What real patients are saying about PatientsLikeMe...
PatientsLikeMe is a great way to connect with others living with MS, to compare symptoms and offer suggestions. I use it as a helpful tool to track my disease progression, keep notes, and learn from others.
PLM is like having a virtual support group. Being able to connect with others who can relate to your condition is priceless. I have had some valuable conversations and established friendships with people through PLM. I have also referred PLM to family and friends. PLM is a great way for me to track my condition and share details with my healthcare providers.
Since joining PLM I have found support and courage to let others know what it is like to have a condition like mine. I hope my story helps let others know all is not lost. PLM helps me keep daily tracks of my moods, my aches, my seizures which I have always wanted to do! To make some one feel better is what I do best! With that PLM ROCKS!
PatientsLikeMe gives you direct access to other people in your situation. It’s nice to hear from people who have had IPF for many years, what drugs they take, how those affect them, what they are doing themselves to keep a good quality of life and so on. Everybody is different of course, the illness progresses differently in each person, so it’s interesting to see all the variations in medication.
I don’t know many people where I live that have fibromyalgia, and I didn’t realize how welcoming this site would be. I found people who, like me, wanted answers. The sharing of information and support was a nice thing to find.It’s staggering...the information has helped me better communicate with my doctor.
I thought I had to live with my frustrating handwriting problems, but PLM helped me talk with my neuro & now I can write again!
PatientsLike Me has been a life saver. I live out in a rural community so I get online and I post with everybody. My neurologist loves the fact that I'm on PLM because I actually know what I'm talking about when I go see him. It's a lot of information right at you finger tips.
"PatientsLikeMe has provided me with new friends-people who are experiencing the same problems as I am. I’ve learned that there isn’t a single question that won’t get a vast myriad of answers from the community. I’ve learned that we all care enormously for each other and are very eager to help those who find themselves in the same boat as we are. But most of all I’ve learned that I am not on my own."
Each time I log on to PatientsLikeMe, I will meet people who truly know what it feels like to wake up in the morning, struggle out of bed, slowly straighten up, stretch, pause for balance, and take that first step. Somehow just sharing knowledge and experiences with people at all stages of my disease tends to lessen the severity of it for me and, I hope, for them.
Patientslike me has changed my life, thanks to the people that put it together! This area of our life gives us hope, and reminds us we are not alone there are millions of us!!
I have found it to be a lifesaver, a place where there are people who understand what you’re going through, are going through it themselves.
Your web site is wonderful, user friendly, and I love the fact that it charts the ups and downs for me.
I have been exploring the site and find it useful and easy to navigate. It is already helping me cope and accept my MS diagnosis.
I just found your web site and read through it a bit and really like it. So, I decided to join since I found it to be very “right on” about MS unlike some things I have read over the years. It really is great...
Let me tell you…I l-o-v-e this site so much already!!! It is absolutely awesome!!! I really needed this!!!
It is my pleasure to do whatever I can to help this website continue to be a success. This has been a very helpful and positive tool for dealing with my illness. Thanks for the great effort you and your team has given to our community and those of the other communities that your site helps. I have already encouraged friends that could utilize your other communities.
I hope somewhere in here, we end up with the kind of information that lights the darkness surrounding ALS and leads us to the answers for a cure.
Outstanding work on the site, I know what it takes to put a project like this together! It's really something no PALS or CALS should be without!
I found this website to be a major factor in communicating with and finding out about what treatments are working for other ALS patients with similar history and disease progression! I plan to steer all my ALS friends, support group, etc to the site!
I love PatientsLikeMe. I feel connected for the first time in almost 3 years. It's good to see the long timers- gives me hope.
Hi! I joined PatientsLikeMe yesterday and I was very, very impressed with this website!!! This will help the ALS community very much.
I answered all the questions and will be able to track my progression, print off this and questions to my ALS doctors and compare what other treatments that work for other PALS. I also learned a lot including my FRS score that when I tried before was never sure I was doing it right. Thank you!!!
I know there is no ALS cure at this moment but your site sure brings hope to me. I see many new doors opening up for all of us because of this very unique website, PatientsLikeMe.
Thank you! This is tremendous!!!
The organization of the whole site is utterly amazing. The others that I have seen make me kind of stressed just to try to find any information.
This site has amazing insight and information, plus kind, caring people who care so much about others.
I love this website! Everyone has such great and helpful insight to share about their journey with MS.
I just want to thank the Patients Like Me website for FMS--and
for the other conditions too. I forgot to mention that when I
went to the Pain Mgmt and Physical Rehab doc, she LOVED the
printout I brought from the website and kept it so that her
other patients could log onto and join the website! Hooray!
So...thanks everyone for your support and for all of the great
tools. Dr. C. thanks you too and thinks this is really fantastic
(as do I)!
This site has been very helpful... I gain most of my information from others like me who are willing to share and from the research updates posted here. And emotionally it's been quite a boost.
Because of PLM, we are better able to recognize warning signs. We are better able to keep things in perspective. In short, PLM empowers us.
What partners, researchers, and physicians are saying about PatientsLikeMe...
Technology can connect our world and make it more efficient and productive. One such tool is a brand new website called PatientsLikeMe.com.
I love, love, love the new treatment pages!!!! It was so easy to update my profile. Thank ya'll so much for everything you do to make our lives easier.
you are helping so many people...
I was a member of other HIV groups and sites (Most are UK based)that update on the newest research and exchange information like yours, but not as thorough. None are as interactive and none chart for you. This is really fantastic!
PatientsLikeMe is an incredible resource, a wealth of information that gives us the ability to be an informed active participant in our own medical needs.
I printed out the "about us" page from the PLM homepage, and gave it to my doctor, so he could have the web address. I told him about this site, and how helpful it's been for me!
Well done! It's such a good site... Incidentally, your site has done something I've never managed to do. I tracked down someone on the Neurodex trial. Have been trying to do that for 18 months, so well done!
I think it is amazing. You guys are doing a great work here.
I have been haunted, and that is really not too strong a term, by the vision of patient-connectedness that you outlined.
An excellent idea whose time has come. Keep up the good work.