PatientsLikeMe ™

What real patients are saying about PatientsLikeMe...

Best ever

“Best website I have ever seen.”

This site has been very helpful...it's been quite a boost

“This site has been very helpful... I gain most of my information from others like me who are willing to share and from the research updates posted here. And emotionally it's been quite a boost.”

Awesome! I suggest everyone sign up, especially newly diagnosed people

“I think this site is absolutely awesome. I really like being able to visually see my progression and would have loved to have this 5 years ago! I suggest everyone sign up, especially newly diagnosed people.”

Most informative site! truly innovative

“This is the most informative site that I have discovered. It is truly an inovative system. So far, I have been extremely impressed.”

Your site is great!

“Your site is great! I feel this site would be a very helpful tool in having someone to share your health concerns, plans of action and just having someone to share with! Thank you.”

Awesome... touches my heart!

“This is such an awesome site! Thank you for putting your talents to such a beautiful task! It really touches my heart!”

Wonderful... So thankful

“I finally put my information in on Patients like me... It's a wonderful site to have and so thankful for this.”

It's a pleasure to be testing such a brilliantly useful site.

“It's a pleasure to be testing such a brilliantly useful site. I found it easy to navigate round the site and data entry was quite straight forward... it's looking good, keep up the good work.”

Appreciate the capability to communicate our story

“I really appreciate this page and capability to communicate our own story with other patients.”

My health has honestly improved..

“My health has honestly improved as a result of this site's work! Thank you.”

Thank you for helping 'people like me'

“I just wanted to comment on the awesomeness (if that is a word) of your web site! Thank you for helping 'people like me'... Thank you for all that you are doing to help people -- it is a gift that you have been given.”

Just want to say how impressed I am...BLESS YOU!

“Just want to say how impressed I am with 'PatientsLikeMe' website. Amazingly informative. ::: tips my hat to you:::: for a great website in the name of helping others and being able to compare and reach out for support. BLESS YOU!”

A Great Initiative

“[This is] the best patient site I've found so far... Very user-friendly, data/info-broad, attractive to look at and generally a great initiative!”

Very right on about MS

“I just found your web site and read through it a bit and really like it. So, I decided to join since I found it to be very “right on” about MS unlike some things I have read over the years. It really is great...”

Changed my life!

“Patientslike me has changed my life, thanks to the people that put it together! This area of our life gives us hope, and reminds us we are not alone there are millions of us!!”

I am not alone

“ I think that PLM is helping with my feeling of being isolated with my illness…that part of it is the worst for me...I talked to someone who let me know that I was not alone with my illness. And I think that’s a good and helpful thing.
”

My doctor LOVED the printout!

“I just want to thank the Patients Like Me website for FMS--and
for the other conditions too. I forgot to mention that when I
went to the Pain Mgmt and Physical Rehab doc, she LOVED the
printout I brought from the website and kept it so that her
other patients could log onto and join the website! Hooray!

So...thanks everyone for your support and for all of the great
tools. Dr. C. thanks you too and thinks this is really fantastic
(as do I)!”

Your site sure brings hope to me

“Hi! I joined PatientsLikeMe yesterday and I was very, very impressed with this website!!! This will help the ALS community very much.

I answered all the questions and will be able to track my progression, print off this and questions to my ALS doctors and compare what other treatments that work for other PALS. I also learned a lot including my FRS score that when I tried before was never sure I was doing it right. Thank you!!!

I know there is no ALS cure at this moment but your site sure brings hope to me. I see many new doors opening up for all of us because of this very unique website, PatientsLikeMe.

Thank you! This is tremendous!!!”

I love PatientsLikeMe. I feel connected for the first time in years

“I love PatientsLikeMe. I feel connected for the first time in almost 3 years. It's good to see the long timers- gives me hope.”

Very useful...

“I have been exploring the site and find it useful and easy to navigate. It is already helping me cope and accept my MS diagnosis.”

Everyone here has been very helpful.

“Everyone who is a member here and the staff of PLM have been very helpful and very supportive.”

I urge all to go to PatientsLikeMe!

“Each of us working together can one day see a cure come to us. The PatientsLikeMe project does exactly that, it documents and assembles our individual stories in such a way as to provide compelling data to help direct and focus researchers and advocates.

I urge all in the group to go to PatientsLikeMe.com and submit your information!”

Your web site is wonderful!

“Your web site is wonderful, user friendly, and I love the fact that it charts the ups and downs for me.”

No PALS should be without!

“Outstanding work on the site, I know what it takes to put a project like this together! It's really something no PALS or CALS should be without!”

