PatientsLikeMe ™

This is a collaborative project which was first initiated by Karen Felzer, PhD. and Humberto Macedo, along with all the patients involved in the “Lithium Spreadsheet” who have demonstrated such leadership to this community. This project is for and about you so please send us your suggestions and ideas and we will work hard to incorporate them.

Lithium Population

Type of Onset

Bulbar	51	27%
Limb	136	72%
Breathing	3	2%

Time since Onset

Less than 2 yrs	3	2%
2-5 yrs	128	66%
More than 5 yrs	62	32%

Time since Diagnosis

Less than 2 yrs	25	13%
2-5 yrs	104	55%
More than 5 yrs	21	11%

Sex

Male	113	67%
Female	55	33%

Age range at Diagnosis

Under 40	27	16%
40-49	41	24%
50-59	61	36%
60-69	35	21%
70 or older	4	2%

Severity at Lithium start

FRS More than 36	43	35%
FRS 36-18	62	51%
FRS less than 18	7	6%

Lithium Blood Levels

More than 0.8 mmol/l	0	0%
0.8 - 0.4 mmol/l	32	34%
Less than 0.4 mmol/l	63	66%

Type of Lithium

Lithium Carbonate	184	95%
Lithium Orotate	9	5%
Lithium Sulfate	1	1%

Lithium Dose

300 mg/day or less	28	14%
301-450 mg/day	29	15%
451-600 mg/day	54	28%
601-900 mg/day	16	8%
More than 900 mg/day	4	2%

ALS Population

Type of Onset

Bulbar	680	21%
Limb	2443	76%
Breathing	72	2%

Time since Onset

Less than 2 yrs	263	8%
2-5 yrs	1431	44%
More than 5 yrs	1544	48%

Time since Diagnosis

Less than 2 yrs	647	22%
2-5 yrs	940	32%
More than 5 yrs	832	28%

Sex

Male	1775	59%
Female	1246	41%

Age range at Diagnosis

Under 40	451	17%
40-49	672	26%
50-59	839	32%
60-69	526	20%
70 or older	143	5%