PatientsLikeMe : Research: Lithium & ALS

This is a collaborative project which was first initiated by Karen Felzer, PhD. and Humberto Macedo, along with all the patients involved in the “Lithium Spreadsheet” who have demonstrated such leadership to this community. This project is for and about you so please send us your suggestions and ideas and we will work hard to incorporate them.

Lithium Population

Type of Onset
Bulbar	57	26%
Limb	160	73%
Breathing	3	1%

Time since Onset
Less than 2 yrs	30	13%
2-5 yrs	147	66%
More than 5 yrs	47	21%

Time since Diagnosis
Less than 2 yrs	81	37%
2-5 yrs	94	43%
More than 5 yrs	13	6%

Sex
Male	129	66%
Female	67	34%

Age range at Diagnosis
Under 40	32	16%
40-49	45	23%
50-59	71	36%
60-69	41	21%
70 or older	6	3%

Severity at Lithium start
FRS More than 36	61	41%
FRS 36-18	69	47%
FRS less than 18	7	5%

Lithium Blood Levels
More than 0.8 mmol/l	1	1%
0.8 - 0.4 mmol/l	44	36%
Less than 0.4 mmol/l	76	63%

Type of Lithium
Lithium Carbonate	210	93%
Lithium Orotate	7	3%
Lithium Sulfate	1	0%

Lithium Dose
300 mg/day or less	33	14%
301-450 mg/day	43	19%
451-600 mg/day	61	27%
601-900 mg/day	20	9%
More than 900 mg/day	4	2%

ALS Population

Type of Onset
Bulbar	588	22%
Limb	2043	76%
Breathing	61	2%

Time since Onset
Less than 2 yrs	328	12%
2-5 yrs	1292	47%
More than 5 yrs	1111	41%

Time since Diagnosis
Less than 2 yrs	772	30%
2-5 yrs	791	31%
More than 5 yrs	583	23%

Sex
Male	1499	59%
Female	1030	41%

Age range at Diagnosis
Under 40	409	18%
40-49	575	25%
50-59	716	32%
60-69	442	20%
70 or older	121	5%

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Lithium Population

ALS Population