PatientsLikeMe : Botulinum Toxin Type A Treatment Report

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Patients

Taking Botulinum Toxin Type A
36 Patients currently take Botulinum Toxin Type A
14 Patients stopped taking Botulinum Toxin Type A
sontzie66 Sex: F Mouth/throat: mild Arms: mild Chest: mild Legs: mild See profile sontzie66 Botox Treatments, since Feb 06, 2008
wise1 Sex: F Sensation: Severe Overall: Moderate Cognition: severe Vision: moderate Speech: moderate Swallowing: moderate Upper limb: moderate Walking: moderate See profile wise1 Botox Treatments, 200intl units one time since Oct 12, 2008
ylem Sex: F Sensation: Moderate Overall: Mild Cognition: mild Vision: none Speech: none Swallowing: none Upper limb: none Walking: moderate See profile ylem Botox Treatments, intl units as needed since Apr 27, 2008

Brand Names: Botox Treatments
Generic Name: Botulinum Toxin Type A

What is Botulinum Toxin Type A? Botulinum Toxin Type A is a neuromuscular blocker age. It is used to treat various types of dystonia (neurological movement disorders); for blepharospasm and strabismus; for primary axillary hyperhidrosis (excessive perspiration); and it is also used for cosmetic purposes.

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons Taken; Dosages; Duration; Patient Evaluations

Reasons Taken

50 patients in the community are taking or have taken Botulinum Toxin Type A.

Reason	# Patients	Percentage of patients
Other	18	36%
Stiffness/spasticity	10	20%
Bladder problems	6	12%
Disordered muscle tension (dystonia)	2	4%
Foot drop	2	4%
Muscle spasms, neck and shoulders	1	2%
Head tremors	1	2%
Facial tics	1	2%
spasms/shocks in legs	1	2%
Headaches/ Migraines	1	2%
Cramps, feet	1	2%
Excessive daytime sleepiness (somnolence)	1	2%
Support another treatment	1	2%
foot dystonia	1	2%
General health	1	2%
Treat Parkinson's	1	2%

Dosages

Based on the patients currently taking Botulinum Toxin Type A.

Top 10 (Show all)

All (Show Top 10)

0 intl units As needed	0 As needed	0 intl units Monthly	20 other As needed	100 units All the time (24/7)	100 units As needed	175 intl units As needed	200 intl units As needed	300 intl units As needed	5 intl units Yearly	200 intl units Monthly	200 intl units As needed	25000 units Yearly	100 units Daily	200 intl units One time	400 units As needed
6	1	1	1	1	5	1	1	2	1	1	1	1	2	1	1

Duration

How long current patients have been taking Botulinum Toxin Type A or how long patients were taking Botulinum Toxin Type A before stopping.

Currently taking Botulinum Toxin Type A

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
0	2	2	5	8	7

Stopped taking Botulinum Toxin Type A

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
4	2	2	3	0	3

Why Patients Stopped Taking Botulinum Toxin Type A (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Did not seem to work	9	64%
Other	5	36%
Expense	4	29%
Course of treatment ended	4	29%
Doctor's advice	1	7%
Personal research	1	7%
Side effects too severe	1	7%

Patient Reported Evaluations

Results from 9 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major	33%	1
Moderate	33%	1
Slight	33%	1

Other

Side-effects (as an overall problem)

Severe	11%	1
Moderate	11%	1
Mild	0%	0
None	78%	7

Top reported side-effects include: Numbness, Pain during Injection

Summary results are based on 9 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 9)

RebeccaJean

Sex: F

Autonomic: Moderate

Mood: Very bad

Cognition: Moderate

Head: severe

Arms: severe

Legs: severe

Tremors: moderate

See profile
by RebeccaJean
Oct 08, 2008