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Lithium and ALS FAQ
Does it Work? Lithium and ALS
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At PatientsLikeMe, we want to show each individual patient what the effects are of the treatments they're taking as individuals and as a patient group. This page is an attempt to match changes in an outcome measure (the ALSFRS-R) with the introduction of a treatment (lithium). The filters we've provided can be used to look at different subgroups of patients. You can then generate graphs of those patients and their outcome scores before and after lithium. This is an "alpha" product and we will be updating and improving upon it every day.

We are committed to openly presenting the data in a statistically meaningful and medically appropriate visualization.

This is a collaborative project which was first initiated by Karen Felzer, PhD. and Humberto Macedo, along with all the patients involved in the "Lithium Spreadsheet" who have demonstrated such leadership to this community. This project is for and about you so please send us your suggestions and ideas and we will work hard to incorporate them.

Graph	Timeframe	Limit Patients to
	months before lithium	FRS points before lithium
	months after lithium	FRS points after lithium

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Showing 1 to 10 of 190 patients
matching selected filters All patients taking lithium

Patients			Lithium Dose & Blood Level
schemera24 Data Quality: 3 stars ALS: 1 yr Mouth/throat: mild Arms: mild Chest: mild Legs: mild See profile		schemera24 Male, 35 years Onset: Bulbar

spider Data Quality: 2 stars ALS: 7 yrs Wheelchair Mouth/throat: moderate Arms: severe Chest: mild Legs: moderate See profile		spider Male, 52 years Onset: Legs

PALS Data Quality: 1 star ALS: 4 yrs Bi-Pap Mouth/throat: moderate Arms: mild Chest: moderate Legs: moderate		Shannon1 Male, 62 years Onset: Legs On Rilutek

Li2CO3 Data Quality: 3 stars ALS: 2 yrs Mouth/throat: mild Arms: moderate Chest: mild Legs: moderate See profile		Li2CO3 Male, 65 years Onset: Arms On Rilutek
No positive nor negative side-effects within the first two months. Decline appears to be continuing at the same pace as before starting Lithium Carbonate.
Tom M Data Quality: 2 stars ALS: < 1 yr Mouth/throat: mild Arms: mild Chest: mild Legs: mild See profile		Tom M Male, 51 years Onset: Legs
All the minor side-effects I had are gone.
krisncrash Data Quality: 3 stars ALS: 1 yr Mouth/throat: moderate Arms: moderate Chest: mild Legs: moderate See profile		krisncrash Male, 47 years Onset: Arms

Philatm Data Quality: 2 stars ALS: < 1 yr Mouth/throat: mild Arms: mild Chest: mild Legs: moderate See profile		Philatm Male, 54 years Onset: Legs On Rilutek

Fatboy Data Quality: 2 stars ALS: 4 yrs Bi-Pap Mouth/throat: moderate Arms: moderate Chest: moderate Legs: moderate See profile		Fatboy Male, 64 years Onset: Bulbar On Rilutek

kenny a Data Quality: 3 stars ALS: 6 yrs Bi-Pap Wheelchair Feeding tube Mouth/throat: moderate Arms: severe Chest: moderate Legs: moderate See profile		kenny a Male, 36 years Onset: Arms On Rilutek

majestik12 Data Quality: 2 stars ALS: 1 yr Mouth/throat: mild Arms: moderate Chest: mild Legs: moderate See profile		majestik12 Male, 31 years Onset: Legs On Rilutek

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