PatientsLikeMe : Topiramate Treatment Report

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Patients

Taking Topiramate
490 Patients currently take Topiramate
110 Patients stopped taking Topiramate
fsbiddle Sex: M Depression: 0 Emotional: 0 Compulsion: 0 Anxiety: 0 Mania: 0 Physical: 0 External Stress: Moderate 46 M Function: High Distress: Low See profile fsbiddle Topamax, 100 mg daily since Jun 29, 1998
Rotisgirl Sex: F Pain: Most Fatigue: Most Sleep: Some Stiffness: All function: Little external_stress: Most Stickman: most Description:F41y FM:3y Dx CFS:?y See profile Rotisgirl Topamax, 100 mg daily since Nov 05, 2009
witch4 Sex: F Depression: 4 Emotional: 4 Compulsion: 4 Anxiety: 2 Mania: 2 Physical: 1 External Stress: Overwhelming 57 F Function: Low Distress: High See profile witch4 200 mg daily since Jul 23, 2005

Topiramate Treatment Report

Brand Names: Topamax, Topamax Sprinkle

What is Topiramate? Topiramate is an anti-convulsant and is used with other medications to treat certain types of seizures in patients with epilepsy or Lennox-Gastaut syndrome. It is also used to prevent migraine or cluster headaches.

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons taken; Dosages; Duration; Patient Evaluations

Reasons taken

600 patients in the community are taking or have taken Topiramate.

Top 10 (Show all)

Reason	# Patients	Percentage of patients
Migraine	94	15%
Other	83	13%
Treat my mood condition(s)	75	12%
Migraine Headaches	60	10%
Headaches	48	8%
Pain	39	6%
Fibromyalgia	13	2%
Nerve pain (neuropathic pain)	12	2%
Stiffness/Spasticity	10	1%
Seizures	9	1%
Chronic Daily Headaches and Migraines	9	1%
Support another treatment	8	1%
Epilepsy	6	1%
Tremors	4	<1%
Depression	4	<1%
disease-related symptoms	4	<1%
General health	3	<1%
Bipolar Disorder	3	<1%
Pain, back of head	2	<1%
Mood swings	2	<1%
Slow my MS progress	2	<1%
mania	2	<1%
Don't know	2	<1%
Weight gain	2	<1%
tremors, body	1	<1%
Burning sensation, between shoulders	1	<1%
Crazy Ants all over :)	1	<1%
Fatigue	1	<1%
Seizures (grand mal/tonic-clonic)	1	<1%
Myoclonus	1	<1%
Seizures (partial/focal)	1	<1%
sensory changes	1	<1%
Lhermitte's Sign	1	<1%
Muscle spasms, neck and shoulders	1	<1%
Sensation	1	<1%
Weight loss	1	<1%
Emotional lability	1	<1%
Anxiety, compulsiveness	1	<1%
tremor, hand	1	<1%
Numbness, tingling, pins & needles (paresthesia)	1	<1%
Anxiety	1	<1%
Bipolar, rapid cycling	1	<1%
Panic attacks	1	<1%
Trigeminal neuralgia	1	<1%
compulsions	1	<1%
Nightmares	1	<1%
To prevent my migraines from happening	1	<1%
Extreme weight gain	1	<1%
anticonvulsant/seizure medication	1	<1%
Post Traumatic Stress Disorder PTSD	1	<1%
burning pain	1	<1%
Meniere's Disease	1	<1%
tremor in head	1	<1%
Insomnia	1	<1%

Dosages

Based on the patients currently taking Topiramate.

Top 10 (Show all)

All (Show top 10)

100mg as needed	30minutes as needed	50mg as needed	daily	10 mg daily	15 mg daily	20 daily	25 daily	25 mg daily	30 mg daily	37.5 mg daily	50 daily	50 mg daily	65 mg daily	75 mg daily	100 mcg daily	100 mg daily	125 mg daily	150 mg daily	150 mg one time	175 mg daily	200 mg daily	300 mg daily	300 other daily	400 mg daily	450 mg daily	500 mg daily	600 mg daily	800 mg daily	900 mg daily
1	1	1	9	3	1	1	1	43	2	1	1	74	1	25	1	145	11	29	1	1	77	19	1	28	1	3	4	2	1

Duration

How long current patients have been taking Topiramate or how long patients were taking Topiramate before stopping.

Currently Taking Topiramate

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
3	12	28	54	60	108

Stopped Taking Topiramate

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
18	23	19	19	16	15

Why Patients Stopped Taking Topiramate (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Side effects too severe	52	46%
Doctor's advice	32	28%
Did not seem to work	24	21%
Other	18	16%
Expense	8	7%
Not indicated	4	4%
Personal research	2	2%
Course of treatment ended	2	2%

Patient Reported Evaluations

Results from 105 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major	38%	6
Moderate	6%	1
Slight	44%	7
None	13%	2

Other

Side-effects (as an overall problem)

Severe	12%	13
Moderate	27%	28
Mild	25%	26
None	36%	38

Top reported side-effects include: tingly hands & feet, Brain fog, Word fishing

Summary results are based on 105 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 105)

JesswithMS

Sex: F

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

See profile
by JesswithMS
Aug 15, 2004

EfficacyNone
Side-effectsSevere

Nerve pain (neuropathic pain)

Advice/Tips: Be very careful with this medication and take as directed. Make sure to follow directions if you need to stop this medication due to serious side effects and withdrawls including seizures.

See full evaluation
0 helpful marks

Gypsy

Sex: F

Sensation: Severe

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

See profile
by Gypsy
Aug 20, 2008

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