PatientsLikeMe : Real-world treatment and symptom information from ALS (Lou Gehrig's Disease) patients like you

Status		Wheelchair (powered) info	Profile
Whimsical Sex: F Data Quality: 3 stars ALS: 5 yrs Mouth/throat: none Arms: moderate Chest: none Legs: moderate See profile	Whimsical	Pride Jazzy Power Chair, weekly since Jul 25, 2008	legs onset: 06/04 Dx: 08/07 Type: ALS/Motor Neuron Disease
strapples Sex: M Data Quality: 3 stars ALS: 3 yrs Ventilator Wheelchair Feeding tube Mouth/throat: severe Arms: moderate Chest: severe Legs: severe See profile	strapples	all the time (24/7) since Feb 18, 2008	legs onset: 10/06 Type: ALS/Motor Neuron Disease
tom Sex: M Data Quality: 3 stars ALS: 13 yrs Wheelchair Mouth/throat: mild Arms: moderate Chest: none Legs: moderate See profile	tom	Invacare Storm TDX5, daily since Jan 19, 2004	legs onset: 01/96 Dx: 05/98 Type: ALS/Motor Neuron Disease
Gabri Sex: F Data Quality: 3 stars ALS: 2 yrs Bi-Pap Wheelchair Feeding tube Mouth/throat: mild Arms: severe Chest: mild Legs: moderate See profile	Gabri	Permobil C300, daily since Jun 16, 2009	arms onset: 03/07 Dx: 08/07 Type: ALS/Motor Neuron Disease
froginmadison Sex: M Data Quality: 3 stars ALS: 2 yrs Bi-Pap Feeding tube Mouth/throat: moderate Arms: moderate Chest: mild Legs: moderate See profile	froginmadison	Permobil C300, daily since Jul 20, 2009	bulbar onset: 11/07 Dx: 05/08 Type: ALS/Motor Neuron Disease
totb Sex: F Data Quality: 3 stars ALS: 3 yrs Bi-Pap Wheelchair Feeding tube Mouth/throat: mild Arms: moderate Chest: moderate Legs: moderate See profile	totb	daily since Mar 15, 2009	legs onset: 07/06 Dx: 11/07 Type: ALS/Motor Neuron Disease
thornton1522 Sex: M Data Quality: 2 stars ALS: 6 yrs Mouth/throat: moderate Arms: moderate Chest: none Legs: moderate See profile	thornton1522	Invacare Power Wheelchair, weekly since Jun 30, 2008	legs onset: 10/03 Dx: 12/05 Type: ALS/Motor Neuron Disease
abbas girl Sex: F Data Quality: 3 stars ALS: 4 yrs Wheelchair Mouth/throat: none Arms: mild Chest: none Legs: moderate See profile	abbas girl	Invacare TDX SP Powerchair, 12 hr daily since May 29, 2009	legs onset: 01/05 Dx: 07/07 Type: ALS/Motor Neuron Disease
old goat Sex: M Data Quality: 3 stars PLS: 8 yrs Mouth/throat: none Arms: mild Chest: none Legs: moderate Type: Upper Motor Neuron See profile	old goat	Pride Jet Power Chair, daily since Apr 08, 2008	legs onset: 02/01 Dx: 11/03 Type: PLS/Primary Lateral Sclerosis
Zippo Sex: F Data Quality: 3 stars ALS: 5 yrs Bi-Pap Mouth/throat: moderate Arms: mild Chest: mild Legs: moderate See profile	Zippo	Permobil C500, as needed since Oct 30, 2009	arms onset: 08/04 Dx: 03/06 Type: ALS/Motor Neuron Disease
jr42 Sex: M Data Quality: 3 stars PMA: 7 yrs Mouth/throat: none Arms: moderate Chest: none Legs: mild Type: Lower Motor Neuron See profile	jr42	Frontier-Mid Wheel Drive, as needed since Mar 03, 2008	arms onset: 02/02 Dx: 05/04 Type: PMA/Progressive Muscular Atrophy
buckaroo Sex: M Data Quality: 3 stars ALS: 4 yrs Bi-Pap Wheelchair Mouth/throat: none Arms: moderate Chest: moderate Legs: moderate See profile	buckaroo	Quantum 6000, all the time (24/7) since Apr 01, 2008	legs onset: 02/05 Dx: 12/05 Type: ALS/Motor Neuron Disease
Rezelle Sex: F Data Quality: 2 stars ALS: 2 yrs Wheelchair Mouth/throat: moderate Arms: mild Chest: none Legs: moderate See profile	Rezelle	daily since Mar 09, 2009	legs onset: 03/07 Dx: 07/08 Type: ALS/Motor Neuron Disease
Rachael Sex: F Data Quality: 3 stars ALS: 4 yrs Wheelchair Feeding tube Mouth/throat: moderate Arms: severe Chest: mild Legs: severe See profile	Rachael	Invacare Power Wheelchair, daily since Feb 20, 2008	legs onset: 07/05 Dx: 03/06 Type: ALS/Motor Neuron Disease
jstsb58/fla Sex: M Data Quality: 1 star ALS: 1 yr Bi-Pap Wheelchair Mouth/throat: moderate Arms: moderate Chest: moderate Legs: moderate See profile	jstsb58/fla	daily since Feb 21, 2009	bulbar onset: 04/08 Dx: 09/08 Type: ALS/Motor Neuron Disease

Prev 1 2 3 Next

Report Back to Wheelchair (powered) report

PatientsLikeMe ™