PatientsLikeMe : Real-world treatment and symptom information from ALS (Lou Gehrig's Disease) patients like you

Status		Riluzole info	Profile
Skymaster47 Sex: M Data Quality: 2 stars ALS: < 1 yr Mouth/throat: mild Arms: none Chest: none Legs: none See profile	Skymaster47	Rilutek, 50 mg daily since Jun 01, 2009	bulbar onset: 12/08 Dx: 05/09 Type: ALS/Motor Neuron Disease
amma Sex: F Data Quality: 3 stars ALS: 4 yrs Bi-Pap Mouth/throat: none Arms: moderate Chest: moderate Legs: mild See profile	amma	50 mg daily since Jun 22, 2006	arms onset: 01/05 Dx: 06/06 Type: ALS/Motor Neuron Disease
tom Sex: M Data Quality: 3 stars ALS: 13 yrs Wheelchair Mouth/throat: mild Arms: moderate Chest: none Legs: moderate See profile	tom	Rilutek, 50 mg daily since Apr 01, 1998	legs onset: 01/96 Dx: 05/98 Type: ALS/Motor Neuron Disease
C.J. Sex: F Data Quality: 2 stars ALS: 2 yrs Mouth/throat: moderate Arms: none Chest: none Legs: mild See profile	C.J.	50 mg daily since Aug 07, 2008	bulbar onset: 11/07 Dx: 12/08 Type: ALS/Motor Neuron Disease
Porky Sex: F Data Quality: 2 stars ALS: 3 yrs Feeding tube Mouth/throat: severe Arms: mild Chest: none Legs: moderate See profile	Porky	50 mg daily since Oct 26, 2006	bulbar onset: 04/06 Dx: 10/06 Type: ALS/Motor Neuron Disease
indyborn Sex: F Data Quality: 2 stars ALS: 2 yrs Bi-Pap Mouth/throat: moderate Arms: mild Chest: none Legs: none See profile	indyborn	50 mg daily since Sep 19, 2008	bulbar onset: 08/07 Dx: 09/08 Type: ALS/Motor Neuron Disease
moonred02 Data Quality: 0 stars ALS: 1 yr Mouth/throat: none Arms: none Chest: none Legs: moderate See profile	moonred02	Rilutek, 50 mg daily since Apr 02, 2009	legs onset: 08/08 Dx: 10/08 Type: ALS/Motor Neuron Disease
Daydreamer Sex: F Data Quality: 3 stars ALS: 1 yr Mouth/throat: none Arms: mild Chest: none Legs: moderate See profile	Daydreamer	Rilutek, 50 mg daily since Aug 17, 2009	legs onset: 12/07 Dx: 06/09 Type: ALS/Motor Neuron Disease
MILLPJM Sex: M Data Quality: 1 star ALS: 2 yrs Mouth/throat: moderate Arms: moderate Chest: none Legs: moderate See profile	MILLPJM	50 mg daily since Jan 13, 2009	arms onset: 09/07 Dx: 07/08 Type: ALS/Motor Neuron Disease
nilsfred Sex: M Data Quality: 1 star ALS: 7 yrs Wheelchair Mouth/throat: none Arms: moderate Chest: none Legs: severe See profile	nilsfred	50 mg daily since Feb 01, 2005	arms onset: 07/02 Dx: 02/05 Type: ALS/Motor Neuron Disease
honeydo Sex: M Data Quality: 2 stars ALS: 1 yr Ventilator Wheelchair Feeding tube Mouth/throat: severe Arms: severe Chest: severe Legs: severe See profile	honeydo	50 mg daily since Jun 26, 2008	legs onset: 01/08 Dx: 04/08 Type: ALS/Motor Neuron Disease
Shannon1 Sex: M Data Quality: 1 star ALS: 5 yrs Bi-Pap Mouth/throat: mild Arms: mild Chest: mild Legs: moderate See profile	Shannon1	50 mg daily since Dec 10, 2004	legs onset: 04/04 Dx: 12/04 Type: ALS/Motor Neuron Disease
Dusty Road Sex: F Data Quality: 3 stars ALS: 1 yr Mouth/throat: moderate Arms: mild Chest: none Legs: mild See profile	Dusty Road	Rilutek, 50 mg daily since Sep 06, 2008	bulbar onset: 02/08 Dx: 05/08 Type: ALS/Motor Neuron Disease
ag69 Sex: F Data Quality: 1 star ALS: < 1 yr Mouth/throat: none Arms: none Chest: none Legs: none See profile	ag69	Rilutek, 50 mg daily since Oct 09, 2009	legs onset: 04/09 Dx: 09/09 Type: ALS/Motor Neuron Disease
cajuntexusa Sex: M Data Quality: 2 stars ALS: 2 yrs Bi-Pap Mouth/throat: mild Arms: mild Chest: mild Legs: mild See profile	cajuntexusa	50 mg daily since Apr 21, 2008	arms onset: 02/07 Dx: 03/08 Type: ALS/Motor Neuron Disease

Prev 1 2 3 Next

Report Back to Riluzole report

PatientsLikeMe ™