PatientsLikeMe : Botox Treatment Report

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Patients

Taking Botox
32 Patients currently take Botox
8 Patients stopped taking Botox
ylem Sensation: Moderate Overall: Mild Cognition: mild Vision: none Speech: none Swallowing: none Upper limb: none Walking: moderate See profile ylem intl units as needed since Apr 27, 2008
sontzie66 Mouth/throat: mild Arms: mild Chest: mild Legs: mild See profile sontzie66 since Feb 06, 2008
RebeccaJean Mood: Very bad Cognition: Moderate Autonomic: Moderate Head: severe Arms: severe Legs: severe Tremors: moderate See profile RebeccaJean 100units daily since Nov 21, 2006

What is Botox? Botulinum toxin or "Botox" for short is a protein released by the bacterium Clostridium botulinum, and is the most poisonous naturally occuring substance in the world. Used medically, it can paralyse stiff muscles and is often used in the treatment of dystonia. Read more...

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons Taken; Dosages; Duration; Patient Evaluations

Reasons Taken

40 patients in the community are taking or have taken Botox.

Reason	# Patients	Percentage of patients
Other	15	37%
Stiffness/spasticity	9	22%
Bladder problems	5	12%
Disordered muscle tension (dystonia)	2	5%
spasms/shocks in legs	1	2%
Muscle spasms, neck and shoulders	1	2%
Head tremors	1	2%
Foot drop	1	2%
Cramps, feet	1	2%
Excessive daytime sleepiness (somnolence)	1	2%
Headaches/ Migraines	1	2%
General health	1	2%
Treat Parkinson's	1	2%

Dosages

Based on the patients currently taking Botox.

0 intl units month	0 intl units none	0 other none	0 units none	0 none	5 intl units year	200 intl units month	0 intl units none	25000 units year	100 units day
1	12	1	1	1	1	1	1	1	2

Duration

How long current patients have been taking Botox or how long patients were taking Botox before stopping.

Currently taking Botox

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
0	2	2	6	11	5

Stopped taking Botox

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
2	2	2	2	0	0

Why Patients Stopped Taking Botox (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Did not seem to work	5	63%
Course of treatment ended	4	50%
Expense	3	38%
Other	2	25%
Side effects too severe	1	13%

Patient Reported Evaluations

Results from 3 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Moderate	100%	1

Other

Side-effects (as an overall problem)

Severe	0%	0
Moderate	0%	0
Mild	0%	0
None	100%	3

Top reported side-effects include:

Summary results are based on 3 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (1 of 3)

RebeccaJean

Mood: Very bad

Cognition: Moderate

Autonomic: Moderate

Head: severe

Arms: severe

Legs: severe

Tremors: moderate

See profile
by RebeccaJean
Oct 08, 2008