Resources
At PatientsLikeMe, we want to show each individual patient what the effects are of the treatments they're taking as individuals and as a patient group. This page is an attempt to match changes in an outcome measure (the ALSFRS-R) with the introduction of a treatment (lithium). The filters we've provided can be used to look at different subgroups of patients. You can then generate graphs of those patients and their outcome scores before and after lithium. This is an "alpha" product and we will be updating and improving upon it every day.
We are committed to openly presenting the data in a statistically meaningful and medically appropriate visualization.
This is a collaborative project which was first initiated by Karen Felzer, PhD. and Humberto Macedo, along with all the patients involved in the "Lithium Spreadsheet" who have demonstrated such leadership to this community. This project is for and about you so please send us your suggestions and ideas and we will work hard to incorporate them.
| Patients | Lithium Dose & Blood Level | ||
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schemera24 Male, 35 years Onset: Bulbar |
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spider Male, 52 years Onset: Legs |
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Shannon1 Male, 62 years Onset: Legs On Rilutek |
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Li2CO3 Male, 65 years Onset: Arms On Rilutek |
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| No positive nor negative side-effects within the first two months. Decline appears to be continuing at the same pace as before starting Lithium Carbonate. | |||
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Tom M Male, 51 years Onset: Legs |
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| All the minor side-effects I had are gone. | |||
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krisncrash Male, 47 years Onset: Arms |
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Philatm Male, 54 years Onset: Legs On Rilutek |
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Fatboy Male, 64 years Onset: Bulbar On Rilutek |
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kenny a Male, 36 years Onset: Arms On Rilutek |
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majestik12 Male, 31 years Onset: Legs On Rilutek |
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