PatientsLikeMe ™

ALS
Skip over navigation
Join Now (It's free!)

Already a member? Log in

Share your real-world treatment experience
with patients just like you.
Select a community
ALS including PLS and PMA
Find out more about the PatientsLikeMe
ALS Community

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.


Brand Names: Apo-amitriptyline, Elatrol, Elavil, Endep, Laroxyl, Saroten, Sarotex, Tryptizol
Generic Name: Amitriptyline

What is Amitriptyline? Amitriptyline is a tricyclic antidepressant approved for the treatment of depression. Off label amitripyline is used for certain chronic and neuropathic (nerve) pain and for prevention of migraine headaches.

See more information, including instructions, precautions, side effects, and interactions.


Reasons Taken

140 patients in the community are taking or have taken Amitriptyline.

Reason # Patients Percentage of patients
Excess saliva 52 37%
Insomnia 15 10%
Emotional lability 15 10%
Other 13 9%
Pain 10 7%
disease-related symptoms 8 5%
Anxiety 7 5%
Depression 7 5%
Stiffness/spasticity 4 2%
Support another treatment 2 1%
Slow my ALS progress 2 1%
General health 2 1%
Don't know 2 1%
Fatigue 1 <1%

Dosages

Based on the patients currently taking Amitriptyline.

Top 10 (Show all)

All (Show Top 10)

  0 mg day 0 mg none 1 tbs. day 2 mg day 8 mg day 10 mg none 10 mg day 20 mg day 25 mg day 25 mg week 30 mg day 50 mg day 70 mg day 75 mg day 80 mg day 100 mg day 200 mg day 500 mg day
  5 Number of Patients: 5 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 14 Number of Patients: 14 14 Number of Patients: 14 17 Number of Patients: 17 1 Number of Patients: 1 3 Number of Patients: 3 28 Number of Patients: 28 1 Number of Patients: 1 9 Number of Patients: 9 1 Number of Patients: 1 8 Number of Patients: 8 2 Number of Patients: 2 1 Number of Patients: 1  

Duration

How long current patients have been taking Amitriptyline or how long patients were taking Amitriptyline before stopping.

Currently taking Amitriptyline

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
1
4
8
10
24
23

Stopped taking Amitriptyline

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
3
1
4
6
4
1
Why Patients Stopped Taking Amitriptyline (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work 6 32% Did not seem to work: 32%
Side effects too severe 6 32% Side effects too severe: 32%
Doctor's advice 5 26% Doctor's advice: 26%
Other 4 21% Other: 21%

Patient Reported Evaluations

Results from 8 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Moderate 100% 2

Pain

Side-effects (as an overall problem)

Severe 0% 0
Moderate 13% 1
Mild 25% 2
None 63% 5

Top reported side-effects include: makes me groggy durning the day, "Hangover effect", next day, excessive sleepiness

Summary results are based on 8 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 8)

  • Li2CO3
    Mouth/throat: none
    Arms: moderate
    Chest: none
    Legs: mild
    See profile
  • Li2CO3
  • by Li2CO3
    Oct 25, 2008
  • EfficacyMajor
  • Side-effectsNone
  • Insomnia

  • amberwell
    Mouth/throat: none
    Arms: moderate
    Chest: moderate
    Legs: severe
    See profile
  • amberwell
  • by amberwell
    Nov 12, 2008
  • EfficacyMajor
  • Side-effectsNone
  • Neuropathic pain

See all evaluation results for Amitriptyline



Back to top