PatientsLikeMe ™

all
Skip over navigation
Join Now (It's free!)

Already a member? Log in

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.


See also: Crea Pure

What is Creatine? Creatine is an organic acid that is involved in energy use in the muscles. As a supplement, it is used by body builders to help put on muscle mass. Creatine has been trialled in ALS with no positive findings, despite initial findings in the SOD1 mouse that suggested it might be beneficial. Read more...Click to read more below

See more information, including instructions, precautions, side effects, and interactions.


Reasons Taken

225 patients in the community are taking or have taken Creatine.

Reason # Patients Percentage of patients
Slow my ALS progress 100 47%
Other 36 17%
General health 32 15%
Treat Parkinson's 17 8%
Fatigue 8 3%
disease-related symptoms 7 3%
Stiffness/spasticity 4 1%
Don't know 2 <1%
Fasciculations 2 <1%
Mobility 1 <1%
Weakness (asthenia) in hand 1 <1%
Atrophy, upper body muscles 1 <1%

Dosages

Based on the patients currently taking Creatine.

Top 10 (Show all)

All (Show Top 10)

  0 g day 0 mg day 0 day 1 g day 1 mg day 1 tbs. day 1 tps. day 1 day 2 g day 2 tbs. day 2 tps. day 2 day 2.5 g day 2.5 day 3 g day 3 day 4 g day 0 mg none 5 g day 5 mg day 5 day 6 g day 8 mg day 9 g day 10 g day 10 mg day 11 g day 15 g day 20 g day 20 mg day 20 day 43 g day 50 g day 50 mg day 100 day 200 mg day 325 mg day 500 mg day 700 mg day 750 mg day 1000 mg day 1200 day 1250 mg day 1400 mg day 1500 mg day 2000 mg day 2250 mg day 2400 mg day 2500 mg day 3000 mg day 3200 mg day 3500 mg day 4200 mg day 5000 mg day
  2 Number of Patients: 2 2 Number of Patients: 2 22 Number of Patients: 22 3 Number of Patients: 3 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 3 Number of Patients: 3 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 3 Number of Patients: 3 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 32 Number of Patients: 32 10 Number of Patients: 10 1 Number of Patients: 1 2 Number of Patients: 2 2 Number of Patients: 2 1 Number of Patients: 1 12 Number of Patients: 12 6 Number of Patients: 6 1 Number of Patients: 1 2 Number of Patients: 2 3 Number of Patients: 3 3 Number of Patients: 3 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 3 Number of Patients: 3 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1  

Duration

How long current patients have been taking Creatine or how long patients were taking Creatine before stopping.

Currently taking Creatine

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
1
8
22
18
25
34

Stopped taking Creatine

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
5
7
11
15
16
14
Why Patients Stopped Taking Creatine (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work 36 53% Did not seem to work: 53%
Personal research 13 19% Personal research: 19%
Other 11 16% Other: 16%
Doctor's advice 7 10% Doctor's advice: 10%
Side effects too severe 6 9% Side effects too severe: 9%
Expense 4 6% Expense: 6%
Course of treatment ended 4 6% Course of treatment ended: 6%
Not indicated 3 4% Not indicated: 4%

Patient Reported Evaluations

Results from 4 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

None 100% 1

Treat Parkinson's

Side-effects (as an overall problem)

Severe 0% 0
Moderate 0% 0
Mild 25% 1
None 75% 3

Top reported side-effects include: Nausea

Summary results are based on 4 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (1 of 4)

  • spider
    Mouth/throat: moderate
    Arms: severe
    Chest: none
    Legs: moderate
    See profile
  • spider
  • by spider
    Jun 23, 2008
  • EfficacyCan't tell
  • Side-effectsNone
  • Slow my ALS progress

See all evaluation results for Creatine



Back to top