PatientsLikeMe : Community

Caregiver	My patient	About Me
momofson	Sean The Caper	I am a 62 year old mom of 4/spent much of my time at home caring for my children.I also worked once they were older in banking.Please help me help you... I changed my picture to one of sean the caper...cannot wait for his reaction...LOL Sandra Under my profile
LisaRenee	BaxW00dz	I am 39 years old and live in southern Illinois. I have three sons 21, 18 and 15 and one beautiful grand daughter born march 2008. My boyfriend moved in April 2007. In June 2007 I had to take him to the hospital where our journey with als began. Before that time we had no idea that what he was going through was als and knew little about the disease. I am here to learn everything I can to help make things easier on him.
andyvaughn	Anonymous	My name is Andrea, my husband is Jim. He was diagnosed Feb 20 - 2008 w/bulbar onset ALS. We have 2 children, 17 y/o daughter and a 13 y/o son. My husbands initial symptoms were slurred speech, followed almost immediately by arm and leg involvement. He is on rilutek, hoping to start lithium in the coming weeks.
adejager
juju
carolm	poplar	My husband, poplar, was just diagnosed with PD after two open heart surgeries in the last 6 months. We are both 55 and have lived with good health and much activity, both practicing yoga every day up until the surgeries. We are more inclined to natural medicines and life style corrections rather than the meds, but of course will do what ever it takes to improve the situation. I will share what we find helps.
Jenntet		Progressive paralysis. Cannot move anything below neck. Assisted respiration imminent. Suspected cause is Gardasil vaccination. One year progression. Tried long course of prednisone and phosphoresis vs autoimmune disorder. Not mitochondrial disease or due to main DNA chromosome. Currently trying lithium, ritulek, and third course of cytoxan. Motor neuron disease is default diagnosis. Have seen all of the most prominent specialists. Patient is known nationally by now. We are desperate. Nothing works.
Linda Hays		I am a caregive for my brother Joe who is 41 years old. He was diagnosed in June 2007. His ALS has developed rapidly. He is already completely dependent, in a wheelchair, his food is either by straw or spoon. He is unable to do anything on his own, except use a computer with a headmouse. Joe is nearly 20 years younger, our mom passed away when he was jsut 2, so I have helped raise him. I am also taking care of my dad, at 91, who has cancer and a heart problem.
doxie_gma	Mizlara	Hi Everyone, I'm retired, have been married for 44 years and have three children and five grandchildren to my credit! Our youngest (Mizlara) has been diagnosed with MS. She is so smart and funny and it makes me mad to think she has this to deal with. We do share a favorite part of our lives and that's raising our doxie's. Our immediate family consists of seven doxie's with puppies and puppy siblings spread throughout our family and friends! Pretty crazy time when we are all together. That's pretty much me in a nut shell. Thanks you for letting me become a part of your group.
grapenfrank	wormy72
purple1020		My husband ALS disease was discovered in July of 2007. As the days click along, I see his strength weaken, but he is strong in patience and heart. He is my best friend and I look forward to helping him. I have built a website to best communicate with individuals who want more information. You can visit Randy's CaringBridge site at http://www.caringbridge.org/visit/randyspraggins.
DC_sister
Brendan	Anonymous	Son-in-law of PALS.
lakaty1	OregonWayne	My name is Kathy. I am 50 years old. I have been married almost 25 years to my wonderful husband Wayne, who has been in this community for a couple of months. We have one son, Trevor, who is 23. I work for the one of the largest charitable organizations in the country. I am their accounts receivable specialist. I see people with disabilities every day, but is has been quite different seeing the one I love so much battling the disabling affects of ALS. I love the countrysides, mountains and beaches here in Oregon. I love kitties (and puppies too). I also love rock 'n roll.
married to a PALS	hokie	Hi there! I am 37 and married to a PALS who started having symptoms in Jan 07 and was lucky to get diagnosed quickly in March 07. What a year it has been. We have two beautiful children ages 6 (boy) and almost 4(girl). I am interested in being part of this amazing website so I can better support my husband, our family and the ALS community in anyway I can.
Kathryn	bluffy	I care for my husband, Jeff Repetto (Bluffy), 43, since his diagnosis in August of 2003. He has progressed very quickly. He is now using a feeding tube, on a vent, and can only communicate by using his eyes. We've been through almost everything, so we have lots of useful information to share. The one thing I always say, no question is too stupid.
ivodeblasi
missy67		My brother is Dave in WV and he and his wife Deb are my heros They are incredible people and embrace life.Dave makes me feel guilty for ever feeling sad,or depressed,He never complains and they always come up with new ways to overcome their obstacles,I know I don't help enough but if they need me they know I will do Anything to help.I love them so much and Hate this horrible disease!!!
angeleyes		Hi my name is Ruth, i am a caregiver for my wonderful husband Jim, he was diagnosed with ALS on oct.17th. 2006. I am 59, Jim 61, we have 3 children and 3 beautiful grandchildren,we live in Newfoundland.Our thoughts and prays are with you all.
Snowman	Anonymous	I am a managment consultant and car enthusiast. I collect and race old muscle cars and sports cars, particularly Corvettes. My wife and I were married in 2004 and she was diagnosed in 2006. She is a complete inspiration, given how she has taken on the challenges in front of her. I think we've done a great job with keeping people in the loop and, at the same time, giving her the room and the privacy to work on staying as healthy and fit as possible. I'm happy to help if you have questions about that.

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