PatientsLikeMe : ALS/Motor Neuron Disease Community

Caregiver	My PALS	About Me
war eagle
Susan Tobey		I was a caregiver for my husband, who died of ALS 7 years ago. He was 54, and our children were then 9 and 11. I now work with an organization called Compassionate Care ALS (CCALS) based in Massachusetts. While this is primarily a patient services organization, I direct the CCALS caregiver program, which supports ALS caregivers through home visits, respite outings, and caregiver-to-caregiver gatherings. I'd like to invite this community to contact me if they would like to learn more about Compassionate Care, especially caregivers who may want to receive invitations to our gatherings.
tina2		My mother, Barb G is a PALS. She was diagnosed in May of '06. We live in Shallotte, NC. I moved here in July of '06 to help care for Momma. I also have 2 daughter's (3 & 11) and a fiance who have been very supportive and helpful. Familial ALS runs in my family. We all have a 50/50 chance of getting it. My grandmother and several distant aunts, uncles, and cousins had it also.
daddyrocks		daddy Loves Country Music at least the classic kind :) He always has been a devoted father, Born and raised in KY. We noticed something wasnt "right" in 06, legs begun to shake and walking becoming difficult we had no idea what was happening, THEN came November 07 and got the diagnosis of ALS instead of PLS. Im his youngest daughter and and plan to fight right along with him and raise awareness, he has progressed rapidly at an alarming rate, daily there is a new symptom and challenge.
delonna
terrycatucci		I am a caregiver to my husband Pete who was diagnosed with bulbar onset ALS in Feb. 07. We are hooked up with an ALS Clinic at Hopkins. He is taking Rilutek and several supplements. We're looking for hope and answeres
EVMOM
PHICARE		I am a 40 year old nurse. I've been working in this field for 17 years. The last 8 years have been private duty. I now own the company that 120 of my friends and I work for. We have 4 ALS patients. All of them are vent dependant and have feeding tubes. They all get 24 hour skilled nursing care in there homes. I logged on to this site to see if I could find some information on BOTOX and oral secreations at one of my patients requests. If you think that I could answer a question for you please ask.
Little Red		My name is Yvonne and I am the second child out of four. My brother Ed, who is two years younger than I, was diagnosed back in 1996 with ALS. He is in a wheel chair now and his wife Marilyn is his caregiver full time. She is a remarkable woman. The Lord couldn't of given him a more loving and caring person in his life. Ed is a strong man, a loving father and a wonderful brother. And I love him with all my heart.
Lorac		I was a caregiver for my Dad. He was Diagnosed with ALS on Feb. 14, 2005 at 46 years old. My Dad lost his battle with ALS on May 3. 2007. I know that many of you have a difficult journey a head of you, I just want to be here to tell my Daddy's story and try and use it to help as many people as I can.
mkhab
ALSBracelet2007
Krissy
sponge dot
EmoSupport
blackswift
KrssyE	krisncrash

PatientsLikeMe ™