Genetics Search Engine
The PatientsLikeMe Genetics Search Engine helps you find others like you, down to the molecular level. By finding others with your same genetic mutation, you can learn from those having similar ALS experiences.
Want to learn more? Check out our Genetics Search FAQ.
Do you have familial ALS? You are not alone. Imagine finding others with the same genetic cause of ALS that you have, and being able to easily connect with those people. That’s what makes PatientsLikeMe different. You can find other patients just like them, down to the genetic level, by using our new Genetics Search Engine. Share details about your treatments, symptoms and outcomes to help yourself while helping others. Make a difference for everyone with ALS today.
Currently identified genetic mutations in our patient community
See yours? Click on it to find patients sharing your unique experience.
- Do you have a SOD1 mutation?
- Find others in our community with your subgroup.
- SOD1 A4V
- SOD1 D90A
- SOD1 G41D
- SOD1 P66A
- SOD1 E100G
- SOD1 L144F
- SOD1 L144P
- SOD1 Don't know
- SOD1 inversion (AT);nucleotide position 311;codon position 76.
- See all subgroups…
Don’t see your mutation? That’s all right. New people are joining the site every day. Be the first with your genetic mutation to join our ALS community and share information about your disease. The more we know about the cause and effects of ALS for you, the better our chances of advancing research and finding new treatments.
About our ALS Community
| 4066 | total patients |
|---|---|
| 145 | patient updates this week |
| 105 | new patients this month |
- Sex Distribution
- 41% female
-
- 59% male
| <20 |
|
|---|---|
| 20-29 |
|
| 30-39 |
|
| 40-49 |
|
| 50-59 |
|
| 60-69 |
|
| 70+ |
|
Find out more about the PatientsLikeMe ALS Community
Top ALS Treatments
| Treatment Name | Patient #s |
|---|---|
| Riluzole | 622 |
| CoQ10 | 509 |
| Wheelchair (powered) | 223 |
| Vitamin E | 470 |
| Vitamin C | 430 |
| Non-invasive Ventilator | 14 |
| Baclofen | 364 |
| Range of Motion Exercises | 334 |
| Prayer | 323 |
| Multivitamins | 309 |
Top ALS Symptoms
| Symptom Name | Patient #s |
|---|---|
| Fatigue | 2069 |
| Fasciculations | 1969 |
| Stiffness/Spasticity | 1921 |
| Anxiety | 1430 |
| Emotional lability | 1387 |
| Pain | 1365 |
| Excess saliva | 1365 |
| Depression | 1348 |
| Excessive yawning | 1268 |
| Insomnia | 1254 |