PatientsLikeMe ™
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ALS Community
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jeremy Jeremy Weiskotten |
Senior Software Engineer | I'm a software engineer on the PatientsLikeMe team. This is a great team of smart, dedicated, passionate people who all work hard on a very big challenge. We're busy building new tools and designing our upcoming communities, but the door is always open! Let me know if you have any questions, issues, or suggestions by emailing me at jweiskotten@patientslikeme.com. |
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Sharry Sharry Plume |
Support | I am honored to be part of the support team at PatientsLikeMe, passionately driven to provide world-class customer support and service to you. I specialize in managing customer support requests, aiding in the research and resolution of your support issues. I look forward to working with you to enhance your PatientsLikeMe customer support experience. |
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sokun Sally Okun |
Health Data Integrity Manager | I joined the team in May '08 as Health Data Integrity Manager. I'm thrilled to be here. It's my job to be sure that information entered by patients is accurately captured in our databases. This is important for many reasons, not the least of which is the need to be good stewards of the data entrusted to us by the patients who use our site. I've been a nurse for many years spending much of my career working with people living with the daily challenges of serious & advancing illnesses. I have two wonderful daughters, a terrific son-in-law and enjoy life on Cape Cod with my husband, Scott. |
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jamie James Heywood |
Co-Founder, Chairman | I am the Co-Founder with Ben and Jeff and Chairman of PatientsLikeMe. and the Founder and Former CEO of the ALS Therapy Development Institute. Since Stephens (alsking101) diagnosis in 1998, we have learned so much about what patients need to know. We hope to help patients share their knowledge with others. PatientsLikeMe and ALS TDI come from the concept of wanting to find answers for todays patients. |
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PaulWicks Paul Wicks, PhD |
Research Scientist | I'm a research scientist here at PatientsLikeMe, and I'm currently based in London, England. I'm a research neuropsychologist specialising in the emotional and cognitive effects neurological conditions can have; particularly ALS/MND and Parkinson's disease. In the past I've also been webmaster at another site for people affected by ALS/MND, called BUILD UK. |
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mmassagli Michael P. Massagli, PhD |
Research Scientist | Michael P. Massagli, PhD (University of Wisconsin-Madison, Sociology, 1984) joined the PatientsLikeMe team in June 2007. I'm a sociologist and social statistician. My previous research has focused on survey methods and measurement of health outcomes and patient experience of care, looking, for example, at factors affecting the quality of survey data, employment experience and health-related quality of life of persons with AIDS, impact of trauma on mental health and physical functioning in refugee populations, and patient perceptions of health care quality. |
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scottlistfield Scott Listfield |
Senior Designer | Hi - I'm Scott and I'm a visual designer here at PatientsLikeMe. My primary background is in information visualization - a very clever name for what most people call charts and graphs. In addition to my work here, I'm a practicing artist - in certain, very small circles, I'm known for my paintings of astronauts. you can see them at my personal site: www.astronautdinosaur.com |
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shammond42 Steven Hammond |
Software Architect | I am the engineering manager at PatientsLikeMe. In addition to my coding responsibilities, I am responsible for managing the development process, working with the product manager on priorities and developing estimates. |
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Emma Emma Willey |
Community Support | My background is in nursing, I specialised in palliative care after broad experience in areas of oncology, cardiac and general medical. I joined the ALS/MND team at King's College Hospital in 2000 and thoroughly enjoy the Coordinator role within the team. It is a varied role that brings together many different professionals to work together in supporting people living with ALS/MND. I look forward to meeting people through the site and learning what issues are important to individuals and the community as a whole. Please feel free to contact me directly by email; ewilley@patientslikeme.com |
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JeanaFrost Jeana Frost, PhD |
Research Scientist | I joined PatientsLikeMe as a researcher because of my commitment to helping people take control over their healthcare decisions and personal wellbeing. My background is in media and psychology. As a graduate student at the MIT Media Lab, I built tools for people with diabetes to document and discuss personal health practice that impacts health outcomes. After receiving my degree, I did a post-doctoral fellowship in behavioral sciences and technology at Boston Medical Center. I feel lucky to have found PatientsLikeMe, a group and effort so close to my heart and passion. |
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jcole Jeff Cole |
Co-Founder, CTO |
Hi, I am one of the PatientsLikeMe co-founders. Feel free to contact me with any questions, comments, or suggestions!
I have been developing software for web applications for over 10 years. Some of that time I've spent helping out at ALS TDF. I've known Stephen Heywood (alsking101) since I went to college with his brothers Ben and Jamie many years ago. |
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bheywood Ben Heywood |
Co-Founder, President | I am one of the founders of PatientsLikeMe. We started PatientsLikeMe to help patients learn from our family's experience after my brother Stephen was diagnosed with ALS. We hope you find the site useful - please let us know if you have any suggestions or improvements. Look for our family's story in the documentary SO MUCH SO FAST which is currently airing on PBS's Frontline. |
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mcotter Molly Cotter |
Office Manager | Office Manager, Patients Like Me |
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thorgan Tim Horgan |
Community and Product Manager | I'm a member of the community and product management teams at PatientsLikeMe. I'd love to hear your feedback and suggestions for the site. You can reach me at thorgan@patientslikeme.com. |
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dwilliams David S. Williams III |
Founding Executive, Marketing and Business Development | Hi, everyone. I'm David and I'm a member of the founding executive team. Through PatientsLikeMe, we can all make a difference in how diseases are treated so everyone can continue to enjoy life! Feel free to contact me with any questions or ideas! My wife Rosemary and I have a son, David IV, and a daughter, Soleil. |
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cbrownstein C Brownstein, MPH, PhD |
Research Scientist | Hi! I'm Catherine. I joined the PatientsLikeMe team in May 2008. I'm a geneticist, and my previous research has focused on discovering new genes for hypophosphatemic rickets and bone density. I am very interested in improving patient care, and think this is the perfect place to do it! I am so excited to be part of PatientsLikeMe, and am looking forward to meeting all of you. |
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cnecochea Cris Necochea |
Head User Experience Engineer | Hello, I'm Cris. I have worked with web technologies since 1997; the bulk of which I spent working with Jamie and Jeff back at ALS TDF, recently renamed as the ALS Therapy Development Institute. I'm here to try to ensure the best possible user experience for all visitors to PatientsLikeMe. |
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bzack Benjamin Zack |
Software Developer | I am a software developer with a background in chemistry and a fondness for 1,3,7-trimethyl-1H-purine-2,6(3H,7H)-dione (best in the form of a dark chocolate covered coffee bean). I love to travel and explore different cultures, especially getting to know the locals. I am excited to work for a company that impacts so many lives in such a positive way. |
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joelind Joe Lind |
Developer at PatientsLikeMe |
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lscanlon Lori Scanlon |
Marketing Manager | I’m very excited to be spearheading marketing and communications efforts at PatientsLikeMe. It’s an honor to join this smart, passionate team of individuals dedicated to changing the healthcare paradigm as we know it. If I can be of any assistance, feel free to contact me at lscanlon@patientslikeme.com |
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