1 more
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Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
479
Tried for
Multiple Sclerosis (479)
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Treatment name(s)

(Rebif)
Type
Prescription Drug
How many have tried
454
Tried for
Multiple Sclerosis (453) Stiffness/Spasticity (6)
1 more
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Treatment name(s)

(Avonex)
Type
Prescription Drug
How many have tried
338
Tried for
Multiple Sclerosis (338) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
285
Tried for
Multiple Sclerosis (250) Fatigue (122)
2 more
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Treatment name(s)

(Betaseron)
Type
Prescription Drug
How many have tried
203
Tried for
Multiple Sclerosis (203) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (544 evaluations)
Side effects
Injection site reaction Injection site pain 154 more
How many evaluations
548
Tried for
Multiple Sclerosis (1012) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Mylan Baclofen)
Perceived effectiveness
for Multiple Sclerosis (169 evaluations)
Side effects
Drowsiness Tiredness 76 more
How many evaluations
252
Tried for
Multiple Sclerosis (614) Stiffness/Spasticity (270)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Ampyra)
Perceived effectiveness
for Multiple Sclerosis (292 evaluations)
Side effects
Insomnia Dizziness 81 more
How many evaluations
403
Tried for
Multiple Sclerosis (633) Stiffness/Spasticity (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Gilenya)
Perceived effectiveness
for Multiple Sclerosis (369 evaluations)
Side effects
Headaches Elevated liver enzymes 151 more
How many evaluations
373
Tried for
Multiple Sclerosis (599)
Check to add this treatment to your profile
Treatment name(s)

(Tysabri)
Perceived effectiveness
for Multiple Sclerosis (412 evaluations)
Side effects
Headaches Fatigue 107 more
How many evaluations
416
Tried for
Multiple Sclerosis (586) Stiffness/Spasticity (4)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (315 evaluations)
Side effects
Flushing Facial flushing 141 more
How many evaluations
313
Tried for
Multiple Sclerosis (479)
Check to add this treatment to your profile
Treatment name(s)

(Rebif)
Perceived effectiveness
for Multiple Sclerosis (246 evaluations)
Side effects
Flu like symptoms Headaches 125 more
How many evaluations
248
Tried for
Multiple Sclerosis (453) Stiffness/Spasticity (6)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Avonex)
Perceived effectiveness
for Multiple Sclerosis (223 evaluations)
Side effects
Flu like symptoms Fever/chills 109 more
How many evaluations
223
Tried for
Multiple Sclerosis (338) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Provigil)
Perceived effectiveness
for Multiple Sclerosis (66 evaluations)
Side effects
Jittery feeling Anxious mood 36 more
How many evaluations
116
Tried for
Multiple Sclerosis (250) Fatigue (122)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Betaseron)
Perceived effectiveness
for Multiple Sclerosis (121 evaluations)
Side effects
Flu like symptoms Injection site reaction 56 more
How many evaluations
121
Tried for
Multiple Sclerosis (203) Fatigue (1)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 33
20s 1,216
30s 5,600
40s 9,898
50s 9,399
60s 4,177
70+ 592

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,201
20-29 years 7,483
30-39 years 7,803
40-49 years 4,697
50-59 years 1,128
60-69 years 94
70+ years 12

Types
Condition Types Proportion # of patients
Primary Progressive 2,320
Progressive Relapsing 1,146
Relapsing-Remitting 21,329
Secondary Progressive 3,649
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26,037
Not Diagnosed 1,100

These charts show data from MS patients who have completed their condition history
Last updated: