PatientsLikeMe : Baclofen Treatment Report

See More Treatments

See all treatments in the PatientsLikeMe system shared by patients just like you.

Patients

Taking Baclofen
1152 Patients currently take Baclofen
126 Patients stopped taking Baclofen
RickyTampa Sensation: None Overall: None Cognition: moderate Vision: none Speech: none Swallowing: none Upper limb: none Walking: moderate See profile RickyTampa 30mg daily since Feb 14, 2004
luna Mouth/throat: severe Arms: severe Chest: moderate Legs: severe See profile luna 10mg daily since Jan 11, 2007
Unicat Sensation: Moderate Overall: Moderate Cognition: moderate Vision: moderate Speech: mild Swallowing: moderate Upper limb: moderate Walking: moderate See profile Unicat 10mg daily since Jun 12, 2008

Brand Names: Lioresal
See also: Baclofen pump

What is Baclofen? Baclofen is a muscle relaxant and antispastic agent used in the treatment of muscle spasms, cramping, and tightness. It is available in tablet, syrup form, or can be transfused by surgical insertion of a pump in the spinal cord. Read more...

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons Taken; Dosages; Duration; Patient Evaluations

Reasons Taken

1278 patients in the community are taking or have taken Baclofen.

Reason	# Patients	Percentage of patients
Stiffness/spasticity	933	73%
Other	109	8%
Pain	55	4%
disease-related symptoms	29	2%
Fasciculations	20	1%
Slow my MS progress	12	<1%
General health	9	<1%
Cramps	7	<1%
Mobility	7	<1%
Treat Parkinson's	6	<1%
Fatigue	6	<1%
Don't know	5	<1%
Bladder problems	4	<1%
Slow my ALS progress	3	<1%
Muscle cramping, spasms	3	<1%
Trigeminal neuralgia (tic douloureux)	2	<1%
leg spasms	2	<1%
Muscle twitching (fasciculations)	2	<1%
Treat my MSA	2	<1%
bladder retention	1	<1%
Night-time leg spasms	1	<1%
Peripheral neuritis (neuropathy)	1	<1%
MS Hug, or girdle-band sensation, stomach/chest/thighs	1	<1%
Numbness, tingling, pins & needles (paresthesia)	1	<1%
tmj	1	<1%
Brain fog	1	<1%
Facial spasms	1	<1%
Burning sensation, between shoulders	1	<1%
Shocklike spasms, tingling	1	<1%
Loss of coordination/balance	1	<1%
Spasms	1	<1%
Laryngospasm	1	<1%
Stiffness	1	<1%
Numbness in my hands, arms, legs, and waist	1	<1%
Calf, feet cramps and muscle spasms	1	<1%
Pain, lower back	1	<1%
Muscle spasms, hands	1	<1%
Slow my Devic's progress	1	<1%
Muscle Spasms, feet and toes	1	<1%
Sensation	1	<1%
Joint pain, stiffness	1	<1%
twitches and jerks	1	<1%
Anxiety	1	<1%
Support another treatment	1	<1%

Dosages

Based on the patients currently taking Baclofen.

Top 10 (Show all)

All (Show Top 10)

0 mg day	0 day	0 mcg none	0 mg none	0.05 mg day	0.4 day	0.5 mg day	4 mg week	1 mcg day	1 day	1.5 mg day	2 mcg day	2 mg day	2 day	2.5 mg day	3 day	4 mg day	4 day	5 mg day	5 day	8 day	9 day	0 mg none	10 mcg day	10 mg day	10 day	15 mg day	16 day	20 mcg day	20 mg day	20 day	24 mcg day	25 mg day	30 mg day	30 day	210 mg week	35 mg day	40 mcg day	40 mg day	40 day	44 mg day	45 mg day	50 mcg day	50 mg day	60 mg day	60 day	65 mg day	70 mcg day	70 mg day	75 mg day	80 mg day	80 day	90 mg day	90 day	100 mg day	103 mg day	120 mg day	130 mcg day	130 mg day	150 mg day	160 mg day	180 mg day	200 mcg day	200 mg day	210 mcg day	210 mg day	270 mg day	400 mcg day	500 mg day	600 mg day	800 mcg day	900 mcg day	1240 mcg day	2550 mg day
39	65	1	23	1	1	2	1	1	2	1	1	1	2	2	4	1	1	12	1	1	1	2	1	148	1	17	1	3	146	4	1	10	163	1	1	1	1	119	2	1	8	1	29	133	1	1	1	6	5	79	4	19	1	19	1	21	1	1	2	2	2	1	4	1	1	1	1	1	1	1	1	1	1

Duration

How long current patients have been taking Baclofen or how long patients were taking Baclofen before stopping.

Currently taking Baclofen

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
19	43	73	129	143	360

Stopped taking Baclofen

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
18	28	21	26	10	23

Why Patients Stopped Taking Baclofen (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Did not seem to work	50	39%
Side effects too severe	44	34%
Other	26	20%
Doctor's advice	14	11%
Course of treatment ended	7	5%
Not indicated	6	5%
Expense	2	2%

Patient Reported Evaluations

Results from 73 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major	32%	18
Moderate	45%	25
Slight	16%	9
None	4%	2
Can't tell	4%	2

Insomnia

Side-effects (as an overall problem)

Severe	11%	8
Moderate	16%	12
Mild	27%	20
None	45%	33

Top reported side-effects include: Fatigue, sleepiness, Muscle weakness

Summary results are based on 73 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 73)

SIONZ

Mouth/throat: none

Arms: none

Chest: none

Legs: none

See profile
by SIONZ
Aug 19, 2008

EfficacyModerate
Side-effectsNone

Other

Advice/Tips: do'nt drink alcohol.

See full evaluation
1 helpful mark

JesswithMS

Sensation: Severe

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

See profile
by JesswithMS
Aug 20, 2008

EfficacyModerate
Side-effectsModerate

Stiffness/spasticity

Advice/Tips: Be very slow in your increase on this drug and you must wean yourself off if you need to stop. Make sure to discuss this with your doctor.

See full evaluation
1 helpful mark

See all evaluation results for Baclofen

PatientsLikeMe ™

Baclofen Treatment Report