Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

What is it like to have Multiple Sclerosis?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Multiple Sclerosis and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
1,077
Tried for
Multiple Sclerosis (1075) Stiffness/Spasticity (7)
2 more
Treatment name(s)

(DOM-Baclofen, Gabalon, Kemstro) 5 more
Type
Prescription Drug
How many have tried
742
Tried for
Multiple Sclerosis (651) Stiffness/Spasticity (288)
2 more
Treatment name(s)

(Ampyra, Fampyra)
Type
Prescription Drug
How many have tried
683
Tried for
Multiple Sclerosis (675) Stiffness/Spasticity (7)
2 more
Treatment name(s)

(Antegren, Tysabri)
Type
Prescription Drug
How many have tried
618
Tried for
Multiple Sclerosis (614) Stiffness/Spasticity (4)
1 more
Treatment name(s)

(Gilenya, MS Phase 3 Fingolimod FREEDOMS, MS Phase 3 Fingolimod TRANSFORMS) 1 more
Type
Prescription Drug
How many have tried
590
Tried for
Multiple Sclerosis (590)
Treatment name(s)

(Rebif, Rebif Rebidose)
Type
Prescription Drug
How many have tried
497
Tried for
Multiple Sclerosis (495) Stiffness/Spasticity (10)
1 more
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
462
Tried for
Multiple Sclerosis (462)
Treatment name(s)

(Avonex, Avonex Pen, Avonex Prefilled Syringe)
Type
Prescription Drug
How many have tried
382
Tried for
Multiple Sclerosis (382) Fatigue (1)
Treatment name(s)

(Alertec, Modavigil, Modiodal) 1 more
Type
Prescription Drug
How many have tried
308
Tried for
Multiple Sclerosis (268) Fatigue (131)
2 more
Treatment name(s)

(Betaferon, Betaseron, Extavia) 1 more
Type
Prescription Drug
How many have tried
226
Tried for
Multiple Sclerosis (226) Fatigue (2)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Multiple Sclerosis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Treatment name(s)

(Copaxone)
Perceived effectiveness
for Multiple Sclerosis (579 evaluations)
Side effects
Injection site reaction Injection site itching 154 more
How many evaluations
583
Tried for
Multiple Sclerosis (1075) Stiffness/Spasticity (7)
2 more
Treatment name(s)

(DOM-Baclofen, Gabalon, Kemstro) 5 more
Perceived effectiveness
for Multiple Sclerosis (168 evaluations)
Side effects
Drowsiness Fatigue 77 more
How many evaluations
271
Tried for
Multiple Sclerosis (651) Stiffness/Spasticity (288)
2 more
Treatment name(s)

(Ampyra, Fampyra)
Perceived effectiveness
for Multiple Sclerosis (308 evaluations)
Side effects
Insomnia Dizziness 82 more
How many evaluations
436
Tried for
Multiple Sclerosis (675) Stiffness/Spasticity (7)
2 more
Treatment name(s)

(Antegren, Tysabri)
Perceived effectiveness
for Multiple Sclerosis (414 evaluations)
Side effects
Headaches Fatigue 110 more
How many evaluations
420
Tried for
Multiple Sclerosis (614) Stiffness/Spasticity (4)
1 more
Treatment name(s)

(Gilenya, MS Phase 3 Fingolimod FREEDOMS, MS Phase 3 Fingolimod TRANSFORMS) 1 more
Perceived effectiveness
for Multiple Sclerosis (357 evaluations)
Side effects
Headaches Fatigue 148 more
How many evaluations
361
Tried for
Multiple Sclerosis (590)
Treatment name(s)

(Rebif, Rebif Rebidose)
Perceived effectiveness
for Multiple Sclerosis (274 evaluations)
Side effects
Flu like symptoms Headaches 131 more
How many evaluations
276
Tried for
Multiple Sclerosis (495) Stiffness/Spasticity (10)
1 more
Treatment name(s)

(Tecfidera)
Perceived effectiveness
for Multiple Sclerosis (301 evaluations)
Side effects
Flushing Facial flushing 135 more
How many evaluations
299
Tried for
Multiple Sclerosis (462)
Treatment name(s)

(Avonex, Avonex Pen, Avonex Prefilled Syringe)
Perceived effectiveness
for Multiple Sclerosis (242 evaluations)
Side effects
Flu like symptoms Fever/chills 113 more
How many evaluations
242
Tried for
Multiple Sclerosis (382) Fatigue (1)
Treatment name(s)

(Alertec, Modavigil, Modiodal) 1 more
Perceived effectiveness
for Multiple Sclerosis (68 evaluations)
Side effects
Jittery feeling Anxious mood 38 more
How many evaluations
120
Tried for
Multiple Sclerosis (268) Fatigue (131)
2 more
Treatment name(s)

(Betaferon, Betaseron, Extavia) 1 more
Perceived effectiveness
for Multiple Sclerosis (135 evaluations)
Side effects
Flu like symptoms Injection site reaction 63 more
How many evaluations
135
Tried for
Multiple Sclerosis (226) Fatigue (2)

Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 32
20s 1,222
30s 5,594
40s 9,858
50s 9,270
60s 4,078
70+ 570

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,186
20-29 years 7,452
30-39 years 7,753
40-49 years 4,665
50-59 years 1,124
60-69 years 95
70+ years 12

Types
Condition Types Proportion # of patients
Primary Progressive 2,300
Progressive Relapsing 1,132
Relapsing-Remitting 21,132
Secondary Progressive 3,627
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25,913
Not Diagnosed 1,092

These charts show data from MS patients who have completed their condition history
Last updated: