Multiple Sclerosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Multiple Sclerosis?

Multiple sclerosis (MS) is an autoimmune disorder characterized by destruction of myelin in the central nervous system. MS symptoms may include visual loss, extra-ocular movement disorders, paresthesias, loss of sensation, weakness, dysarthria, spasticity, ataxia, and bladder dysfunction.

What is it like to have Multiple Sclerosis?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Multiple Sclerosis and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Copaxone)
Type
Prescription Drug
How many have tried
1,094
How many evaluations
589
Treatment name(s)

(DOM-Baclofen, Gabalon, Kemstro) 5 more
Type
Prescription Drug
How many have tried
762
How many evaluations
281
Treatment name(s)

(Ampyra, Fampyra)
Type
Prescription Drug
How many have tried
677
How many evaluations
418
Treatment name(s)

(Antegren, Tysabri)
Type
Prescription Drug
How many have tried
636
How many evaluations
433
Treatment name(s)

(Gilenya, MS Phase 3 Fingolimod FREEDOMS, MS Phase 3 Fingolimod TRANSFORMS) 1 more
Type
Prescription Drug
How many have tried
575
How many evaluations
352
Treatment name(s)

(Rebif, Rebif Rebidose)
Type
Prescription Drug
How many have tried
522
How many evaluations
290
Treatment name(s)

(Tecfidera)
Type
Prescription Drug
How many have tried
432
How many evaluations
282
Treatment name(s)

(Avonex, Avonex Pen, Avonex Prefilled Syringe)
Type
Prescription Drug
How many have tried
395
How many evaluations
251
Treatment name(s)

(Alertec, Modavigil, Modiodal) 1 more
Type
Prescription Drug
How many have tried
319
How many evaluations
125
Treatment name(s)

(Betaferon, Betaseron, Extavia) 1 more
Type
Prescription Drug
How many have tried
229
How many evaluations
154
See all 710 treatments
Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Multiple Sclerosis

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Copaxone)
How many have tried
1094
Perceived effectiveness
Side effects
Injection site reaction Injection site itching 156 more
How many evaluations
590
Treatment name(s)

(DOM-Baclofen, Gabalon, Kemstro) 5 more
How many have tried
762
Perceived effectiveness
Side effects
Drowsiness Fatigue 78 more
How many evaluations
281
Treatment name(s)

(Ampyra, Fampyra)
How many have tried
677
Perceived effectiveness
Side effects
Insomnia Dizziness 78 more
How many evaluations
418
Treatment name(s)

(Antegren, Tysabri)
How many have tried
636
Perceived effectiveness
Side effects
Headaches Fatigue 110 more
How many evaluations
433
Treatment name(s)

(Gilenya, MS Phase 3 Fingolimod FREEDOMS, MS Phase 3 Fingolimod TRANSFORMS) 1 more
How many have tried
575
Perceived effectiveness
Side effects
Headaches Fatigue 150 more
How many evaluations
352
Treatment name(s)

(Rebif, Rebif Rebidose)
How many have tried
522
Perceived effectiveness
Side effects
Flu like symptoms Headaches 132 more
How many evaluations
290
Treatment name(s)

(Tecfidera)
How many have tried
432
Perceived effectiveness
Side effects
Flushing Facial flushing 130 more
How many evaluations
283
Treatment name(s)

(Avonex, Avonex Pen, Avonex Prefilled Syringe)
How many have tried
395
Perceived effectiveness
Side effects
Flu like symptoms Fever/chills 114 more
How many evaluations
251
Treatment name(s)

(Alertec, Modavigil, Modiodal) 1 more
How many have tried
319
Perceived effectiveness
Side effects
Jittery feeling Anxious mood 40 more
How many evaluations
125
Treatment name(s)

(Betaferon, Betaseron, Extavia) 1 more
How many have tried
229
Perceived effectiveness
Side effects
Flu like symptoms Injection site reaction 68 more
How many evaluations
154
See all 710 treatments
Data from patients with Multiple Sclerosis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Multiple Sclerosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 32
20s 1,222
30s 5,515
40s 9,620
50s 9,012
60s 3,924
70+ 553

Gender

Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2,161
20-29 years 7,390
30-39 years 7,673
40-49 years 4,617
50-59 years 1,099
60-69 years 92
70+ years 12

Types
Condition Types Proportion # of patients
Primary Progressive 2,249
Progressive Relapsing 1,089
Relapsing-Remitting 20,701
Secondary Progressive 3,556
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25,653
Not Diagnosed 1,083

These charts show data from MS patients who have completed their condition history
Last updated: