Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

What is it like to have Multiple Sclerosis?

Common symptoms How bad it is What people are taking for it
Modafinil, Donepezil, Ginkgo Biloba
Naps, Armodafinil, Modafinil
Amantadine, Handicap/Disability Parking Permit, Modafinil
Tizanidine, Walking Stick/Cane, Baclofen
Gabapentin, Ibuprofen, Hydrocodone-Acetaminophen
Bupropion, Duloxetine, Fluoxetine
Fluoxetine, Escitalopram, Lamotrigine
Oxybutynin, Tolterodine, Solifenacin
Polyethylene Glycol 3350, Stool Softener, Fiber supplement
Amitriptyline, Zolpidem, Trazodone
Listen to Music, Sertraline, Citalopram
Sildenafil, Tadalafil, Vardenafil
Alprazolam, Clonazepam, Lorazepam

What do patients take to treat Multiple Sclerosis and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Copaxone)

1606

(Avonex Pen, Avonex Prefilled Syringe, Avonex)

885

(Rebif Rebidose, Rebif)

834

(Antegren, Tysabri)

655

(Uribeta, Extavia, Betaferon, Betaseron)

456

(Miorel, Gabalon, Mylan Baclofen, Kemstro)

261

(MS Phase 3 Fingolimod TRANSFORMS, Gilenya, MS Phase 3 Fingolimod FREEDOMS, MS Phase 3 Study Fingolimod FREEDOMS II)

247
206

(Wockhardt Methylprednisolone, Urbason solubile, Advantan, Medrol)

186

(Low Dose Naltrexone (LDN), ReVia)

181

(Alertec, Modavigil, Modiodal, Provigil)

120

(Tecfidera)

115

(Pulmison, Pronizon, Deltasone, Encorton)

81

(Holistic Vitamin D, Rexall Vitamin D, Genestra D-Mulsion 1000, Webber Vitamin D)

71

(Novantrone)

58

These charts show data from MS patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?

  • 33,437 patients have this condition
  • 231 new patients joined this month
  • 32,818 say MS is their primary condition

Age
Age Proportion # of patients
<20 35
20s 1,250
30s 5,234
40s 8,521
50s 7,578
60s 3,101
70+ 407

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,031
20-29 years 7,016
30-39 years 7,278
40-49 years 4,323
50-59 years 1,034
60-69 years 82
70+ years 10

Types
Condition Types Proportion # of patients
Primary Progressive 1,937
Progressive Relapsing 895
Relapsing-Remitting 18,384
Secondary Progressive 3,078
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 24,301
Not Diagnosed 1,018

These charts show data from MS patients who have completed their condition history
Last updated: