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“An excellent idea whose time has come.” — Benjamin Rix Brooks, MD
In the News
Can Web 2.0 Reboot Clinical Trials?
By Malorye Allison, Oct 01, 2009
Malorye Allison provides an in-depth overview of PatientsLikeMe's approach to collecting and using clinical information to accelerate research and discovery.
The 2009 Smart List: Forget Medical Privacy
By Brendan Koerner, Sep 21, 2009
Jamie Heywood is named to the 2009 Smart List ("12 Shocking Ideas That Will Change the World"); he talks to WIRED about the benefits of sharing your health data.
Forbes.com How The Internet Is Changing Health Care
By Rebecca Ruiz, Jul 30, 2009
PatientsLikeMe is mentioned in this article about how the industry is opening up to consumer-driven healthcare.
Getting Medical Advice on the Web from Other Patients
By Nancy Shute, Jul 13, 2009
Jamie Heywood and PatientsLikeMe members are featured in this article about "crowd-sourced disease sites" and participatory medicine
Federal focus on healthcare IT: a bounty for KM vendors?
By Nancy Davis Kho, Jul 03, 2009
Nancy Davis Kho writes about the impact of the new Administration's approach to health IT (HIT); Jamie Heywood talks about the importance of transparency in such matters.
Neurogeneticists Divided Over Gene Screening Sites for Public
By Gina Shaw, Jun 18, 2009
In this story about online efforts to aggregate genetic data, Jamie Heywood talks about how we approach incorporating genetics into the PatientsLikeMe platform
Patient Influence on Future of Health Care
By Alexis Glick (Anchor), Jun 15, 2009
Live from The National Summit, Ben Heywood talks with Alexis Glick about the site and putting patients back at the center of the system
Pharma's Facebook
By Sarah Kliff, Mar 10, 2009
PatientsLikeMe and partner Novartis are mentioned in this story about how pharma is using social networking to recruit for clinical trials.
Forbes.com Creating a New Kind of Health Care Community
By Renee Hopkins Callahan, Mar 03, 2009
Highlighted as the "Disruptor of the Month," PatientsLikeMe is profiled in this piece (expanding on a mention of our company in Clayton Christensen's The Innovator's Prescription).
Social Networking Sites Have Myriad Trial-Related Uses
By Deb Borfitz, Mar 02, 2009
Reporter Deb Borfitz interviews Ben Heywood about PatientsLikeMe's approach to working with industry for clinical trial awareness
Seed Magazine Crowdsourcing the Genome
By Nancy Scola, Feb 27, 2009
James Heywood talks about the future of research in a new world of user-generated genetics
Buzz around Campath Proof-of-Concept Trial in MS
By Randy Osborne, Jan 01, 2009
In this article, PatientsLikeMe's David S. Williams III references our study on Tysabri and looks ahead at what could be for Campath.
Networking for a Cure
By Dr. Sanjay Gupta, Dec 05, 2008
Medical correspondent Dr. Sanjay Gupta visits the PatientsLikeMe office to interview our founders and a local ALS patient about how this site is making a difference in patients' lives.
Health 2.0: Patients as Partners
By Catherine Arnst, Dec 04, 2008
Senior writer Catherine Arnst takes an in-depth look at how PatientsLikeMe is “changing the nature of drug research and the practice of medicine.”
Patient-led drug trials defy medical establishment
By Marcus Wohlsen, Nov 26, 2008
This AP article delves into the history of PatientsLikeMe's lithium experiment, with quotes from James Heywood and ALS patients.
Through Website, Patients Creating Own Drug Studies
By Carolyn Y. Johnson, Nov 16, 2008
A glimpse at how the user-generated data shared on PatientsLikeMe can, and is, moving medicine forward.
'Open Wide...'
By Barrett Sheridan, Oct 16, 2008
Jamie Heywood talks about the value of openness and how it can shape the future of healthcare.
The New York Times Logging On for a Second (or Third) Opinion
By John Schwartz, Sep 29, 2008
PatientsLikeMe's Ben Heywood is interviewed in this New York Times article about the democratization of health care.
