PatientsLikeMe : ALS/Motor Neuron Disease Community

Caregiver	My PALS	About Me
CRF	katrina008	wife has ALS since 2008, but still works (office job) & drives... October 2009, stopped driving & works from home only
K.K.		My name is Dani and my mother was dx with ALS in April 2008. I am the youngest of three girls and I have four children of my own. I am very close to my parents and this is been very difficult on my entire family.
Coffee	Lucky Tex	I live in Spring, Texas with my husband. He was diagnosed with ALS on November 14, 2007 - the day after our 45th wedding anniversary. He had been having symptoms since January, 2005. His whole attitude about having ALS and life in general is amazing. We have one son, Scott, who lives nearby and is a great help in caring for his Papa. We have great friends and a wacky sense of humor to help us through this. We also have one puppy that keeps us all on track.
chinagirl		I am the wife and primary caregiver of Ray, PALS diagnosed in May 2008. Since then, the disease has progressed rapidly: cane in May, walker and transfer chair in June, full-time power chair in July. Already his voce has softened and slowed and he is frequently short-of-breath, he tires easily, is beginning to have some difficulty swallowing and tremors have moved into his arms and hands and he has lost most all arm and hand strength. Despite all, he remains positive, peaceful and a joy to be with and I am blessed.
tryinghard
Kari
onamission
Jagrn		My name is Julie. I'm 44 yrs old. My Dad was diagnosed with ALS 1/13/09. I am devastated by this news. We were told May 2008 there was a high suspicion this could be ALS. I've cried everyday since then. I am an RN, and as an agency nurse, have taken care of an ALS patient in his home, and have witnessed first hand the cruelty of this disease and the challenges it imposes on the patient, family and caregivers. I never imagined ALS would hit so close to home but I refuse to ask, "why". I am a caregiver to my Dad, and I commit to help find a cure for this dreadful disease. NEVER GIVE UP
Joy4cac		I was the caregiver for my husband Charlie until his death April 15, 2009. His first symptom was July 2007 but he wasn't diagnosed until January 2009. He died of respiratory failure and muscle weakness due to ALS. He fought a courageous battle. My thoughts and prayers remain with all patients and caregivers. As I read comments on this site I realize that all of you are fighting a courageous battle. Some day there will be a cure for this relentless disease. Never give up!
Aleta	cajuntexusa	A picture is worth a thousand words.
muratbay		My name's Murat Bayramoglu, living in Istanbul. My brother - has ALS since 2005. Married and has 3 lovely children.
josh11morgan		My mother Elaine Morgan passed on March 23rd, 2009 in Keller, Texas at my oldest sister's home. Some family members have told me that her passing was a blessing, and that has been a really hard thing to grasp. How can anybody's death be a blessing? Yes my mother didn't have to suffer through all of the progression of ALS, but she was tormented by it. I was geared up for a fight, and all I got was a sucker punch. All that's left is guilt, sorrow, and regrets. The doctors, and even people on this site all talk about at least having time to say your goodbyes. My advice, ALS is unpredictable.
kmllove	tracylac	Hello, My name is Karen. In the picture I am on the left and my sister Tracy, on the right. I Help my sister who was diagnosed with ALS October of 07. We are best friends. We spend ALL of our time together. We love the outdoors. We like to camp. We also love to shop.
pckc
Thee General		Lee and I met in 2006 and in 2007 he was DX'd with ALS so we are living our lives with this disease and don't plan on giving in. I'm here to learn on how to cope with it and perhaps be of some help to others. Everyday there is something new and we have to adapt in different ways. I'm a active person and enjoy being outdoors and taking care of our horses. This year he has not been able to ride but still enjoys being around them. My prayers are with everyone one of you.
Auburn mom		My husband was War Eagle 1. He passed away on July 11, 2009. I did not have his password so I was unable to update his profile. Please encourage others to join the site so we can track this horrible disease. There is very little statistical data regarding ALS. Even most death certificates state pneumonia, fall, etc. I am not trying to be depressing, I am trying to encourage everyone through information. If there is more awareness of this devastating disease, possibly a cure will be found soon. Please attend ALS Association meetings and encourage people to register with the ALS registry.
SavoringLife
cmw5682		My mom was DX'd with ALS March of 2009 after 2 years of testing and many doctors being totally stumped. Mom is my best friend and my 19 month old son adores her, as well as almost everyone else who has had the pleasure of meeting her. All we can do for now is be happy and cherish every moment we still have, although I'd be lying if I said I never let things get me down!
aston	Chris S	My spouse has ALS and we have a 2 year old son. we are making the best of what we have to live with. our son is a on going smile for his father evey Day. I love both of them. here is a web site that will tell you more about are family. I thank god that we both have great familys that will so eveything they can for us http://www.christopherstonefund.org/
daric714		I'm 54 yrs. old Currently unemployed. My company closed and as I was looking for work my mother kept getting worse & worse. I'm a single parent of 4 terrific kids. And I'm not good talking about myself.

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