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Riluzole Treatment Report

Brand Names: Rilutek
Generic Name: Riluzole

What is Riluzole? Riluzole is the first drug to be approved for amyotrophic lateral sclerosis (ALS). Riluzole, available as Rilutek®, does not cure ALS or improve symptoms, but may extend survival or the time to tracheostomy.

See more information, including instructions, precautions, side effects, and interactions.


Reasons taken

1172 patients in the community are taking or have taken Riluzole.

Top 10 (Show all)

Reason # Patients Percentage of patients
Slow my ALS progress 948 80%
disease-related symptoms 16 1%
Other 15 1%
General health 8 <1%
Don't know 7 <1%
Stiffness/Spasticity 6 <1%
Fasciculations 5 <1%
wanted to increase my life expecency 3 <1%
Support another treatment 3 <1%
Fatigue 3 <1%

Other treatments patients are taking for Slow my ALS progress include CoQ10 Coenzyme Q10, Lithium Carbonate, and Vitamin E.

Dosages

Based on the patients currently taking Riluzole.

Top 10 (Show all)

All (Show top 10)

  daily 1 mg daily 2 mg daily 2 other daily 5 mg daily 20 mg daily 25 mg daily 30 mg daily 50 mg daily 60 mg daily 75 mg daily 80 mg daily 100 daily 100 mg daily 125 mg daily 150 mg daily 200 mg daily 300 mg daily 500 mg daily 512 mg daily 7500 mg daily
  73 Number of Patients: 73 2 Number of Patients: 2 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 5 Number of Patients: 5 1 Number of Patients: 1 1 Number of Patients: 1 117 Number of Patients: 117 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 750 Number of Patients: 750 1 Number of Patients: 1 9 Number of Patients: 9 8 Number of Patients: 8 4 Number of Patients: 4 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1  

Duration

How long current patients have been taking Riluzole or how long patients were taking Riluzole before stopping.

Currently Taking Riluzole

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
5
18
30
98
122
199

Stopped Taking Riluzole

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
19
35
28
33
35
40
Why Patients Stopped Taking Riluzole (multiple reasons could be selected)
Reason # Patients Percentage of patients
Side effects too severe 78 41% Side effects too severe: 41%
Did not seem to work 57 30% Did not seem to work: 30%
Expense 30 16% Expense: 16%
Other 27 14% Other: 14%
Doctor's advice 22 12% Doctor's advice: 12%
Personal research 16 8% Personal research: 8%
Not indicated 11 6% Not indicated: 6%
Course of treatment ended 4 2% Course of treatment ended: 2%

Patient Reported Evaluations

Results from 99 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major 1% 1
Moderate 8% 7
Slight 4% 4
None 5% 5
Can't tell 82% 76

Slow my ALS progress

Side-effects (as an overall problem)

Severe 7% 7
Moderate 11% 11
Mild 11% 11
None 71% 70

Top reported side-effects include: Fatigue, nausea, stomach and intestinal pain, weakness in lips

Summary results are based on 99 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 99)

  • ashfieb
    Sex: M
    Mouth/throat: none
    Arms: moderate
    Chest: none
    Legs: mild
    See profile
  • ashfieb
  • by ashfieb
    Aug 19, 2008
  • EfficacyCan't tell
  • Side-effectsNone
  • Slow my ALS progress

  • ALS Boy
    Sex: M
    Mouth/throat: moderate
    Arms: moderate
    Chest: none
    Legs: moderate
    See profile
  • ALS Boy
  • by ALS Boy
    Oct 20, 2008
  • EfficacyModerate
  • Side-effectsNone
  • Slow my ALS progress

See all evaluation results for Riluzole

Report created on November 08, 2009.