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Home > Community Treatment Reports > Xyrem Treatment Report
What is Xyrem?

XYREM® is a brand name for gamma hydroxybutyrate prepared in an oral solution containing 0.5 g/mL sodium oxybate. It is used for the treatment of narcolepsy to reduce too much daytime sleepiness and reduce cataplexy (weak or paralyzed muscles) attacks.

Reasons taken & Efficacy

Reasons and Efficacy
Reasons taken # of patients Major Moderate Slight None Can’t tell # of patients evaluated by
Sleeplessness 6 3
insomnia if taken after 5 pm 1 0
Pain 1 1
Narcolepsy 1 1
Other 1 1

Mouse over the table for more information

Side Effects

Side effects as an overall problem

Severe
1 20%
Moderate
3 60%
Mild
0 0%
None
1 20%

Most commonly reported side effects

sweating
2 40%
Sleep walking
2 40%
Headaches
2 40%
Extreme Anxiety upon waking
1 20%
confusion upon waking
1 20%
nausious
1 20%
  • Mild
  • Moderate
  • Severe

Dosages

  3 g daily 8 mg daily 9 mg daily 21 mL daily 500 mg daily 1000 mg daily
  1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 2 Number of Patients: 2 1 Number of Patients: 1  

Stop Reasons

Why Patients Stopped Taking Xyrem (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work
1 33% Did not seem to work: 33%
Expense
1 33% Expense: 33%
Side effects too severe
1 33% Side effects too severe: 33%

See all 3 patients who’ve stopped taking Xyrem

Duration See details about how long patients take this treatment ▼

Currently Taking Xyrem

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
1
1
1
0
2

Stopped Taking Xyrem

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
1
1
0
1
0

Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Always
4 80%
Usually
1 20%
Sometimes
0 0%
Never
0 0%

Burden

Difficulty being on treatment

Very
0 0%
Somewhat
2 40%
A little
2 40%
Not at all
1 20%

Cost

Paid out of pocket

$200+
3 60%
$100-199
0 0%
$50-99
0 0%
$25-49
0 0%
< $25
2 40%

See more information, including instructions, precautions, side effects, and interactions.

Report created on November 21, 2009.