PatientsLikeMe ™

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		Username, Name	Title	About Me	Contact
		steelgraham Graham Steel	Patient Advocate	Graham has several years experience of obtaining and sharing information between researchers and patients - and now Journals. The patient as always, remains at the forefront - always will.
		Sandra Sandra Donkervoort	Genetic Counselor	Hi there! I am a genetic counselor and I work with Dr. Teepu Siddique at Northwestern University in Chicago. This is going to be my first winter in Chicago and I must say that I’m a little nervous! Anyway, I work in our ALS/MND clinics on Wednesdays and Thursday afternoons. I am usually in our lab and involved in the research at the Neuromuscular Disorders Program. Our main research is focused on identifying genes associated with the development of ALS, both sporadic and familial type. (www.neurogenetics.northwestern.edu).
		can u help? Stuart Millheiser
		KarenFelzer Karen Felzer	daughter of PALS	My dad was diagnosed with ALS in August 2007 at the age of 62. I am an only child and very close to both of my parents, who are both absolutely incredible. My dad has kept up a positive attitude and a determination to enjoy every minute with his family and friends. My husband's family has also been so helpful and supportive. In January I joined with Humberto-From-Brazil to run a patient-lead effort to research lithium and ALS (http://alslithium.atspace.com) . Our project is now in official collaboration with PLM. I also work as a geophysicist and as a mom to baby Emmet, born on Nov. 4.
		julienvet julien poublon	Veterinarian
		Skyraider_MS Bob		Hi, I am from your sister site PD and would like to share some helpful information that is applicable to all military and government workers. I have several projects going with the VA and the outcome may help us all PD , MS and ALS. There is a lot of government research into chemicals and toxins that can affect nerves. www.parkinsonsaction.org/Department-of-Defense-Parkinson-Research.html is a good place to look for info. It may say PD but it also applies to MS and ALS. There are other sites like www.va.gov to find information. I will help anyone file a va claim.
		cokercreek7 Terri Coker	relative to a patient
		xjlibod Jod Dell	Researcher
		ActiveLearner Sheri Putnam	Educator
		mcq Beatriz Cristina
		Pamela D. Wilson Pamela Dombrowksi-Wilson	The Care Navigator	Pamela D. Wilson is The Care Navigator, helping families and individuals to navigate healthcare and aging issues and to reduce stress resulting from the necessity to make decisions that are emotional and uncertain. My interest in joining this forum is to help my clients by learning from individuals in similar healthcare situations. www.thecarenavigator.com
		dsfan Dongsheng Fan	Dr.	www.chinaals.com
		gelflinggrl74 teena pena		i am a 33 year old mother of 2 my daughter is 8 going 0n 14 and my son is 2 and will be 3 in may. In October of 2007 i went blind in my left eye and numb on the same side had an mri and was told i had probable MS. I went to see a neuro and he did some other tests and basically said the same and told me to come back. I am unable to get insurance until may so I am not currently on any meds.The feeling eventually came back but left that side weak, but i am still partially blind,so as of right now im a stay at home mom that doesnt drive and it has taken some getting used.So any feedback is cool.
		Iverson3 Andrew Miller
		mrn217 miranda necochea	grandaughter of a parkinson's patient	My name is miranda.
		afriendoflisa Barb Damon
		Praveen Praveen Kumar	Researcher
		oldersister Lisa bohm	sister	Hi there. I just found out yesterday that my brother is HIV positive. I'm really just trying to find out how to help him. Don't have any experience with this. If anybody would like to send me pointers, I sure would appreciate it. I love my brother so much. I cannot lose him, not now. When I have more to share, I will do so. Please, help if you can!
		Zwirtes RF	MD
		BOBBY1 ROBERT CURTO	FRIEND

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