PatientsLikeMe ™

This is a collaborative project which was first initiated by Karen Felzer, PhD. and Humberto Macedo, along with all the patients involved in the “Lithium Spreadsheet” who have demonstrated such leadership to this community. This project is for and about you so please send us your suggestions and ideas and we will work hard to incorporate them.

Lithium Population

Type of Onset

Bulbar	64	28%
Limb	161	70%
Breathing	4	2%

Time since Onset

Less than 2 yrs	52	22%
2-5 yrs	140	60%
More than 5 yrs	41	18%

Time since Diagnosis

Less than 2 yrs	110	48%
2-5 yrs	78	34%
More than 5 yrs	13	6%

Sex

Male	133	66%
Female	68	34%

Age range at Diagnosis

Under 40	35	18%
40-49	49	25%
50-59	68	34%
60-69	42	21%
70 or older	6	3%

Severity at Lithium start

FRS More than 36	60	40%
FRS 36-18	71	47%
FRS less than 18	8	5%

Lithium Blood Levels

More than 0.8 mmol/l	1	1%
0.8 - 0.4 mmol/l	46	36%
Less than 0.4 mmol/l	82	64%

Type of Lithium

Lithium Carbonate	219	94%
Lithium Orotate	7	3%
Lithium Sulfate	1	0%

Lithium Dose

300 mg/day or less	33	14%
301-450 mg/day	41	17%
451-600 mg/day	60	25%
601-900 mg/day	23	10%
More than 900 mg/day	5	2%

ALS Population

Type of Onset

Bulbar	538	22%
Limb	1875	76%
Breathing	61	2%

Time since Onset

Less than 2 yrs	358	14%
2-5 yrs	1182	47%
More than 5 yrs	974	39%

Time since Diagnosis

Less than 2 yrs	797	34%
2-5 yrs	693	30%
More than 5 yrs	513	22%

Sex

Male	1364	59%
Female	942	41%

Age range at Diagnosis

Under 40	378	18%
40-49	530	26%
50-59	652	32%
60-69	399	19%
70 or older	110	5%