The New York Times Health on the Web
By Jascha Hoffman, Sep 29, 2008
PatientsLikeMe is cited as one of the "six of the most interesting and potentially useful online health resources" in this NYT piece.
Power to the Bottom
By Lily Huang, Sep 06, 2008
Lily Huang writes about the potential for Web 2.0 to be "a powerful new tool for bottom-up, collaborative innovation," and cites PatientsLikeMe as an example.
Calling All Patients
By Andrew Marshall, PhD, Sep 01, 2008
An interesting article about power, and potential pitfalls, of patient-driven healthcare (spotlighting PatientsLikeMe)
Openness, Not Privacy
By Chris Dimick, Jun 01, 2008
In this article, Chris Dimick interviews Ben Heywood about PatientsLikeMe and its unique Openness Philosophy.
How the MySpace mindset can boost medical science
By Peter Aldhous, May 15, 2008
PatientsLikeMe and co-founder James Heywood are spotlighted in this article about the impact of social media on clinical research (www.newscientist.com).
Carving a Social Networking Niche
By Olga Kharif, May 01, 2008
PatientsLikeMe is featured in this BusinessWeek.com slideshow about niche social networking sites.
A Pandora's Box for Clinical Trials
By Paul Bleicher, Apr 01, 2008
Bleicher spotlights PatientsLikeMe in this article about "how one patient community on the Web is single-handedly forging new ground in the clinical trials world."
The New York Times Practicing Patients
By Thomas Goetz, Mar 23, 2008
The article, which features PatientsLikeMe, discusses the pros and cons associated with sharing data-rich personal health information in an open community.
Next Disruptors: 15 Companies That Will Change The World
By Erick Schonfeld and Chris Morrison, Aug 22, 2007
PatientsLikeMe is recognized by Business 2.0 and CNN Money.com as one of their 2007 “Next Disruptors: 15 Companies That Will Change The World.”
Contacts:
Press Releases
PatientsLikeMe Adds Online Community for People with Chronic Fatigue Syndrome
CAMBRIDGE, Mass., Oct 30, 2009
PatientsLikeMe adds community for people with chronic fatigue syndrome/myalgic encephalomyelitis Read more...
UCB and PatientsLikeMe Partner to Give People With Epilepsy a Voice in Advancing Research
Brussels, Belgium and Cambridge, Mass., Jun 15, 2009
• Unique industry-patient partnership to improve understanding of epilepsy • Epilepsy patients will share real-time, day-to-day progress in controlling seizures and achieving treatment goals Read more...
PatientsLikeMe Teams Up With 23andMe to Help Parkinson's Patients
CAMBRIDGE, Mass., Jun 09, 2009
Health 2.0 Pioneers Work Together To Accelerate Research Read more...
PatientsLikeMe Mood Community Members Share Tips For Positive Inpatient Therapy Experience
CAMBRIDGE, Mass., Jun 03, 2009
"The Patient Voice" report series by PatientsLikeMe makes its debut Read more...
PatientsLikeMe Launches Genetics Search Engine for ALS Patients
CAMBRIDGE, Mass., Apr 22, 2009
PatientsLikeMe launches new genetic search engine for ALS patients Read more...
PatientsLikeMe Launches Community for People with Fibromyalgia
CAMBRIDGE, Mass., Dec 08, 2008
PatientsLikeMe announces new community for people with fibromyalgia. Read more...
PatientsLikeMe Report Indicates MS Patients Still Positive for Tysabri Following July Announcement of PML Cases
CAMBRIDGE, Mass., Nov 03, 2008
PatientsLikeMe announces the release of its PatientsLikeMeListen™ report: "Did the July 2008 PML announcement affect the Tysabri brand?" Read more...
PatientsLikeMe Receives Prix Ars Electronica Honors
CAMBRIDGE, Mass., Sep 09, 2008
PatientsLikeMe Wins Prix Ars Electronic "Award of Distinction" Read more...
PatientsLikeMe Study Reveals Greater Burden for Younger Patients With Parkinson's Disease
CAMBRIDGE, Mass., Aug 20, 2008
A recent study by PatientsLikeMe, the leading health data sharing community for patients with life-changing conditions, reveals Young-Onset Parkinson’s Disease (YOPD) patients (individuals with symptom onset at 40 years or younger) experience more non-motor symptoms than those with “classic” Parkinson’s disease (PD)... Read more...
