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What is Primidone?

Primidone is a barbituate anticonvulsant used for the management of grand mal, psychomotor, and focal seizures. Off label it is used for benign familial tremor, also known as essential tremor.

Reported Purpose & Efficacy

Reasons and Efficacy
Purpose # of patients
# of patients with evaluations Efficacy
Major
Moderate
Slight
None
Can’t tell
Epilepsy 22 10 Efficacy_major Efficacy_moderate Efficacy_none
Tremor 19 4 Efficacy_major Efficacy_moderate Efficacy_slight
Essential Tremor 18 8 Efficacy_major Efficacy_moderate Efficacy_slight Efficacy_none
Seizures (grand mal or tonic-clonic) 11 3 Efficacy_major Efficacy_moderate Efficacy_cant_tell
Other 10 2 Efficacy_major Efficacy_moderate
Parkinson's Disease 6 2 Efficacy_moderate Efficacy_cant_tell

See all 89 patients currently taking Primidone

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Reported Side Effects

Side effects as an overall problem

Severe
 6
Moderate
 7
Mild
 12
None
 11

Commonly reported side effects, conditions, and hospitalizations associated with Primidone

Grogginess 5
Fatigue 5
Dizziness 5
Rapid tooth decay 1
Tiredness 1
Sleepiness 1
See all 20 reported side effects ▼ See top 6 reported side effects ▲

Reported Dosages

Frequently reported dosages based on patients currently taking Primidone. See all 24 dosages ►

  50 mg daily 100 mg daily 150 mg daily 200 mg daily 250 mg daily 250 mg/5 mL daily 300 mg daily 500 mg daily 750 mg daily 3 x 250 mg/5 mL daily
  18 Number of Patients: 18 9 Number of Patients: 9 6 Number of Patients: 6 6 Number of Patients: 6 4 Number of Patients: 4 5 Number of Patients: 5 6 Number of Patients: 6 12 Number of Patients: 12 6 Number of Patients: 6 4 Number of Patients: 4  

Reported Stop Reasons

Why Patients Stopped Taking Primidone (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work 13   Did not seem to work: 52%
Side effects too severe 12   Side effects too severe: 48%
Doctor's advice 7   Doctor's advice: 28%
Other 4   Other: 16%
Personal research 1   Personal research: 4%
Course of treatment ended 1   Course of treatment ended: 4%

See all 25 patients who’ve stopped taking Primidone

Reported Duration See details about how long patients take this treatment ▼

Currently Taking Primidone

A bar graph

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
0
0

Stopped Taking Primidone

A bar graph

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more

Reported Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Adherence of Primidone

Always
 32 89%
Usually
 2 6%
Sometimes
 2 6%
Never
 0 0%

Burden

Difficulty being on treatment

Burden of Primidone

Very
 2 6%
Somewhat
 3 8%
A little
 9 25%
Not at all
 22 61%

Cost

Paid out of pocket

Cost of Primidone

$200+
 0 0%
$100-199
 0 0%
$50-99
 1 4%
$25-49
 2 7%
< $25
 24 89%

See more information, including instructions, precautions, side effects, and interactions.

Report created on February 09, 2012.