PatientsLikeMe : ALS/Motor Neuron Disease Community

Caregiver	My PALS	About Me
hutchb	kurt_a_hutchings	My Dad, Kurt Hutchings, was diagnosed with ALS in October 2006. I moved from Portland, OR to Fort Myers, FL in order to support my family. I got married to my amazing husband Nic in November 2008. I never expected to deal with an illness like this and am so thankful to have a loving supportive husband, family and extended family. My Dad passed away on March 5, 2009. He was strong and faithful to the end and was able to be cared for at home and surrounded by family. I miss him and love him.
abbs
darinh1967
KintheKeys	singergram	My Mom was recently diagnosed with ALS which has been very enlightening. Being the closest family member to Mom, I have taken on as many caretaking responsibilities as I can but I live 5 hours away so it is difficult. Most of the time I feel emotionally split between being at home and being with Mom. Thank goodness Mom is a very strong and independent lady!!
steelman		Power engineer operate utilities systems (steam generators etc). 42 yrs old, married 2 yrs. Wife is 39 suspect als onset early 08 official diagnoses jan 09.
Aunt of 10	msradcliffe
hillbily's baby
Gehrig_girl		In January 2009, my dad was diagnosed with ALS. I'm about to start a PhD in history in September, and hope to study the history of ALS and the challenges families living with ALS have faced collectively. Thanks to the Heywood family for creating this amazing resource!
CAL-STL		My Mom was diagnosed about 1 year ago with ALS. This is devastating to me, as she has always been very young & energetic. Mom has a good attitude about her health, & this helps her to stay as positive as possible. My job is to support Mom in maintaining her independence for as long as she cares to. She still works a 9-5 even though she retired a few years ago. She drives about 50 miles/RT to work each day. She uses grocery delivery, and has recently has someone help with the house. I am proud to have such a special Mom, I love her so much; I hope you get to meet her --
Becky54		I am 55 yrs old and the fiancé and caregiver for an ALS pt. I am employed full time @Sabic Inovative Plastics. My hobbies are reading, classic cars, and spending time with grandkids. I have 4 boys and 6 grandsons, can't seem to get a girl. My fiancé and I belong to a classic car club, The Evansville Roadknights, and spend a lot of time going to car shows during the spring and summer.
Cheech		I have been married to my PALS, Bear for 33 years. We are both 51 years old and have a wonderful 27 yr old daughter (LaRee) and her husband (Ryan). We all enjoy doing things together. I work part time for a non-profit organization that delivers food to families in crisis in our community.
animalcrazy		My husband has ALS. Limb onset. We have 5 daughters all together and lots of animals. I love animals. I live in the country on 7 acres.
Rebel7		I am the mother of three beautiful children and the part-time caregiver for my mom, who most likely has ALS. I am extremely tenacious and refuse to give up. I do not trust or believe everything said or written about anything. I firmly believe in doing my own research, continuing to educate myself to understand as much as possible and strive to find an answer. I believe that research could progress more rapidly if there was detailed information gathered about the lives of those fighting ALS or other MND. I'm disappointed in the med care in our area, lots of ignorance on managing it.
Shawn Bridges		I am Stuart's older sister and Stuart who was diagnosed with ALS, July, 2001, lives with me. He had bulbar onset and is now bedbound, on a ventilator, with foley catheter. I am a happy, energic 52 year old who finds great solace and support from my rescued English Springer Spaniels... Bentley and Hudson. I have researched the care of an ALS patient since 2001 and have learned a great deal which I hope to be able to share on this website. I have been very successful with Stuart and his care.
gallicspirit		My sister was diagnosed with ALS recently and she is in complete denial and seeking alternative treatment using IV antibiotics. She has been told it is possible that she might have Lyme disease. I will say this about denial--it is a powerful emotion. I would challenge her dx, but I have not seen her this happy in two months. To her I show enthusiasm and positive thinking, privately I hope, pray, wonder and grieve......
jnmiller		My mother has had ALS for 3 years now, which my father, sister and I are her full time caregivers. If anyone has any questions feel free to ask me. I wish everyone the best of luck and all the support.
maggiemae1		This is about my father. He is a wonderful person who loves to talk and loves the outdoors, hunting, etc. and is the best father a child could ever ask for. He has recently been diagnosed with bulbar palsy and is having a hard time speaking now.
Sweethearts Dance
Jerry Lyons		Hi, I have a very close friend, Del Deanus, who was diagnosed in 2008 with Motor Neurone Disease (ALS). Together we are writing a book about his life, his battle against MND and his advice for people newly diagnosed. We also hope the book will raise awareness and funds for the Motor Neurone Disease Association. A link to the Del's Blog is below: http://delsstory.blogspot.com/ Thank you. Jerry
dr330424

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