PatientsLikeMe Geneticist, Catherine Brownstein, Ph.D. Wins Prestigious Research Award
CAMBRIDGE, Mass., Jul 08, 2008
Brownstein Accolades and R&D Background Read more...
PatientsLikeMe Announces New Community For People With HIV, AIDS
CAMBRIDGE, MA, Apr 08, 2008
PatientsLikeMe, the leading treatment and outcome sharing community for people with life-changing conditions, announces a new community for people with HIV and AIDS. Read more...
Benjamin Heywood Interviewed by the Health Business Blog
CAMBRIDGE, Mass., Jan 02, 2008
Bringing the New Year in right, Benjamin Heywood, CEO of PatientsLikeMe, was interviewed by the Health Business Blog. Read more...
Business 2.0 and CNN Money Recognize PatientsLikeMe as one of its "Next Disruptors: 15 Companies That Will Change The World"
CAMBRIDGE, Mass., Aug 26, 2007
PatientsLikeMe, the leading treatment and outcome sharing website for people with life-changing conditions, has been recognized by Business 2.0 and CNN Money.com as one of their 2007 "Next Disruptors: 15 Companies That Will Change The World". Read more...
PatientsLikeMe Unleashes Real-World Treatment and Symptom Information to the Public for ALS and Multiple Sclerosis
CAMBRIDGE, Mass., Aug 20, 2007
PatientsLikeMe.com, the leading treatment and outcome sharing community for people with life-changing conditions, has released the most comprehensive real-world treatment and symptom dataset on ALS (Lou Gehrig's Disease) and Multiple Sclerosis (MS). Read more...
PatientsLikeMe featured as part of PBS Frontline coverage of SO MUCH SO FAST
CAMBRIDGE, Mass., Apr 03, 2007
PatientsLikeMe, the leading treatment and outcomes sharing website for people with life-changing diseases, is featured on the PBS news magazine Frontline’s website in conjunction with the April television airings of So Much So Fast. Described by Oscar-nominated directors Steven Ascher and Jeanne Jordan as “a black-humored cliffhanger of romance, guerrilla science and the redefinition of time,” So Much So Fast chronicles Stephen Heywood’s courageous battle with ALS (Lou Gehrig’s disease). Read more...
FierceHealthIT Names PatientsLikeMe to List of Top Health IT Innovators
CAMBRIDGE, Mass., Apr 02, 2007
PatientsLikeMe announced today that it has been named to FierceHealthIT’s first-ever list of Top Health IT Innovators. This recognition honors PatientsLikeMe for its innovation in the health IT industry. Read more...
PatientsLikeMe Receives Its First Scientific Award
CAMBRIDGE, Mass., Feb 23, 2007
PatientsLikeMe, the leading treatment and outcomes sharing website for people with life-changing diseases, is proud to announce its first scientific poster award. Today, at the 20th anniversary meeting of the British Neuropsychiatry Association (BNPA), Dr. Paul Wicks, resident researcher at PatientsLikeMe.com received the Association’s first prize for the best poster presentation, entitled “Telesocial medicine for neurological disorders: PatientsLikeMe.com”. Read more...
PATIENTSLIKEME SECURES $5 MILLION SERIES A FINANCING
CAMBRIDGE, Mass., Feb 05, 2007
PatientsLikeMe (http://www.patientslikeme.com), the leading treatment and outcome sharing website for people with life-changing diseases, announced today that it has secured $5 million in Series A funding led by Collaborative Seed and Growth Partners, LLC with participation from private equity fund Invus, LP. Previous investors in PatientsLikeMe include founding partner CommerceNet and Omidyar Network. Read more...
STEPHEN HEYWOOD, 37, Dies; Master-Builder/Architect, subject of the 2006 Major Motion Picture SO MUCH SO FAST
NEWTON, Mass., Nov 30, 2006
From December 1998 when Stephen Heywood was diagnosed with ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease) to Sunday morning November 26, 2006 when he passed away with his family and friends Stephen lived a lifetime. Read more...