PatientsLikeMe ™
Already a member? Log in
with patients just like you.
- Select a community
- ALS including PLS and PMA
-
Find out more about the PatientsLikeMe
ALS Community
Vitamin B12 (cyanocobalamin) Treatment Report
See More Treatments
See all treatments in the PatientsLikeMe system shared by patients just like you.
See also: Nascobal, Vitamin B12 (hydroxycobalamin), Vitamin B12 Injection, Vitamin B12 (methylcobalamin), Vitamin B12 Sublingual, Vitamin B12 w/Folic Acid
What is Vitamin B12 (cyanocobalamin)?
Vitamin B12 or cyanocobalamin is a complex vitamin used to treat cyanide poisoning and B12 anemia. In normal functioning it helps the body process fats and proteins. It is available in oral, sublingual and injectable formulations.
Read more...
See more information, including instructions, precautions, side effects, and interactions.
Reasons Taken
189 patients in the community are taking or have taken Vitamin B12 (cyanocobalamin).
| Reason | # Patients | Percentage of patients |
|---|---|---|
| General health | 87 | 46% |
| Slow my ALS progress | 51 | 26% |
| Other | 11 | 5% |
| Fatigue | 10 | 5% |
| disease-related symptoms | 3 | 1% |
| Don't know | 2 | 1% |
| Stiffness/spasticity | 2 | 1% |
| Weakness/slowness (asthenia) | 1 | <1% |
| Cramps | 1 | <1% |
| Fasciculations | 1 | <1% |
Dosages
Based on the patients currently taking Vitamin B12 (cyanocobalamin).
Top 10 (Show all)
All (Show Top 10)
| 0 mcg day | 0 mg day | 0 day | 0 intl units month | 0.03333 month | 0.14286 mg week | 0.15 intl units day | 1 mg day | 1 day | 1 mg month | 1.2 mg day | 2 mcg day | 2.5 mg day | 3 mg day | 3 day | 5 mcg day | 5 mg day | 10 mg day | 15 mcg day | 20 mg day | 25 mcg day | 25 mg day | 33.33 mcg month | 40 mg day | 45 mg day | 50 mcg day | 50 day | 100 mcg day | 100 mg day | 100 day | 142.86 mg week | 200 mcg day | 200 mg day | 200 day | 250 mcg day | 250 mg day | 500 mcg day | 500 mg day | 500 day | 600 mcg day | 1000 mg none | 1000 mcg day | 1000 mg day | 1000 day | 1010 mcg day | 1100 mg day | 1200 mcg day | 1500 mcg day | 1500 mg day | 2000 mcg day | 2000 day | 2500 mcg day | 3000 mcg day | 5000 mcg day | 5000 day | 6000 mcg day | 10000 mg day | ||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
1
|
4
|
24
|
2
|
1
|
1
|
1
|
3
|
2
|
1
|
2
|
1
|
2
|
1
|
1
|
1
|
2
|
1
|
1
|
1
|
1
|
1
|
1
|
1
|
1
|
6
|
2
|
2
|
6
|
1
|
1
|
1
|
1
|
3
|
3
|
5
|
10
|
4
|
1
|
1
|
1
|
25
|
1
|
5
|
1
|
1
|
1
|
1
|
1
|
10
|
2
|
1
|
1
|
3
|
1
|
1
|
1
|
||
Duration
How long current patients have been taking Vitamin B12 (cyanocobalamin) or how long patients were taking Vitamin B12 (cyanocobalamin) before stopping.
Currently taking Vitamin B12 (cyanocobalamin)
Stopped taking Vitamin B12 (cyanocobalamin)
Patient Reported Evaluations
Results from 5 patient evaluations. See the overall results and all individual evaluations.
Efficacy (Effect based on reason taken)
| Slight | 50% | 1 |
|---|---|---|
| Can't tell | 50% | 1 |
General health
Side-effects (as an overall problem)
| Severe | 0% | 0 |
|---|---|---|
| Moderate | 0% | 0 |
| Mild | 0% | 0 |
| None | 100% | 5 |
Top reported side-effects include: eat all the time
Summary results are based on 5 individual responses. For more information, see overall results for Adherence, Burden and Cost.
Individual Patient Reported Evaluations (2 of 5)
-
- Rog
- Mouth/throat: none
- Arms: moderate
- Chest: none
- Legs: none
- See profile
-
by Rog
Aug 23, 2008
- EfficacySlight
- Side-effectsNone
- Slow my ALS progress
- Advice/Tips
- be very discerning over brand and type when it comes to B12
- See full evaluation
-
0 helpful marks
-
- SheilaT
- Mouth/throat: none
- Arms: none
- Chest: none
- Legs: mild
- See profile
-
by SheilaT
Oct 23, 2008
- EfficacySlight
- Side-effectsNone
- Cramps
- Advice/Tips
- Helps a little bit but doesn't stop muscle cramps
- See full evaluation
-
0 helpful marks