PatientsLikeMe : Research: Lithium & ALS

This is a collaborative project which was first initiated by Karen Felzer, PhD. and Humberto Macedo, along with all the patients involved in the “Lithium Spreadsheet” who have demonstrated such leadership to this community. This project is for and about you so please send us your suggestions and ideas and we will work hard to incorporate them.

Lithium Population

Type of Onset
Bulbar	57	26%
Limb	158	72%
Breathing	3	1%

Time since Onset
Less than 2 yrs	30	14%
2-5 yrs	145	65%
More than 5 yrs	47	21%

Time since Diagnosis
Less than 2 yrs	78	36%
2-5 yrs	95	44%
More than 5 yrs	13	6%

Sex
Male	128	66%
Female	66	34%

Age range at Diagnosis
Under 40	32	17%
40-49	45	23%
50-59	71	37%
60-69	39	20%
70 or older	6	3%

Severity at Lithium start
FRS More than 36	59	41%
FRS 36-18	69	48%
FRS less than 18	7	5%

Lithium Blood Levels
More than 0.8 mmol/l	1	1%
0.8 - 0.4 mmol/l	44	37%
Less than 0.4 mmol/l	75	63%

Type of Lithium
Lithium Carbonate	208	93%
Lithium Orotate	7	3%
Lithium Sulfate	1	0%

Lithium Dose
300 mg/day or less	33	15%
301-450 mg/day	42	19%
451-600 mg/day	62	27%
601-900 mg/day	19	8%
More than 900 mg/day	4	2%

ALS Population

Type of Onset
Bulbar	599	22%
Limb	2070	76%
Breathing	61	2%

Time since Onset
Less than 2 yrs	339	12%
2-5 yrs	1301	47%
More than 5 yrs	1132	41%

Time since Diagnosis
Less than 2 yrs	787	31%
2-5 yrs	794	31%
More than 5 yrs	592	23%

Sex
Male	1521	59%
Female	1049	41%

Age range at Diagnosis
Under 40	411	18%
40-49	581	25%
50-59	730	32%
60-69	445	19%
70 or older	122	5%

PatientsLikeMe ™

Filter Patients By...

Lithium Population

ALS Population