PatientsLikeMe : ALS/Motor Neuron Disease Community

Caregiver	My PALS	About Me
Lainey31		My name is Natalie, im 31 and my husband was diagnosed with MND in November 2006. Am living the biggest life experience possible. So many emotions rolled into one. I am Mark's main carer, and although he is exteremly weak and needs 24 hour ventalation we get through much off day to day life without much help. Mark is stepfather to my 3 children, an amazing one at that. Would like to chat to anyone in my postion.
Greyledge		My Son has ALS. he was diagnosed three years ago, lately his condition has changed dramatically. He and his wife live very far from me and up to now I just visited from time to time to see him and to give my daughter-in-law a break from being the sole caretaker. Being the sole caretaker has taken such a toll on my daughter in law that she needs me to take over. My son will be moving back to the northeast to live with me and my companion. I look forward to have him with us and being able to be with him all the time. Hopefully I can improve the quality of his life.
Chr1s
wiley21
KAP		I am caregiver to a wonderful man (my husband) who was recently diagnosed (April 09) with ALS. We are just entering this new journey together with our four children ages 20, 14, 13, and 10 shown in my picture. I am working very hard at keeping all of our spirits up at this point as it is such a new diagnosis. The kids are doing very well, my husband and I are still in shock. His symptoms began last November 08 with clonus of the right leg, followed shortly thereafter with slurred speech and then right hand weakness. We visited the neurologist thinking that he might have right ulnar....
ysteban		I have been working on self-healing for 15 years, protocols: meditation, transpersonal work, self-questioning, reiki, acupressure, AA 12 steps, sungazing, fasting, alternative diets, supplements, colon/liver/kidney/parasite cleanse, tai-chi, qigong and yoga. I have cured myself from various things: anxiety, Alcoholism, gall bladder disease, blocked liver, low immunity, frozen shoulder, CFS, congenital upper cervical subluxation, nervous system problems. In 1999, i experienced a spiritual awakening and healing has been happening since then. I want to share what I've learned with others.
kstafne	sstafne	I'm a caregiver to my husband Scott and mom to our daughters Eva, 3 1/2, and Miranda, 7 months. I enjoy gardening, wine, photography, and spending time with my family. I used to enjoy beating Scott at Scrabble, tending a huge garden, ballroom dancing, going out for breakfast to read the paper in relative peace, playing Boggle, traveling to other countries...and many other things that ALS has taken out of our lives. I also work full time as a management and technology consultant, which I find brings me a great deal of satisfaction, accomplishment, and respite from caregiving.
Snowman		I am a managment consultant and car enthusiast. I collect and race old muscle cars and sports cars, particularly Corvettes. My wife and I were married in 2004 and she was diagnosed in 2006. She is a complete inspiration, given how she has taken on the challenges in front of her. I think we've done a great job with keeping people in the loop and, at the same time, giving her the room and the privacy to work on staying as healthy and fit as possible. I'm happy to help if you have questions about that.
missyann	Russ Conley, safreeman	I am a full time caregiver for my mom Sharon. I have been taking care of her for over a year now and it is the most challenging thing I have ever done in my life. I watch a few kids for income and I have a six year old boy of my own (Trevor). He is in first grade and keeps busy with homework. I am currently going through a divorce and that is about it. Other wise I have been very busy with taking care of mom. She was just tached and vented two weeks ago and so she is keeping us very busy. But she is doing well with everything. That is me on the far left in the green shirt.
MicheleMitchell	Neurotomy	I was born in Rahway, New Jersey, October 10th 1959. I am second generation American Italian; that is, all my grandparents came over on a boat =) My only child, Travis, was diagnosed with ALS in November 2004, at 22 yrs of age - - quite a blow.
ebbesk
kikidee
luckywife		I a very lucky woman married to the greatest man in the world. We were traveling the states playing competitive softball, when this evil disease reared its ugly head. My husband, Ewald (E for short) was diagnosed 2/9/09 with ALS. We have 3 grown girls and 5 beautiful grandchildren. I pray every day for a cure so our grandchildren will grow up with their grandpa. It's four months since his dx and already he has very limited use of his arms and hands. Sites like these have kept me hopeful. You are a great bunch of people and look forward to visiting with you. Take care, Denise
BarbBoogie
rossi	Gerd-NF
rcima64
Starfish	cookielady	My mother is my PALS (and pal). I'm one of a family of caregivers. Like most, we were taken by surprise by her illness. Mom was always the stalwart, strong. nurturing caregiver for the rest of us. And, truthfully, that hasn't changed. The only thing that has changed is now she does all of it in a different way. She smiles and loves even through the occasional tear. We look for the blessings and the bright side. And we keep looking for ways to cope as well as possible. We pray there will be a cure for this disease soon and we send prayers and concern out to all who are touched by MND.
Laura Roman	Cesar Roman
JosieL		I am my father's caregiver. He was diagnosed in 2007, but we believe he's had it longer than that.
Jules 4 Rog	mountainrain	My husband was diagnosed with ALS on September 22, 2005. It's been a long and tough road, but he is doing well and I look forward to many more fun filled years with him and our two boys - altogether. His progression is fairly slow and has focused in his hands and lower arms, so I consider myself very lucky and thank God each day. We take one day at a time and do try and stay positive. See "Rog"

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