PatientsLikeMe is happy to welcome the many caregivers that help our patients manage their diseases and better their lives.
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birdy212 | I am a carer to my husband Ian who was diagnosed with MSA in aug 2006. In december 2006 he was forced to retire from work. He is now in a wheelchair.An update on Ian is that he now has a peg line in and is mostly confined to bed now. |
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girl_smiley | My name is Valerie. I am Caregiver for my husband David who has Multiple System Atrophy with Orthostatic Hypotension. We have been married for 20 years now, and have 5 wonderful children. I currently work at UTEX Corporation in Weimar 50 hours a week to support medical costs for our family. David is currently receiving SS benifits, but has to wait 5 more months for his Medicare Insurance to kick in. It has been a tough road, but we take 1 day at a time. At least my work is 1 mile away so I can stop in and check on him during the day, and our high school daughter does the same. |
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medical girl |
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david100 |
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keepthefaith | I am the wife of a chronically ill spouse and a mother to two teenagers. I am trying to keep the family together through this rough time in our lives. I am trying to teach my husband not to focus on the past but enjoy each day and only think about "today" and not worry about tomorrow. This is a very difficult task. |
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Sissy2 |
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psulioness | I am a caregiver. My husband diagnosed with opca in 1998 and has progressed to MSA. We have 2 sons 21yr old and 15 yr old. I am a RN .Kevin is a forester. He no longer works in woods but maintains his own business with help of his employees. He is eventually going to sell the business but is having great difficulty losing something else. He suffers with marked depression and anxiety that has been resistant to treatment. sensitivity to even low doses of meds. Each day brings new challenges to us all. Glad to join the group. Leave message if you like .Nice to know we are not alone. thanks. |
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brazier |
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Bea's Aye |
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Parrot Lover | I have been Joy's nurse since September 12, 2008. I had never known anything about her disease until she became my patient. Everyday is a learning experience with her and my understanding has grown where her disease process is concerned. I found this site because she and I wanted to reach out to other patients who fight this battle too. We want to apologize for being slow to set everything up. Joy is not able to communicate with me verbally well, so it takes us a while to come up with what she wants said. It is very important that the words on this blog are her's and not mine. |
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lphjlh | My husband of 42+ years has been diagnosed with Shy-Drager Syndrome. I am seeking info from patients or caregivers who can share the progress of the disease. We have 3 adult children and 11 grandchildren. My husband started experiencing mild Orthostatic Hypotension a couple of years ago. It became increasingly worse & was coupled with increasing & constant neck/upper back aches. After multiple visits to the Dr., he was admitted to the hospital where he was given & passed every kind of test possible. He was finally diagnosed last month. Until now he has been in excellent health. |
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VirginiaElizabeth |
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finis08 |
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