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Type of Onset
(including unknown)
Time Since Onset
(including unknown)
Severity
(including unknown)
Age Range
(including unknown)
Treatment Variations
(including unknown)
Lithium Blood Levels
(including unknown)
Type of Lithium
(including unknown)
Sex
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This is a collaborative project which was first initiated by Karen Felzer, PhD. and Humberto Macedo, along with all the patients involved in the “Lithium Spreadsheet” who have demonstrated such leadership to this community. This project is for and about you so please send us your suggestions and ideas and we will work hard to incorporate them.

Lithium Population

Type of Onset
Bulbar 53 26%
Limb 145 72%
Breathing 3 1%
Time since Onset
Less than 2 yrs 17 8%
2-5 yrs 134 66%
More than 5 yrs 53 26%
Time since Diagnosis
Less than 2 yrs 56 28%
2-5 yrs 93 47%
More than 5 yrs 15 8%
Sex
Male 118 67%
Female 59 33%
Age range at Diagnosis
Under 40 28 16%
40-49 43 24%
50-59 64 36%
60-69 35 20%
70 or older 6 3%
Severity at Lithium start
FRS More than 36 47 36%
FRS 36-18 67 51%
FRS less than 18 7 5%
Lithium Blood Levels
More than 0.8 mmol/l 0 0%
0.8 - 0.4 mmol/l 39 36%
Less than 0.4 mmol/l 68 64%
Type of Lithium
Lithium Carbonate 190 93%
Lithium Orotate 8 4%
Lithium Sulfate 1 0%
Lithium Dose
300 mg/day or less 34 16%
301-450 mg/day 31 15%
451-600 mg/day 58 28%
601-900 mg/day 19 9%
More than 900 mg/day 4 2%

ALS Population

Type of Onset
Bulbar 621 22%
Limb 2177 76%
Breathing 64 2%
Time since Onset
Less than 2 yrs 314 11%
2-5 yrs 1332 46%
More than 5 yrs 1256 43%
Time since Diagnosis
Less than 2 yrs 744 28%
2-5 yrs 833 31%
More than 5 yrs 655 24%
Sex
Male 1591 59%
Female 1103 41%
Age range at Diagnosis
Under 40 418 18%
40-49 603 25%
50-59 757 32%
60-69 467 20%
70 or older 129 5%
Resources on Lithium
Lithium and ALS FAQ
Does it work? Lithium and ALS
Email your questions and suggestions to support@patientslikeme.com

Summary graph of lithium use of ALS population