PatientsLikeMe : Community

Caregiver	My patient	About Me
YellowCat
K.K.		My name is Dani and my mother was dx with ALS in April 2008. I am the youngest of three girls and I have four children of my own. I am very close to my parents and this is been very difficult on my entire family.
labuser		I became paralyzed sept 30 of 05. diagnosed the spring of 06. went back to work jan of 06 in a wheelchair, went to a walker then an cane. can walk not somewhat, not good on inclines and down hill. I have 2 grown daughters and 5 granddaugthers. I am still working full time, would like to cut back that some. I go to the gym 3 times a week to walk and do weights, then twice a week I do pilaties. some weeks i don't get there that many time, but I really try. I try to stay upbeat and thank god for what I have and can do.
adejager		I am the wife of My Pals Wayne. We live in Hastings Michigan and together we have 7 children. We live on a small working farm and enjoy the simple things in life. My PALS is a very talented builder with a brilliant mind and he sees my dreams and creates them in front of my eyes. We are very blessed to have such a wonderful person in our lives.
josh11morgan		I am now 31 years old. Married to my junior high school sweet heart, and have a 2 year old son named Ben. My mother was recently diagnosed with ALS. (August 20th 2008). I am hoping to connect with people that are going through some of the same issues and challenges that we are going to encounter. Any bit of insider help will be greatly appreciated.
onamission
Camden AHEC		“ Positive Effect Group” is a weekly support group for people living HIV+, who have an positive outlook on life. Meeting every Wednesday evening for confidential meetings hosted in a safe, and comfortable environment you can make new friends, and participate in group activities, workshops, and field trips. This support group is for people ages 18 and older, who are looking for a place to vent and share, and make a “Positive Effect” in someone’s life. Visit us at myspace.com/positveeffeccamdenahec
andyvaughn		My name is Andrea, my husband is Jim. He was diagnosed Feb 20 - 2008 w/bulbar onset ALS. We have 2 children, 17 y/o daughter and a 13 y/o son. My husbands initial symptoms were slurred speech, followed almost immediately by arm and leg involvement. He is on rilutek, hoping to start lithium in the coming weeks.
hutchb	kurt_a_hutchings	My Dad, Kurt Hutchings, was diagnosed with ALS in October 2006. I moved from Portland, OR to Fort Myers, FL in order to support my family. I got married to my amazing husband Nic in November 2008. I never expected to deal with an illness like this and am so thankful to have a loving supportive husband, family and extended family.
Abeer		My brother is an MS patient, he is 40 years old and was diagnosed 12 years ago. It's a secondary progressive and now he's on a wheelchair and is suffering from a variety of symptoms including leg stiffness, general fatigue, bladder problems and weakness. He is currently undergoing sessions of a low dose chemotherapy, our last resort according to some doctors to slow down the deterioration process. If you have any recommendation please share with me I'll appreciate it.
browneyes59
chinagirl		I am the wife and primary caregiver of Ray, PALS diagnosed in May 2008. Since then, the disease has progressed rapidly: cane in May, walker and transfer chair in June, full-time power chair in July. Already his voce has softened and slowed and he is frequently short-of-breath, he tires easily, is beginning to have some difficulty swallowing and tremors have moved into his arms and hands and he has lost most all arm and hand strength. Despite all, he remains positive, peaceful and a joy to be with and I am blessed.
raevenbox		Have a husband that was diagnosed with major depression who goes on and off his meds. I think it may be bipolar. I have a 14 year old daughter who was diagnosed with ADD, ODD, Depression and a mood disorder. I also have a son who is 7 and diagnosed with ADHD. I, on the other hand, have not been diagnosed with anything. My life is so busy trying to care for my family, that I seldom have time for myself. Looking for tips on how I can assist my family deal with these issues and live a happy life together.
tryinghard
star
Aleta	cajuntexusa	My life has changed drastically. My husband, Charlie was diagnosed with ALS. I hate this disease and it knows it. I will fight it until a cure is found. http://disneyphotoshare.com/myglobe/5E9D5D03C54D6253F1 http://disneyphotoshare.com/myglobe/505464BE6AEF625331 http://disneyphotoshare.com/myglobe/7EF0A6DE50D7624431 http://disneyphotoshare.com/myglobe/A2EAB1A20F816253F1 http://disneyphotoshare.com/myglobe/3A065EA3BC97624DF1 Look in David 's hands http://disneyphotoshare.com/myglobe/EB6DEFDFCD8C625331 http://disneyphotoshare.com/myglobe/08ACCCFE18E4625331
HIVchaplain	CHESS39, laaw, ShannonandJohn, infinitEdge, babymagic, twentysexy, mutt	Rev. Deborah E. Lake, author of Your Neighbor Has AIDS and executive director of the Chicago based Sankofa Way, works to provide leadership and space for all people to unite and find new and effective ways to create world-wide change.
jenaemk
cynragan		my mother (Sig) was diagnosed with ALS last november. There is a book on the New York Times Bestsellers list now titled "not quite what i was planning". pretty much sums it all up. except change the "I" to "we". My family was blindsided. we are closer now than i ever imagined we would be. my mother is my role model, my go-to, my favorite Diva!, my mom, my "advisor" ( ! !), my friend. my mother has always been - and continues to be an enormous part of my day to day life. i just got married - my mother was THE most beautiful and involved MOB (mother of the bride)! find a cure for ALS!
annabellelee

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