PatientsLikeMe : ALS/Motor Neuron Disease Community

Caregiver	My PALS	About Me
dgibian
daughterd		From my experience wiz my father who has been diagnosed since 2005 but has pretty much lost everything now, the only asset that he never lost was his love to Jesus. In times when me as a caregiver would blame God, he will thank him. He is an amazing father. He keeps himself busy with continously listening to church preechings and speeches that give him hope for life in Heaven. My advice is pray a lot , do not ever lose hope.
RCB		I retired in January 2008 and in February 2008 my husband (Bulldog) was diagnosed with ALS after an initial diagnosis of PLS. We like to scuba dive and hope to be able to do this together at least one more time. We loved to dance and take motorcycle trips but have to find substitutions for these activities. We love his kids, our grandkids, our bulldog, and our Westie. We are taking up swimming and yoga for fun and exercise. I need to get back into belly dancing . . . good exercise and Bulldog likes to watch -- lol. ;-)
care for mom		I am Jackie i am here to help with care and support for my mom Lois. She has bulbar ALS.God Bless all the patients and families battling this.
missy67		My brother is Dave in WV and he and his wife Deb are my heros They are incredible people and embrace life.Dave makes me feel guilty for ever feeling sad,or depressed,He never complains and they always come up with new ways to overcome their obstacles,I know I don't help enough but if they need me they know I will do Anything to help.I love them so much and Hate this horrible disease!!!
adejager		I am the wife of My Pals Wayne. We live in Hastings Michigan and together we have 7 children. We live on a small working farm and enjoy the simple things in life. My PALS is a very talented builder with a brilliant mind and he sees my dreams and creates them in front of my eyes. We are very blessed to have such a wonderful person in our lives.
Barreigh
Farmami	alsking101
Juanita		Hi My Husband (The light of my life) of 31 years was DX. with ALS in Aug. 2003 He was only 44 at the time of DX.
myheart2yours	MARNAV60
wyrancher		My husband was diagnosed with ALS in January 2009 at age 43. We manage a dude ranch together in northern Wyoming, just outside of Yellowstone. We met 20 years ago working on a dude ranch. We have been married for 17 years and have a wonderful family with two boys (13 & 8). My husband has the most amazing attitude and does not let ALS define him. I feel so blessed to be on this journey with my best friend. We like to say that this is not how we invisioned our Love Story but it is just Plan B!
DlaisyMae
YellowCat
Tinafici
goonie	hillbilly	My name is Meagan. My mom was diagnosed in Aug. 2006. I would like to meet other caregivers.
DeeDi		I Am 47 Years Old ,My Pals is my husband and best friend of 28 years .he was dx feb.7,2007 with onset in right arm. his progression so for has been slow. any information or suggestions would be great. Thank you God bless
lakaty1	OregonWayne	My name is Kathy. I am 50 years old. I have been married almost 25 years to my wonderful husband Wayne, who has been in this community for a couple of months. We have one son, Trevor, who is 23. I work for the one of the largest charitable organizations in the country. I am their accounts receivable specialist. I see people with disabilities every day, but is has been quite different seeing the one I love so much battling the disabling affects of ALS. I love the countrysides, mountains and beaches here in Oregon. I love kitties (and puppies too). I also love rock 'n roll.
CindyL		I am caregiver for my uncle Scott. He was dx'd in 2003 with ALS. He is doing well emotionally, although his disease is advancing quickly. We all look forward to a cure one day soon. 8/2007 Good news! Uncle Scott's progression has slowed down. He is now confined to a wheelchair and is on bipap.
nemac
passionforcaring	craigt46	I'm a LPN and I have been in Home Health nursing for the past 18 years. I like getting to know the patient personally along with their family. Everyone needs support and the more you have the better for you. We have ALS in the family and it has greatly affected my life and the rest of the extended family's lives too. I just want to help.

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