Lights the Darkness

“I hope somewhere in here, we end up with the kind of information that lights the darkness surrounding ALS and leads us to the answers for a cure.”

amazing insight and information

“This site has amazing insight and information, plus kind, caring people who care so much about others.”

— Sean, an MS patient

A very helpful and positive tool for dealing with my illness (HIV)

“It is my pleasure to do whatever I can to help this website continue to be a success. This has been a very helpful and positive tool for dealing with my illness. Thanks for the great effort you and your team has given to our community and those of the other communities that your site helps. I have already encouraged friends that could utilize your other communities.”

PLM empowers us

“Because of PLM, we are better able to recognize warning signs. We are better able to keep things in perspective. In short, PLM empowers us.”

— a Mood patient

Major factor in finding out which treatments are working

“I found this website to be a major factor in communicating with and finding out about what treatments are working for other ALS patients with similar history and disease progression! I plan to steer all my ALS friends, support group, etc to the site!”

What would I do without this site?

“I REALLY don't know what I would have done without this site after learning I have MS.”

— an MS patient

Amazing organization

“The organization of the whole site is utterly amazing. The others that I have seen make me kind of stressed just to try to find any information.”

— an MS patient

Great and helpful insight

“I love this website! Everyone has such great and helpful insight to share about their journey with MS.”

— MS member

A lifesaver...

“I have found it to be a lifesaver, a place where there are people who understand what you’re going through, are going through it themselves.”

I l-o-v-e this site so much already!

“Let me tell you…I l-o-v-e this site so much already!!! It is absolutely awesome!!! I really needed this!!!”

Helped me understand myself

“I think PLM has helped me to understand myself, my actions and my emotions better than ever before.”

Befriended by countless people

“The most endearing quality about this site has been how right from the beginning I was brought into the magic of this place and befriended by countless people here who were only to happy to help me along in this journey battling this illness. ”

You guys are great!

“I took my PatientsLikeMe printout to my doctors last week. They were totally impressed. My voice is gone and the printout said it all. You guys are great!”

I just wanted to say how fantastic this site is!

“I registered only a few days ago. I just wanted to say how fantastic this site is! Just to be able to share views with others when you just had your diagnosis is great... So this is great, keep up the good work.”

I cannot tell you all how having this site in my life has lifted my spirits

“I cannot tell you all how having this site in my life has lifted my spirits. What a gift. I feel like you all are family. I really believe that being able to share and learn with all of you has helped my overall well being.”

Thanks doesn't begin to cover my gratitude.

“PLM's goal is to learn from patient's experiences and share that in hopes of better care. I don't know of any other place that I can find that. Thanks doesn't begin to cover my gratitude. ”

— Syl, an MS patient

---

What partners, researchers, and physicians are saying about PatientsLikeMe...

An excellent idea whose time has come

“An excellent idea whose time has come. Keep up the good work.”

— Benjamin Rix Brooks, MD, Professor of Neurology, University of Wisconsin School of Medicine

Vision of patient-connectedness

“I have been haunted, and that is really not too strong a term, by the vision of patient-connectedness that you outlined.”

— Information Executive, major pharmaceutical

You guys are doing great work here

“I think it is amazing. You guys are doing a great work here.”

— Research Nurse

Thank you -- all of you at PLM for helping me feel more empowered and in control!

“I printed out the "about us" page from the PLM homepage, and gave it to my doctor, so he could have the web address. I told him about this site, and how helpful it's been for me!”

— MS patient

Well Done

“Well done! It's such a good site... Incidentally, your site has done something I've never managed to do. I tracked down someone on the Neurodex trial. Have been trying to do that for 18 months, so well done!”

— Ph.D specializing in ALS and other neurodegenerative disorders

PatientsLikeMe is an incredible resource...

“PatientsLikeMe is an incredible resource, a wealth of information that gives us the ability to be an informed active participant in our own medical needs.”

— Rose on the PublicCloud blog

Fantastic site for HIV

“I was a member of other HIV groups and sites (Most are UK based)that update on the newest research and exchange information like yours, but not as thorough. None are as interactive and none chart for you. This is really fantastic! ”

— Baltimore, an HIV patient

you are helping so many people

“you are helping so many people...”

— MS patient

I love, love, love the new treatment pages

“I love, love, love the new treatment pages!!!! It was so easy to update my profile. Thank ya'll so much for everything you do to make our lives easier.”

— MS patient

Technology which can connect our world

“Technology can connect our world and make it more efficient and productive. One such tool is a brand new website called PatientsLikeMe.com.”

— Augie Nieto, Co-chairperson, MDA ALS Division

---

Tell us what YOU think!